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Fibro Myalgia question
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HighnLoLita posted:
So, It was oh so clear on my 2 MRI's earlier this year that I had 3 bulging disks in my neck and 2 in my lower back, sciatica, narrowing of the spine, bone spurs and arthritis of the spine and they are calling this Mild! There is nothing about my pain that is mild! Then they had a nerve test that confirmed it was mild??? and it said I had carpal tunnel in both of my arms and fibro myalgia??? Personally I'm not so sure about the fm I think they are just adding that in there. I am just so frusterated and depressed because there is nothing that they can do for me because of my bipolar disorder and my "history". I am on a fixed income and after I paid my bills this month, I litterly had $20 left to my name and the only dr in the state that can pain management me wants me to pain $260 up front. Wow. I have been turn down so many times that what if I pay the money (that is if I can come up with it) and he turns me down as well. Thank You for letting me rant. I don't even think there is a question in there lol....Lita
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Caprice_WebMD_Staff responded:
Hi HighnLoLita,

While you're waiting for responses here, you may also want to post on our Fibromyalgia community . There are a few who post there who deal with both BP and FM, along with other pain conditions.
We must let go of the life we have planned, so as to accept the one that is waiting for us. ~Joseph Campbell
 
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annette030 responded:
Many studies have shown that there is little correlation between the MRIs and the level of back pain one feels. People with MRIs that show horrible changes may have no pain at all, and people with normal spines per the MRI may have terrible symptoms.

FMS can be a pain amplitude kind of problem, so if you have pain from some other cause it may be increased when compared to someone without FMS. Or you may have pain for NO reason at all. It can move from place to place for seemingly no reason at all. My favorite FMS site is http://www.myalgia.com , they give lots of information about FMS. You might go there and do some reading before deciding if it seems like a reasonable diagnosis for you. You can print out the info to share with your doctor.

Take care, Annette
 
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CTBeth responded:
Your story says that you've been on disability since you were in your late-teens. Doesn't that include Medicare?

Why do you think you have been given a diagnosis of fibromyalgia? This cannot be diagnosed by an MRI or "nerve test". There is also a fibromyalgia support site on Web MD. You may like it.

Many of us on this site are receiving disability. Medicare does cover pain management MDs. Has anyone out there heard of a pain management MD that wants $260.00 upfront from a Medicare patient?

In what state do you live?

Something seems not-quite-right.
 
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HighnLoLita replied to CTBeth's response:
Yes, it does include Medicare and this so called pm dr claims that the $260 will be reimburssed by medicare that he has a contract with medicare but, when I called medicare they said there is no such contract. Then on Monday when I went back to the Spine Center to have my nerve test results she informed me that the results said I did have a dual diagnosis for carpal tunnel, mild ddd, and she believed by her examination that I had fibromyalgia. And that my best bet was to pay that dr the $260 because he is the best in the state and he would know what to do and that that fee was only for the first visit and for the next visits it would just be a copay. It still doesn't fit right with me. I live in Mongomery County MD
 
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annette030 replied to CTBeth's response:
Hi, Beth

Medicare is a nationwide program. I know because I have it. I have never had to pay for a doctor up front. I have seen several doctors by referral for surgery, and they all billed Medicare themselves, I paid a small copay, maybe up to $25 but even that was billed to me later. I saw a surgeon, a pain management doctor, and a hematologist, in addition to my pcp. That was just plain old-fashioned Medicare.

This year I signed up with an AARP Medicare Advantage program, and I pay $15 for my regular doctor's visit, and $25 for a specialist, as a copay at the time of the appt. I had breast reduction surgery and had to pay nothing at all to the surgeon above my copays for my office visits.

Doctors are required to tell you if they don't bill Medicare or even if they choose not to use it at all.

Take care, Annette
 
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CTBeth replied to annette030's response:
I have Medicare, too. I also have Worker's Comp. It is a little confusing to some, but WC is responsible only for treatment of my work-related lumbar spine injury. Medicare pays for all my other MD visits/ surgeries related to my cervical spine injury from an auto accident.

I have never had to pay for anything upfront and have a small co-pay for my PC. My other MDs (and surgeon) do not charge me a co-pay, but I suppose accept whatever Medicare pays.

I think getting a mental health advocate is very good.

It seems sad, but MDs do have the option of not treating patients with whom they do not feel comfortable; that the pt may not be be safe with controlled meds, or cannot understand or follow through with instructions. It's an unfortunate fact that they have to cover their asses, too.
 
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HighnLoLita replied to CTBeth's response:
Yea, I completely understand their conserns considering my history and everything but, I am human and I do deserve a quality of life. I did try to attempt suicide 2.5 years ago with my mental health medication and I have those very same meds in my posesssion at this time and I will never do what I did after all it has caused me. And I'm even wondering if all of the health issues I'm having now is a dirrect result of taking all my meds that day (they were not able to pump them out, to late). I have a lot to live for now and I so desperately would like to live with less pain is all. I am checking into that advocate on Monday so thanks again Lita
 
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CTBeth replied to HighnLoLita's response:
Hi Lita,

Yeah, it really is a tough situation, BUT there must be a solution. You did not ask for the illness that causes you such distress. You also deserve relief from your pain.

Will you be getting more info about a Mental Health Advocate? There are ways to medicate safely, even if it means supervision for a while to be sure that you're safe.

I know that persons with substance abuse histories also face some of the same challenges regarding medication. Just because someone has substance abuse in their past doesn't mean they should have to live with inadequate pain management. It can be tough and, in reality, their risk is higher.

It's not easy when you live with pain, no matter who you are or what your past may be. Hoping that you'll find an MD who will treat you with respect and get your pain to a manageable level.

Have a nice wknd,

CTB
 
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HighnLoLita replied to CTBeth's response:
Well CTBeth, I will be going to see a Social Worker in my area in a couple of hours. I did not call them, I am just going to walk in, my brother said that is my best bet. So I am hoping they can help me or refer me to who will be able to help in my situation. Yea, I once met a woman in the hospital with substance abuse problems and medical pain issues and I felt very sorry for her situation, I never thought that I would relate to her situation being that I'm not an addict. But, my case is treated the same as an addict case. And I so relate to her now. Back then I didn't have any knoledge of pain or pain management but, I still felt that she had the right to pain management care even though she was a drug addict. I felt really sorry for her situation. Anyways my weekend was nice. I did up the anty with my exersize as the dr. prescribed and it was very painful but, it seemed to help my mood a bit. I'll let you know what happens, fingers crossed...Lita
 
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CTBeth replied to HighnLoLita's response:
Hi Sweet Lita.

I am so glad that you took the time to write this morning.

I was thinking about you earlier and hoping that you'd post with some good news.

Best of luck with the social worker.

Do you mind saying in what state you live? No reason, really, just wondering. I, of course, am in Connecticut.

Please write later or tomorrow and let us know how it went for you.

((hugs))

CTB
 
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HighnLoLita replied to CTBeth's response:
Hi CTBeth, Sorry it took so long to get back, I've been everywhere the last couple of days. I live in Maryland. I did meet with a Social Worker and she did refer me somewhere and she is going to help me with my search. I have an appt tommorrow that was set up a couple of weeks ago from my MD. I got everything ready to go and I have to be there at 830 am. That is really early for me but, this is very important so, I will be there with bells on.But, not litterly b/c I don't want them to think I'm crazy, I already have a hard enough time with my records getting in the way ... If this doesn't pan out, I still have a referal from the Social Worker and referal from my therapist who swears by her. I did get approved for a nurse to come and help me a few hours a week in the am which will really help me as I am not able to do anything but, sit in pain, unable to put the cream they prescribe me or the tens unit on my back and scared to get in shower for fear that I might fall and can't get up. Well now I'm just waiting on a call from the nurse to say when she'll be coming. Thanks so much for the ((hugs)) I really need them you are very kind..Lita
 
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HighnLoLita replied to CTBeth's response:
Hiya CTBeth Guess What??? I got a PM Dr!! I had dejavue this morning on my way and knew that today I was going to the right place to see the Dr that was going to help me He took over with the meds and I have an appt to have a proceedure done on the 30th to help with the pain in my neck. I signed a contract with him, which I had no problem doing and have always stuck to any contract with my doctors in the past. Well I just wanted to let you know I hope your day is going good too! Lita
 
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CTBeth replied to HighnLoLita's response:
Hi Lita,

This is very good news! Did the MD day what the procedure is? Perhaps epidural steroid injections.

I hope this MD is good and you are able to develop a positive professional relationship with him.

It makes a huge difference.

Best to you,

CTB
 
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HighnLoLita replied to CTBeth's response:
Yes, he did say that they specialize in ddd pain management and that they mostly try to manage pain with injections and try to minimize the amount of medications being used. I understand that there are major risks assosiated with these options esp with the neck region but, with my history it is my best bet. In hope's that it all goes well we can minimize the amount of narcotics I use for at least a couple of years. My first injection will be on August 30th. I do know some ppl say don't do it. And I know some ppl say they don't work. Well I don't have many options and with the pain I'm having I'm willing to give it a try. I am scared but, then again what if it can be the thing that works for me. And if I don't do what the dr's say I should do then they are not going to continue to medicate me either. Catch 22...Lita


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