Hi elizabeth8373,
I also had blood clots that were in my lungs. This was about 304 years ago. At that time I was a heavy smoker (3packs a day) and that sure did not help. I had swelling in my right ankle and a little above that area only. I saw my cardiologist and no dr. could figure out that I had blood clots. Finally, in the summer my blood pressure got very high and I was admitted to the hospital. When I was in the Emergency Room they gave me the shots in my abdomen to try and help the problem. They already had done the appropiate tests to diagnose that. I was in the ICU for days until safe enough to go to a regular room. When the ER dr. told me that I had the blood clots in my lungs I asked him"Am I going to die" and he said I do not know. I was totally scared to death by his answer. At least he was honest.
After being on blood thinners and other meds, they started giving me blood transfusions. I was not able to go see my daughter get married and I was very upset. The Drs. told me that it would be extremely dangerous for me to travel via air to her wedding.
Finally, I was getting much better and learned that I had a rare DNA gene called "V. Lieden". I had never known this until they did some special blood test and then I was told that I had that and I should have my daughter get checked also. Lo and Behold, she does have that "V.Lieden" gene.
The good news is that I recovered and I quit smoking and have not picked up one cigarette ever since this happened.
I truly believe that you need to pursue this because it sure can kill you if you are not being monitored and taking the right meds for your condition. I do not understand why your insurance co. will not cover this either. Let us know what happens.
Good Luck,
Meaningfulc1952