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Last Reply:

Whats wrong with me??

CMiller0224 posted:

Hi so I'm not exactly sure what is wrong with me i need help, I am 20, my issues started when i was 17 and they keep progressing. about 3 years ago i noticed that when i went from walking to running i fell, or when i went to walk up stairs i fell to almost as if my legs completly froze and i could not use them. now 3 years later thing progressed alot, every time i co to stand up my legs stiffin up and i cant function them properly, when i walk up steps its hard bc my legs go stiff, i run bc i fall, and also my hands crimp up, if i got to grab something, or like staple a piece of paper and then let go of it, i can let go right away like my hands a froze for a second, my neck/head, if i go to turn it a certain wait it takes me a second to get it back. all of this happens all day every day, and i do not know what to do, my reflexes are in and out, i have seen a nerologist, he is stumpted he keeps putting me on meds and 3 times now i have ended up in the hospital for high blood pressure and heart rate, last week on a new pill i almost had a border line heart attack. he did a nerve conduction test, i gues my nerves are ok, but when i put a needle in my muscle and shoked it and moved it around all he said was hmmmmmmm not good, and he sent my test off to washington U to get an answer, im not in a lot of pain when this happens, but it is very uncomfortable, and im not happy about it all, its making my life stressfullm, any ideals?

2 Replies |Watch This Discussion | Report This| Share this:Whats wrong with me??Hi so I'm not exactly sure what is wrong with me i need help, I am 20, my issues started when i was 17 and they keep progressing. about 3 years ago i noticed that when i went from walking to running i fell, or when i went to walk up stairs i fell to almost as if my legs completly froze and i could not use them. now 3 years later thing progressed alot, every time i co to stand up my legs stiffin up and i cant function them properly, when i walk up steps its hard bc my legs go stiff, i run bc i fall, and also my hands crimp up, if i got to grab something, or like staple a piece of paper and then let go of it, i can let go right away like my hands a froze for a second, my neck/head, if i go to turn it a certain wait it takes me a second to get it back. all of this happens all day every day, and i do not know what to do, my reflexes are in and out, i have seen a nerologist, he is stumpted he keeps putting me on meds and 3 times now i have ended up in the hospital for high blood pressure and heart rate, last week on a new pill i almost had a border line heart attack. he did a nerve conduction test, i gues my nerves are ok, but when i put a needle in my muscle and shoked it and moved it around all he said was hmmmmmmm not good, and he sent my test off to washington U to get an answer, im not in a lot of pain when this happens, but it is very uncomfortable, and im not happy about it all, its making my life stressfullm, any ideals?

77grace responded:

Hi,
I am sorry I did'nt see your post earlier os I would have replied!
Although I don't have any of the same problems I do understand the fear of not knowing what sup with your Body!
Hopefu8lly your nuerologist has some results from your tests and can at least start doing somethign for you!I 'm sure it is very stressfull,Not knowing!I have been through that with my illness!
Anyway,hang in and know I'm here for you ,O.K??
77grace

Report This| Share this:Whats wrong with me??Hi, I am sorry I did'nt see your post earlier os I would have replied! Although I don't have any of the same problems I do understand the fear of not knowing what sup with your Body! Hopefu8lly your nuerologist has some results from your tests and can at least start doing somethign for you!I 'm sure it is very stressfull,Not knowing!I have been through that with my illness! Anyway,hang in and know I'm here for you ,O.K?? 77grace

annette030 responded:

Who knows, not me. I wish I had great answers for you. But the University of Washington has a great reputation, and having your tests seen there is a huge plus. Can you get in to see a neurologist there? Even as a consult, it would be good to have a new set of eyes.

I saw a neurologist once at UC-SF Medical Center, I lived in Reno at the time. He was great, he went over all my films, etc. did a physical exam and wrote a report for my family doc back in Reno. He didn't find anything new, but it was very reassuring to have my diagnosis verified, and my treatment plan considered as being a good one.

Thank you, Grace, for pointing out this post.

Take care, Annette

Report This| Share this:Whats wrong with me??Who knows, not me. I wish I had great answers for you. But the University of Washington has a great reputation, and having your tests seen there is a huge plus. Can you get in to see a neurologist there? Even as a consult, it would be good to have a new set of eyes. I saw a neurologist once at UC-SF Medical Center, I lived in Reno at the time. He was great, he went over all my films, etc. did a physical exam and wrote a report for my family doc back in Reno. He didn't find anything new, but it was very reassuring to have my diagnosis verified, and my treatment plan considered as being a good one. Thank you, Grace, for pointing out this post. Take care, Annette

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