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I think it is a big challenge for anyone to manage a chronic medical problem, whether we are talking about chronic pain, diabetes, or hypertension, without insurance or good medical resources. Many times public resources are overwhelmed and are forced to focus more on acute health problems as opposed to treating chronic diseases in a more comprehensive fashion. Despite this challenge, I want to give you some food for thought:
One of the most important things to better managing any condition is education. Knowledge in better understanding chronic pain and the ways it can be managed and how you can function better is powerful. Gaining this type of knowledge and insight leads to confidence and more independence in how to manage things and lead your life. Even patients with fancy health plans often don't get enough important education on chronic pain management from their doctors, and obviously, you won't get this from expensive medications, either.
Because resources and books are so cheap now on places like Amazon.com, I think with a modest investment, you could start with some sound educational resources to get you going in the right direction. For example, I created my own book so that a person could develop their own self-management program at home and in their community based on whatever resources they had available. I just checked Amazon, and a used copy is only a few bucks: http://www.amazon.com/Take-Charge-Your-Chronic-Pain/dp/B0058M9GAK/ref=sr_1_18?s=books&ie=UTF8&qid=1343309572&sr=1-18&keywords=chronic pain . Of course, their are plenty of other good books and DVDs out there besides mine, including one by Dr. Caudill who writes for our Fibromyalgia Community, and I often recommend books by Jon Kabat-Zinn, as well as his 8 week MBSR program (there is probably one in your area).
The American Pain Society offers recommendations for finding resources and educational material on their website: http://www.ampainsoc.org/about/ .
One of the challenges of living with chronic pain is staying physically active and maintaining the rest of your health. Consider looking into affordable community resources that could help you with that, like a local YMCA or classes at a community center.
The goal is to come up with your own daily self-management plan and tools that you can stick with so you can keep your pain in a box and move forward with your life. I hope this helps.
Methadone works in the same ways for Pain patients who also have addiction issues. Methadone is also used in addiction clinics to wean addicts off of narco's.
And in the last 10 years it's made a very impressive showing in the Pain Management world as a Long Acting pain med. So when you ask about the Sub, ask about Methadone also, that at least gives you 2 choices, in case 1 doesn't work.
Hang in there, sending up good thoughts and prayers for ya!
Kat
I have used Dr. Margaret Caudill, MD, PhD's book, "Managing Pain Before It Manages You", it is a great book, I got it at our local big box book store. I have also seen it advertised in an on line Nurse's book store. I also have read and shared, "Feeling Good" by Dr. David Burns MD. It is also very good and I have used techniques from this book, it literally saved my life. Also available anywhere in the self help section of a quality book store. Each book cost about $20 new, but I have also seen them at thrift shops, really cheap.
Thanks Dr. A for writing your own book, I will read it as soon as I can. I really feel one can always gain something by reading a book if they are open to learning at all.
Take care, Annette
Doctors can use methadone for chronic pain, I use it and have never had any kind of addiction issue, my husband used it in the past twice for chronic pain issues, and he also has not ever had any kind of addiction. The dosing, and the frequency of dosing is very different than that for addiction.
It cannot be used legally outside of an addiction clinic for addiction. I doubt there are any laws to deal with using it for chronic pain at these clinics if you pass their entry rules.
I do not know the present status of the buprenorphene type drugs, my 2010-2011 drug hand book states that one type should only be used for addiction and one type for pain. It also states that a doctor must have specific addiction training to use it for addiction. I know nothing personally, having never used these drugs at all. Dosing, etc. can be found on line or in a drug handbook.
Having worked with opiate type drug addicts and methadone back in the early 1970s, I really respect opiate addiction and would rather have chronic pain than addiction. I also really respect methadone, you are so right that you never take more than is prescribed to you, no doubling up the dose because you are having more pain.
A recovering addict who has pain issues is really caught between a rock and a hard place. Given a choice I would suggest a pain clinic that also has addiction help, but I know clinics like that are few and far between, especially for someone with $$ and insurance issues. I hate our healthcare system.
Good luck, and take care, Annette
Peace
I have found some places that will do Charity - Swedish does too. I will check out what is in the new area we are moving too. I have HCV too and want treatment asap - so finding a good free doctor and getting my meds thru the pharm company is my plan. I am meeting with a SS doctor next week for disablity.....cross your fingers.
Do whatever you think is the best thing for you. I would not share in a 12 step program that I used prescribed pain meds, I just do not trust anyone enough. My friend went through AA and different alcohol/addiction related programs, and they often teach that any use of opiates , even proper use of prescribed opiates means addiction, not true. I might share other aspects of my recovery process though.
As far as I am concerned "clean" means free of alcohol, and abuse of prescribed meds. Clean can include the proper use of prescribed meds as far as I am concerned. YOU DO NOT NEED TO BE A MARTYR TO CHRONIC PAIN.
Anytime you wish to share how long you have been clean, it would be nice to know.
How did it go with your doctor appt.?
Take care, Annette
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