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    New to the forum, but not to pain
    avatar
    Twilight0925 posted:
    Hello, and thanks in advance for being here. Severe, chronic pain has a way of making one feel very alone. A bit of history about myself. I am a 52 year old wife and mother of two adult sons, who until 4 years ago never really dealt with chronic pain. Then I began to get backaches in the lumbar region. Took OTC meds...but they didn't work. I put up with the pain for a few months, and then finally went to my doctor. She did a work up and decided that I should see a neurologist (???). The neuro tested me and said that I have severe fibromyalgia..I hit all 18 points. My doctor then put me on a variety of opoids, none of which worked. She ended up putting me on Fentanyl patches, 100 mcg every 72 hours. This in tandem with a variety of oral pain meds that are rotated due to my getting tolerant to them very fast. She notes that I am one of the most opoid tolerant patients she has worked with! The whole body pain subsided, but my back got worse. I had an MRI done, and it revealed spinal stenosis and a number of spinal hemangiomas. I apologize that I cannot tell you more detail, my current PCP has all of my records. But oddly enough, I was never referred to a spinal surgeon.

    Fast forward to now. My pain levels have been going through the roof! Until the first of September I had no insurance, so I got my fentanyl via patient assistance, and had to go down to Tramadol because it was the drug created by this company. Now I am insured, and I found via a new MRI (head only) and EEG that I have Temporal Lobe Epilepsy...got the diagnosis this past Monday. I have also managed to find a good Pain Management doctor, who has put me on 7.5/775 Vicoden. It is not working! My pain on good days is around a 5-6, but many times I will rate around a 9. I have to work as a client services representative for a large company, so I drag myself to work each day and try to smile so that the pain does not show in my voice. I wonder if the epilepsy (complex partial seizures) has a bearing on my pain. The pain managment doctor is floored that no one ever suggested me to a spinal doctor...and I am in the middle trying to keep my sanity.

    I apologize for my rant, but it feels good to know that there are others out there who understand how pain, unrelenting pain, can degrade the quality of life. I am open to comments, suggestions and critique as well!
    Reply
     
    avatar
    77grace responded:
    Hi ,
    I just read your post ,I'm sad to hear that you are in so much pain !!I totally understand Back and neck Pain,headaches etc.!
    I have tumors that grow on the nerves on my spine and neck so believe me I understand!!!
    It sounds like you have had alot of workup but do they have any new idea's on helping you???What have you tried besides Medication???What meds helped the most??
    I know it can be very lonely being in pain ,gotta,go!
    77grace
     
    avatar
    davedsel57 responded:
    Hello and welcome. I am sorry to read about all you are going through. I do fully understand.

    IMHO, a visit to at lease one spine specialist would be good. Hopefully your primary doctor would be willing to refer you.

    In the meantime, be sure you have done your research and understand all your spinal problems. Here are links to websites that have very good information:

    WebMD Back Pain Health Center: http://www.webmd.com/back-pain/default.htm

    Spine Universe: http://www.spineuniverse.com/

    Spine Health: http://www.spine-health.com/

    I pray you can get answers, treatment and relief soon.
    Click on my user name or avatar picture to read my story.

    Blessings,

    Dave
     
    avatar
    77grace responded:
    Hi,its me gain,77grace!
    I wanted to say more before but I got interupted!
    I can't imagine the Dr. putting you on Vicoden when you were previosly on Fentanyl!That is one of the stongest pain killers there are!
    I've tried many different ones and even Fentanyl was'nt strong enough for me1So after my first Surgery the Pain Doctor put me on Methadone and it works pretty good!Its not as good as it was in the beginning but that's because of Tolerence!!
    I have a friend who also has Fibro.and I know how much she suffers!
    I will keep you in my prayers if you want me to!
    77grace


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