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Pudendal Nerve RFA/Ganglion Par RFA/Peripheral Nerve Block
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bpcookie posted:
Because of my VLSC pain issue I have been seeing a Pain Specialist. Ive posted on here about my Pudendal Nerve RFA (didn't work) and my Ganglion Par RFA (also didn't work), So now they are going to do a Peripheral Nerve Block. I'm not sure that I even know what it is. So I'm going into this blind. All I know is the Dr. said they may do it through my vulva area, ouchie. I'm actually hoping that they do because that is where my pain is. But the last two procedures they did in my lower back area.

Has anyone had a Peripheral Nerve Block? Can you tell me a bit about it? I have the procedure tomorrow. The Dr. never goes into details, she just pretty much points at the pic. on the wall and says "here is the peripheral nerve". The apt. is quick and fast, to the point, no explanations and I am left wondering WTH is going on? My pain specialist isn't the one doing the procedure, its a surgeon who does it. She just sends the orders to him.

Any info will be greatly appreciated.
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77grace responded:
Hi bpcookie,
No <I have not had that procedure but ,I really hope it works for you!!I'm not familar with your illness but it sounds miserable and I am glad that a Surgeon is doing the procedure!!I just think they are more qualified for things like that!
I know one of my pain Dr.s wanted to do something like burning one of the nerves on my spine and I said no way!!!
Long story but.........
So ,I pray that God will guiede the Surgeons hand and you will get Great results!
Take care 77grace
 
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Peter Abaci, MD responded:
BP,

The term "peripheral nerve" does not denote a specific nerve in your body but is a general term to describe any nerve of the body that isn't a part of your "central nervous system", namely the brain and spinal cord. Your doctor may have a specific nerve in mind but it sounds as though she didn't give you the name of it. Your pudendal nerve would be an example of a peripheral nerve.

It concerns me that you don't feel well-informed by your treatment team and at the same time interventional procedures are being performed. I think it is important for you to know exactly what is being recommended and why prior to any treatments being performed. I think it is reasonable to ask for some information about what evidence-based studies have been done or published to support the recommendations they are making. It is your body, and they owe you that.
 
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kitten23 replied to Peter Abaci, MD's response:
ok i go to a pain clinic and was recently dismissed because they said i tested positive for methodone(eddp) and gave me a list of area pc to go to.............well i did not know what methodone was until i looked it up on the internet. i have a buldging, herniated, and 2 ruptured disc in my back and need my script to even function. my doctor says he totally believes me when i say i have not knowingly taken any such thing............however it our state law that if you test positive for methodone in my state you are automatically terminated. ive been going there for a yr and never had #1 problem with any drug test which i took every month and there was a very, and i stress VERY "TRACE" amout in my system. i honestly do not know how this happened, i want to know if this will show up like my medication records do? that i was discharged , or dismissed for a positive test for methadone? and when i called the dr.s on the list they put in my letter they will not see me without a repherral and my pm DR will not give me 1, says he only doew the pain clinic and i will have to see my surgeon who is located in the same building, or my pcp can refer me, he also told me i would be unable to get the prescription medication i was taking due to this, is that true? i do not understand how " under due dilligence" my pm DR would not have called me back in immediately and just threw another test in me! if it was negative then there had to be an era somewhere, i know that eras occur all the time, human , test, or lab..........all 3 are viable explanations! i start nursing school in the fall to graduate with a BSRN..........so i know a little just apparently not enough not even my nursing instructors can answer this ? for because they do not know, i do not want to be "labelled" you know........so is this possible? will it show up in the data base for prescribers and pharmacies? if yes will it state specifics? and will another pm Dr. be able to write my scripts as they have been written for me to this point? and is my pcp able to take care of this for me until i can get into see another pm doctor or surgeon? ok so i dont know if i said this but i was under the impression that would no longer be able to recieve the class of narcotics ive been taking any more, is this also correct?
 
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ctbeth replied to kitten23's response:
Hi Kitten23,

Wow, this must be awful for you.

I read that you're planning to start nursing school in the fall.
Are you working in direct patient care now? Could you have been exposed to a patient's Methadone?

It probably pretty tough for that to happen, but technically, I don't know.

A lot of the questions that you ask are more state regs and your MD's option as to how much or little he/ she chooses to disclose. Since your MD sounds as if he/ she believes you, can you make an appt to discuss what your options may be at this time?

Have you meds now? If not, how are you coping?

How about your surgeon? Have you discussed surgery for your disc issues? Perhaps your surgeon can prescribe for you if you have surgery pending.

You can Google search the laws regarding controlled substances in your state.

Will your PCP be willing to write you a referral to another pain management MD?

Please let us know how things unfold for you.

Would you be willing to say in which state you live?

Don't give up.

CTB


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