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Chronic Pain, extremely allergic to opiates
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MomofSLC posted:
Hi friends, just looking for some advise.

I have 5 fluid filled cysts inside the theocratic region of my spine. I have not been told there is an actual name for it, but I was misdiagnosed with MS for a year because of those cysts. Because of where they lie inside the spine, it is too much of s risk to operate.

Over the past 5 years I have gone through periods of time when my entire left side of my body would go numb, constant ringing in the ears, pinns and needles through the body, "stomach" problems etc etc..

But now , something has changed. I'm in pain all the time. If I could explain it, it feels like volts of pain are coursing through me?

Problem, very allergic to opiates. No itching , more stomach convulses , I throw up violently, and my blood pressure drops. So no opiates for me.

I take sleeping pills at night, just to get my body to calm down enough, but my quaility of life is minimal. I also take Effexor .

I've read some of the articles, just curious though if anyone had any luck finding any relief from a non narcotic.

I'm very sad, and am not sure if I can survive like this. Thank you in advance for any suggestions. Michelle
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davedsel57 responded:
Hello.

I am also allergic to narcotics, but have found other methods for successful pain management.

It sounds like you would benefit from some therapy. Chronic pain does affect us emotionally. Find someone you can trust to help you through this aspect.

It also sounds like you may benefit by seeing a pain management specialist. Talk to your primary doctor and see what he/she recommends.

I hope you can find answers and relief soon.
Click on my user name or avatar picture to read my story.

Blessings,

Dave
 
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Peter Abaci, MD responded:
The good news is there is a whole host of options out there for pain management help. That would include both medication and non-medication alternatives. It sounds like your doctors feel that your pain is related to nerve issues taking place around your spine. There are a number of non-opioid medication families that would be appropriate to consider to help with nerve pain. This list would include anti-seizure medications like Neurontin and Lyrica, and certain anti-depressants like Elavil, Cymbalta, and the Effexor that you are now on.

Learning other tools to help manage not only pain, but also related side effects like insomnia, stress, and mood changes is also really important. As Dave has mentioned above, pain psychologists can help you learn some of these valuable tools. Other approaches can also help with this, including exercise, mindfulness-based meditation, good nutrition and weight management, breathing exercises, and even mind/body activities like the ancient practice of tai chi.

Talk to your doctors about some of these alternatives so you can expand your approach to pain management. Best of luck!
 
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MomofSLC replied to Peter Abaci, MD's response:
Thank you both for your suggestion's.

I am waiting to see my doctors, although health care is " free" in Canada, the drawback is the wait. I didn't know pain phycologists existed . I will definitely look into that.

Thank you again.
 
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Purpleallycat replied to MomofSLC's response:
Look up herbs and spices that might help you. Asian culture uses Katrom for pain it is legal to buy and sell in states, Da Maeng is supposedly the purest. I have just ordered it so shall see. I have tried cinnamon in capsules and coriander and they both help...turmeric did not like me. So read up on spices and herbs that might be able to help. Good luck! A


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