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Acute compartment syndrome
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allan1231 posted:
I am 54 years old and have had many, about 10-12 blood clots in my right groin. This last March, I had another and again had to have surgery. First of all, I was in this hospital about 5 weeks and do not remember anything at all about being there. I first remembered being at another hospital and them trying to teach me to walk with a walker. Now, back to thye story. After 2 days in the hospital, they nsaid I came down with acute compartment syndrome. They did emergency surgery and then had to go back 3 more times to remove muscle tissue that hhad died. It is now September and I am walking with a cane. All of the Dr.'s, surgeons, Family Dr., Pain management Dr. all say I am lucky to still have my leg. I now have nerve damage from my knee down. I am also on blood thinners so the Dr.'s say it is hard to prescibe because of that. Everyone has told me what all happened and I have the medical reports to help me remember, but that still doesn't help much. I remember being Ok and doing things and the next thing is I am like this. Frustration to say the least. The put me on Gabapentin 3 times a day for the nerve pain but it doesn'e help much. I feel like my life is gone now. It is so hard to try and stay possitive and up now. I live in a small town and there is no such thing as any support groups so I guess I am on my own. Just wish it was a terrible dream.

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Caprice_WebMD_Staff responded:
Hi Allan,

I'm sure that others will be responding but, in the meantime, I wanted to welcome you here. You'll find a lot of support here.
We must let go of the life we have planned, so as to accept the one that is waiting for us.
~Joseph Campbell
 
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annette030 responded:
Compartment syndrome is an acute emergency requiring immediate surgery in an effort to save as much tissue as is possible.

I cannot imagine the frustration and anxiety you must feel going from feeling fine to your present state. YOU WILL GET BETTER!!!!! It is early days as of right now. Ask, or insist on, adequate pain relief as soon as possible. This might keep you from ending up with chronic pain. Even if you do, that is not the end of the world. Many of us have chronic pain, we get along okay. No one knows what the rest of our lives will be like.

Take care, Annette
 
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Peter Abaci, MD responded:
Allan,

It sounds like you have been through quite an ordeal, and I commend you for working through this. Hang in there. Nerve healing can take many months, and rehabilitating the body from serious injuries can be a slow process that needs patience and perseverance. I wonder if your doctors shared any reasons with you as to why you have had a memory lapse?

There are a few basic types of medications that get considered in treating nerve pain. Gabapentin is one of the most commonly prescribed medications for nerve pain problems. The dose usually needs to be titrated or adjusted to the individual depending on the response to it. Gabapentin can also slow mental sharpness in some cases, so that needs to be taken into account if you are still having memory problems.

Another family of medications that treat nerve pain would include certain types of antidepressants like nortriptyline, which is taken at bedtime, and Cymbalta, which can be taken during the day.

It might be helpful to have your doctors recommend a therapist or psychologist that you can talk to. Working on how your recover on the inside is just as important as working hard to recover on the outside to your overall well-being.
 
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allan1231 replied to Peter Abaci, MD's response:
Yesterday I saw a Pain anagment Dr. and he went over my files. He told me, like all the other Dr.'s have said, that I was lucky to have my leg. He said that he was limited what he could do because I was on blood thinners. He started me on Fentanyl 25 and Gabapentin 300mg 3 times a day. I have been seeing a therapist for quite some time anyway and now they are trying to help me to deal with all of this. I just hope evrything gets better. At first the Surgeon said I would be confined to a wheelchair, then maybe a walker. And at the extream maybe a cane. He said that going up and down stairs would never happen. But I live on the 2nd floor and I struggle to get up and down but I do. So I guess I am pushing myself all the time to get better. Thanks for all the responses.


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