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help severe chronic pain,feeling withdrawal,dr wont help/being cornered
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aseida13 posted:
hi new to the forum but im in a horrible situation need help and dont know where to go.

Im 21 with spina bifida and low back pain from a tethered cord.
3Out of 4 dr advisede not to do thr surgery as it'll be #4 and the risks are high and the chance it helps the pain is low =/.

I've seen my current Dr. for 4 years d for awhile he was amazing but it got to the point where the doses got to high and he didn't feel comfortable.
About a year & 4 months ago he sent me another Dr.

she was horrible from the start she yelled a me ,told my mother very roughly and rudely maybe she needs meds when she started to cry because she recently lost her very close sister,she deceived me to separate me and my mom and basically questioned uslike a cop but I put up with it due to her helping my pain .

not thinking because I was in so much pain, she jaed my meds up SUPER high. I ended up in the ER for cellulites we called 6 times before we left to inform her but never got a return call. 6 Days later we got a letter cutting me loose for seeing another dr which didn't request but iwas in the hospital I even told them I didn't want to because the guy is an ass but anyway

We returned to my original guy and he said he will not Change any meds but just keep me what im on until I find a new dr. M pain was ok until about a month later and this is where my hell started.

We've seen about 6 Dr. and all of them wouldn't take the case because my meds are so high .

I've been suffering for over a year.

I wake up in withdrawal , every other day im in withdrawl(second day of fentanyl patch) and now every day is starting to be bad.
Im in pretty bad pain 24/7 like 8/9 out of 10 I cant work and it feels horrible at 21

recently the last Dr. we saw agreed to treat me but only with suboxone and that means inpatient detox and all for a med I know made me feel sick in the past.

I have no clue where to turn I feel HORRIBLE and have 4 years clean from heroin on the Line. I can live like this I want my life back. I have a right not to be in pain and not be forced on a drug I de horrible on that didn't handle my pain in the past .

I think methadone would work great its the only thing my tolerance isn't through the roof on. But cant find a Dr. to try it or even help me.

Im at my breaking point im sorry this was so long .

My meds
140Mg oxycontin 3x a da
75Mc/g fentanyl patch every 48hrs
30Mg roxycodone 4x a d
Lyrics 200mg 3x a day
Neurontin 800mg 3x a day


I cant live suffering,withdrawing ,in bad pain,while staying clean from heroin and ive worked to had for 4 years to throw it down the drain (the same situation is how I started)


alex
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annette030 responded:
You are right, you are on very high doses of narcotics. AND you were once a heroin addict, of course, it will be difficult to find a doctor to manage your pain meds for you. You knew what you were taking and now you must try something else, it is naturally scary. It might be advisable to see an addictions therapist along with a pain management specialist. What are you currently doing about your addiction problem?

Have the doctors told you why they do not want to try methadone? Are you aware that enough methadone to cover what you are taking might cause heart conduction problems? Maybe this is why the doctors want to go to suboxone instead. I don't know, you will have to ask them. I suspect they have a reason, just ask.

I have read that taking two long acting opiates is a no-no in drug treatment for chronic pain. Perhaps, opiates won't help you with your pain, no matter what the dose???

Keep in touch, let us know how you are doing.

Take care, Annette
 
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aseida responded:
Thanks for answering. Its hard took to my Dr. As he just cuts mw off and says hw w change anything and the new guy seems to just push suboxone he has done studies etc on it and says he only really uses that.

As for my addiction I overheard my Dr. recording his notes and says I am not drug seeking and ive proved myself by passing all drug tests,pill counts(my parents control my meds) and I only g ot into drugs because at 14 no dr would treat me and ive been clean since I was 17

that's not the issue with these dr its thr amount of meds im on im willing to do inpatient detox if I know im not going to be in severe pain & that ill have a dr to treat me . I see people in my situation where their tolerance is high on all meds go on methadone and have great results .
Id go to a methadone clinic but don't want me branded as an addict everywhere I go and I dont want to have to drive there every morning .
I have no cravings to get high but this pain withdrawal is horrible and am scared if it gets worse ikthrow 4 years of being clean down the drain .

I wish a dr in or near my area sees this and wants to help or someone recommends someone.i can live with pain that's like 5 or 6/10. I want to work, go to school and be able to move to la next year but I cant work I have bills etc.and im 21 id like to get a girlfriend but I can bearly just take care of myself

I need help
 
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davedsel57 replied to aseida's response:
I'm sorry you are going through all this, and I do understand.

Unfortunately, you can not get the help you are looking for on an internet message board. It is against the rules and impossible in all WebMD communities to provide any type of diagnosis or medical advice. Even our experts here will try to help by recommending that you continue to seek help from your doctor.

If you are unhappy with your current doctor, then find a new one. Take charge of your health care and make sure you are getting the treatment that you need.

I pray you do get the help and pain relief you need soon.
Click on my user name or avatar picture to read my story.

Blessings,

Dave
 
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aseida replied to davedsel57's response:
Thanks Dave. Well my problem is my current dr won't do a thing except continue writing the scripts for what im on even his nurse quietly told my mom im not getting the care I deserve she's sweet but the drs not.ive seen all the major pain management dr im my area and they all are shocked by what im on yet won't do a thing about it. I never thought getting put on a lower dose of something that'll actually help me . Im afraid to tell or ask my dr alot of things out of fear of being cut loose or that I look like im drug seeking but im not. I just want to have a semi normal life back so I can work ,have a relationship and just get through Thr day. My MRI shows my condition be had 3 surgeries im 21 years old and can deal with pain Better then most. I deserve and have aright not to be in pain. Hell I can go to a methadone clinic yet no one will try it. I go back to the guy pushing subs on me but im not comfortable WTH the idea and dont like being forced into a corner

I tried to take charge but have no idea what to do and don't want to throw 4 years clean away but if this isn't figured out soon im afraid of messing up and I refuse to let it happen
Just looking for some opinions o advice
 
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annette030 replied to aseida's response:
I said you were a heroin addict only because you said that yourself. I have worked with heroin addicts in the past and it is a difficult place to come back from. You are four years clean, so keep it that way. You cannot use your pain as an excuse to use injected heroin. I think you need to see an addictions specialist in addition to a pain specialist. You said that your parents control your meds, that tells me that your addiction is still an issue.

Some pain clinics have addiction specialists as part of their team, ideally, this might be your best choice.

There is no way to know whether or not you will have pain or how much doing an inpatient detox. Give it a try, you can always quit and go home if it doesn't work out. If the new doctor is used to working with suboxone, give it a shot. Once you are his patient if it doesn't work out perhaps he will change you to something else. I would be open to trying the suboxone and see what happens.

I do not really think it matters much what pain med you are on, but rather the dosing of the drug. If the doctor is used to using suboxone, it may be better to try it and see where it leads you. It may be that the last time you used it, the dose was wrong, or you did not wait out the side effects long enough. Many side effects go away in time, do you remember what the side effects were? Or did it just not seem to relieve your pain?

Even switching to methadone, you might still need to lower your total opioid level.

Again, opiates may not be the answer to your pain at all, lease be open to that too.

Don't even worry about a girlfriend at this point, one will come along when you least expect it.

Take care, Annette
 
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TDXSP08 responded:
I totally agree with annette you need an Addiction Specialist on your team to help you and help your prescibers understand addiction and the need for Medications they ordinarily would keep far and away from people with addictive personalities or a past or current history of drug abuse, my Pain Manager's office along with PT,OT, Physiatrist, Psychiatrist also has a Psychiatrist who is a specialist in Addiction Medicine, who see patients on an individual basis for CBT type stuff regarding addiction and helps the Doctors know what to do if they suspect a patient might be changing from Patient to "Pusher" or User to "abuser" and i think in your case with an active abuse background another Doctor who can vouch for your honesty and who can record your pain levels upon visits could only help you. Further i agree with annette the taking of 2 long actingopiates is strange and so is your use of Gabapentin and Pregablin they are almost the same drug and IMHO it's questionable wether either of those drugs are doing anything positive other than the Pregablin creating a positive revenue for the Patent Holder. You are stronger than drugs ,you don't need heroin , you do not want heroin. These are Positive affirmations remind yourself of them every time your mind is blank or wanders into a dangerous area let out your positive affirmations .
i have no small step for man, but i have 6 tires for mankind,Watch your Toes!
 
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annette030 replied to TDXSP08's response:
I have used both gabapentin and Lyrica, I can tell the difference, and gabapentin works best for me. So I continue to use it. I do not take Lyrica anymore. The gabapentin does help with my neurologically based pain, and migraines, and sleep disorder RLS. I agree there probably isn't much point in using both of them at one time.

Using your mind to overcome things is a great idea. I use cognitive behavioural therapy techniques to control my chronic pain.

Take care, Annette
 
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ljude38 responded:
As an addiction specialist I can see your dilema. People do not understand when one is on such a high dose of opiate medication one needs to take the dose they have been taking as not to be in withdrawl. Of course youre going to go into withdrawl during the night being on such a high dose. This is nothing to be ashamed of and should be considered a medical condition. Unfortunately drug dependence is viewed with a stigma especially when a past dx of opioid abuse. I work for a rapid detox facility in California and have seen doses as high and higher than yours presently. Suboxone is usually a physician's firse answer but is not necessarily the best means of detox. It binds to the opiate receptors tighter and makes for a terrible detox. I can honestly tell you that I have seen people with chronic pain issues address their pain and begin to live a normal life. It takes work. Therapy helps. Research and finding appropriate alternatives and support. I hope you find what you are looking for.
 
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annette030 replied to ljude38's response:
This person is on fentanyl patches and oxycontin, both LONG acting opiates, there is no reason to believe he is going into withdrawal during the night, if the only short acting opiate he is using is the roxycodone he mentioned.

Take care, Annette
 
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ljude38 replied to annette030's response:
tolerance, annette. Also how the medication is being used. The ultimate goal of "long acting medications" such as fentanyl and onycontin is longer acting pain relief with these meds but a patient can be using so much and could be using it so long that they are rapidly going into withdrawl nightly.
 
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annette030 replied to ljude38's response:
Sorry, I don't believe you. I have never heard of this happening before.

Can you please post a link or a study that shows what you say to be true? I would be happy to go read it.

Take care, Annette


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