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REALLY!?!?!?!?!?!?
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foreversore posted:
I am so beyond frustrated and upset. I was under the mistaken impression that pain management doctors were supposed to try to manage your pain. Apparently I was very, very wrong. I called my pain management doctor again on Friday and they called me back today to tell me that since the first epidural made my lumbar area worse and the cervical epidural did nothing for me that he is done with me and I have to go back to my primary care doctor. Well, I called his office and I can't get in until the 24th of this month. So in the meantime I guess I will continue to suffer the constant pain and the sleeplessness and restlessness. I really feel like I am slowly going insane from the constant suffering with no relief. I am seriously at the end of my rope. I would go to the ER for temporary relief but they are a joke. When I went on Christmas for the concussion and bruised tail bone the doctor asked me what medication I wanted. I told her I don't know I am not a doctor but I can tell you what hasn't been working. So what did she do? She gave me the same medication I told her didn't work. I tried it for one day, even doubled the dose and it was like taking a sugar pill so I said screw it and stopped taking them. I REFUSE TO LIVE LIKE THIS FOR EVER! I am hoping my regular doctor will help. I insisted on seeing him this time in stead of a nurse practitioner but the having to wait is not making me very happy.

I don't know if the pain I am dealing with is from the DDD/arthritis or if it is from my FM. The current FM med and antidepressant I am on aren't working either. I feel exactly the same whether I take them or I don't. I honestly don't care what my doctor does to get me some relief I will try anything to knock the pain down to a manageable level.
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ctbeth responded:
Hello, my friend, Foreversore.

I am so sad to read of your experience.

I wish that you could get to see your primary care MD sooner. Do they have a cancellation list? Can they call you if someone cancels an appt?

I know you were kind-of hanging on to get to this appt. I know I was eager to hear what happened- and your news is not good news.

I think you have my email address. If you write to me there, I'll reply with my phone number and we can talk.

I hoe that you have family and friends where you live with whom you can talk, but sometime only someone else who knows pain can really understand.

PLEASE keep in touch with us, okay.

I'll be thinking and praying for you.
 
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foreversore replied to ctbeth's response:
Thank you Beth. My hubby is very understanding and we do talk about it. He is frustrated too because he knows I hurt and can't sleep and he feels powerless to help me. He goes to all of my appointments and he brings up the stuff I forget to mention thanks to fibro fog. I just miss sleep and it has been over 3 1/2 years since my pain has been at a manageable level. A body can only handle so much pain combined with lack of sleep before the mind slowly starts to snap. I have been using every non medical tool in the toolbox and no matter what I cannot get comfortable nor can I seem to relax my muscles and ease the pain despite the medications I already take. I am tired of poisoning my body with chemicals that don't help me.

My primary care doc is a good guy and I have always had a good relationship with him in the past. Unfortunately it is easier to get in to see the NP so I have been seeing her for a few years. I insisted on seeing the doc this time because she is starting to roll her eyes when I discuss symptoms and she blows me of and blames it all on the FM. If that wasn't bad enough the straw that broke the camel's back was the dreaded "you have FM you can't possibly be in that much pain" that did it for me and I will discuss that with my doc.

I will try to remember to e-mail you. I'm not good about checking mine very often so I tend to forget I have one.
 
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davedsel57 replied to foreversore's response:
I am sorry to read what you have been through with your doctors.

Can you see a different pain management specialist, especially one who is a physiatrist? This type of pm focuses on various methods and not solely prescription medication. My wonderful wife is seeing one for the back injury she sustained at work last year. He has tried a few things, most recently a facet rhizotomy on the facet nerves from L3 to S1 on her right side. So far, she has good relief there and will have the other side done soon.

I will continue to pray that you find answers and relief soon.
Click on my user name or avatar picture to read my story.

Blessings,

Dave
 
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foreversore replied to davedsel57's response:
Thank you Dave I am writing down a bunch of stuff that I want to discuss with my doctor for my appointment and all suggestions for things to try are welcome. I am willing to try anything at all to at least get this down to a manageable level every day. Today the pain is almost manageable for the first time in months so I am being very cautious so I can keep it this way as long as possible.


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