I have had chronic pain for many years. I was in a car accident in 2007 which caused me to have neck and shoulder problems. I had neck surgery in 2008.
For the last couple of months, I have had the normal neck and shoulder pain. But now I also have pain from head to toe. My whole body hurts all the time. It hurts to touch anywhere on my body. I also have extreme fatigue. I am having trouble staying awake at work. I tend to fall asleep as soon as I get home from work.
Now for the last couple of weeks, my hands and feet are tingly most of the time.
I also have had chronic diarehea too. But that has been going on for about 8 months so I am not sure if that is connected or not.
I saw my regular doctor and she is sending me to a Sleep Specialist and a Neurologist and a GI specialist.
She wasn't sure what is causing these symptoms.
I think that it sounds like it might me fibromyalgia. Does anyone who has it think this is what it sounds like? Or any ideas (for me to discuss with my dr) of what it sounds like it could be?
Hoping one of these doctors will be able to help me. Thanks for any suggestions anyone has.
I have FMS, and it could be what you have, but a doctor usually has to do a lot of different tests to eliminate other possible causes of your symptoms.
My favorite medical site for FMS is at http://www.myalgia.com . I have found lots of solid information there. It is not an interactive site like this one, just lots of articles about FMS and its diagnosis and treatment. You can print out anything you find there that seems to resonate with you, and show it to your doctor. Dr. Robert Bennett, MD is the rheumatologist there, he is well known in the FMS community as a doctor who treats and does research on FMS.
My doctor did the following just to rule out any other possible diagnosis when he decided I had FMS: Thyroid panel (TSH, T3,T4), CBC, ANA, RA factor, Liver panel including tests for the various kinds of hepatitis, TB skin test, and HIV. I had already had MRIs and CT scans done of my head and cervical spine due to other problems, so he didn't repeat anything. That covers thyroid problems, Lupus, rheumatoid arthritis, various liver problems, TB, and HIV/AIDS. All of those things can cause similar symptoms at some point in their development: pain and fatigue.
My doctor had also taken care of me for nearly 10 years, so he knew me and my family pretty well. That makes it easier for him to make a diagnosis.
I did a sleep study also, I forgot about that one. The neurologist who ordered it just told me it was fine, but never gave me the report. It turned out, I have so many Alpha wave intrusions into the Delta sleep patterns that it supported my regular doctor's diagnose of FMS. I didn't find out until SSA requested all my medical records for SSDI a few years later.
It was a very interesting test, I never imagined being able to sleep hooked up to all those machines and wires. I was also a night nurse at the time, so my sleep schedule was opposite the norm. Of course, once I finally went to sleep for a little bit, they woke me up and told me they had what they needed and I could go home. It was just before 5 AM. I had fallen asleep just 3-4 hours before.
But, like I said they got a bunch of good data. I would ask for the report, and also read up on the process and what is normal and what isn't.
Sleep apnea needs to be ruled out, as it can cause some symptoms similar to FMS. That is one of the reasons they do it. Sleep apnea is fairly easily treated and things improve fairly quickly if all you need is a CPAP machine.
You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.
The opinions expressed in WebMD Communities are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. Communities are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatments or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service or treatment.
Do not consider Communities as medical advice. Never delay or disregard seeking professional medical advice from your doctor or other qualified healthcare provider because of something you have read on WebMD. You should always speak with your doctor before you start, stop, or change any prescribed part of your care plan or treatment. WebMD understands that reading individual, real-life experiences can be a helpful resource, but it is never a substitute for professional medical advice, diagnosis, or treatment from a qualified health care provider. If you think you may have a medical emergency, call your doctor or dial 911 immediately.