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aws87 posted:
Hi, for the past 3-4 years I was under pain management care for extremely severe headaches due to there just not being any other option. This past February at the end of the month 3 days before my refill was due my doctor just suddenly up and quit practicing medicine without giving anyone any kind of notice at all. The practice he was part of had another doctor there do my refills and told me that I would need to make an appointment with one of the other doctors to continue my pain management care.

So I scheduled an appointment for as soon as possible (Mar. 12th) with another doctor there. A week before my appointment I received a letter stating that I was being dropped as a patient from the practice completely. Let me also state for the record that I had been a patient there for 11 years and never caused any kind of problems. Never once did I do anything wrong in regards to my pain management care. My record with them was spotless. When they dropped me. I was given no reason and more importantly they did not give me one single referral. I also was charged $200 to receive my medical records.

At the time I was released I had a little over 2 weeks of my medications left and did my best to taper down. When I was out of medication I went through horrible withdrawal but managed to do it on my own without going to a medical facility. I am unable to function because of my pain. When I say that I mean that the pain is so severe my days consist of me barely being able to get out of bed and move to a chair in my living room. I did work as a freelance photographer and since the unexpected ceasing of my care I've had to cancel photo shoots and have been unable to work at all. I also have to bite down on something when I take a shower. Just to keep from screaming out in pain and disturbing the neighboring apartments. I got engaged back in September and I fear that my circumstances are putting pressure on my relationship that will end up destroying it.

What can I do in this situation? Is there any type of program that advocated for chronic pain patients in situations like these? Is there any action I can take legally? My quality of life is completely gone. I am unable to even enjoy a tv show because I'm constantly being tortured by the pain. I had a beautiful life ahead of me but now that life is more like a prison sentence.
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smann68 responded:
Hi aws87,

I'm very sorry to hear about your problems and pain.

You might get some temporary pain relief by going to the ER and they also might be able to refer you to a local pain management specialist or doctor.

That would be my suggestion.

As much pain as you're in, even if it's possible to take any legal action, it's probably not worth your time.

Best wishes and I hope you find a new dr. soon!
alwaysinpain
 
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meaningfulc1952 responded:
Hello aws87,

Wow, you are in a real mess thanks to your pain management dr. dumping you. The same type of thing has happened to me over the years also.

I have seen first hand how this affects a patient when their own dr. just dumps you. I don't know if there is any legal thing you can do, but you really need to find another pain management dr.

If you keep looking and with your insurance (I am assuming that you have some) find the pain mgt. drs. on your insurance list. If there is nothing that looks like it will work out for the moment, then I would contact your family dr. about what happened to you. I hope that you have a family dr. Do you?

In the meantime, maybe your family dr. can help prescribe some of the medications that you were taking. When this happened to me, my family dr. would not write a prescription for an opiate such as methadone that I had been taking. Apparently, there are some laws and only certain types of drs. can write prescriptions for meds like methadone, morphine, etc. In the meantime, I was given a medication with codeine in it and that helped until I found a pain mgt. dr. Some of the other meds that I was taking also were prescribed to me by my family dr. You can rest assured that they can help with some of the medications.

In the meantime, you need to find another pain management dr. and bring your medical records to your appt. with them and hope for the best.

It is cruel and unusual punishment that a dr. would up and leave you "high and dry" with none of the strong medications to continue to take until you get established with another dr.

Wow, I am really sorry this happened to you. Like I said this happened to me also. It is very depressing and made me feel like a "bad person" when I knew that I had done nothing wrong . I wish that some of these drs. that do this to their patients get into the same kind of mess that can be dangerous to say the least to your health. It is not right to be taking a medication for a long time and then get completely cut off from it. Your dr. should have at least weaned you off of the medications until you could find another dr.

I do not have all of the answers, but some drs. are not worth a hoot!
Please let us know what is going on and get an appointment with a different pain mgt. dr. and go forward. Do not let that dr. make you feel like you screwed up unless you did. It does not sound like you did anything wrong from what you have already said.

Good luck,
meaningfulc1952
 
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aws87 replied to meaningfulc1952's response:
Unfortunately my primary care physician was the doctor who was doing my pain management. The soonest I was able to get in with another primary care physician was April 10th and he was a resident. I have another appointment with him on June 7th. Apparently though I have to see their pain psychologist for evaluation before they would even begin any type of pain management care. So I have to wait a month and then I have to wait again to get in to see their pain psychologist and then I have to wait again to get into see my pcp again. There is only one pain clinic local to me and I was referred there already over two years ago but all the doctor would do is recommend a couple things for my pcp to try with me. I have to get a referral to even schedule another appointment there but despite calling to get my pcp to do he hasn't even responded for 2 weeks.

I have a metabolization/absorption issue with the medications also. My doctor placed me on Dilaudid and it took 20mg for me just to feel some relief. He brought me in one morning to take a 20mg dose and they tested my blood about an hour after at the peak plasma level time and the levels in my blood weren't anywhere close to what they should be. So he put me on Dilaudid 20mg four times a day plus Oxycodone 20mg four times a day. So because of this absorption problem my monthly prescriptions were very large (600 4mg Dilaudid & 240 10mg Oxycodone tablets). Even though I have the documented results from the blood test he did and also a genetics test done to show the cytochrome issue I have, doctors are obviously scared of those numbers despite the fact that I had been on them for 2 years and had no problems whatsoever.
 
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Anon_57995 replied to aws87's response:
I think that you may be right regarding your dosages.

Not your fault, of course. When the MD left practice, for whatever the reason, the new MDs may have evaluated all of the former MD's patients records. Your may have "red flagged" due to the doses.

The MD who suddenly stopped practicing medicine (license?) was probably doing something wrong and got caught.

Although unlikely that you've participated in anything wrong, the new MDs, who would most likely be aware of the former MD's reason(s) for leaving, see that you're maintained on uncommonly-high doses of two opiate meds, and decided that your profile may cause them to be closely monitored- and decided that you're not worth the risk.

Again, what you've written indicates that you've done nothing wrong, and the new MDs likely are aware of this, too, but they do not want to treat you because they do not feel comfort prescribing such unusual dosages.

Not fair, of course. It's downright horrible!

Sadly, as we know, any MD can opt to not treat any patient he/ she wishes, other than in case of emergencies.

I hope that you can find an MD who is willing to work with you and possibly explore other non-chemical pain management options in addition to your meds.
 
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77grace replied to aws87's response:
Hi ,
I feel bad for you and what your going through,I can't imagine being abandoned like that and being on all that medication!The post that mention's your tolerance and the other Dr.s may be on to somethign!!!!RESPONSABILITY on his part and something may have happened!I'm surprised that you found a Dr. who would treat you at all with those dose's(No fault of yours)I just am very familere with a high tolerence and I personally know how hard it is to get the help and pain releif I need !I have a good DR> now but already my tolernce is messed up again and I'm really hurting!
I will keep you in my prayers,Best thing I can do for you !
Good luck,77grace
 
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ctbeth replied to aws87's response:
I have a thought:

Since you have your mal-absorption syndrome scrupulously documented, I'd guess that you have a gastroenterologist who monitors and/ or treats you for the syndrome.

Although you have con-current pain management issue, the mal-absorption really is the main problem that you're facing right now.

It's not like you can take 2 Percocet and get relief. It seems to be the mal-absorption that's making your headache treatment difficult.

Another thought: you've been seeing a PC for a severe pain management issue. even if it means some travel, a pain management MD practice is better suited to offer you more treatment options for your kind of pain.

Studies have indicated that opiates are not always the best treatment fro headache. My pain management group has been using occipital nerve stim to treat migraine syndrome and has been met with some success.

This is not to say that you shouldn't be taking opiate treatment; it is just that a pain management MD will be able to offer you some advanced management options that may not be accessible via the PC route.

PLEASE~ keep us updated.

CTB
 
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ctbeth replied to aws87's response:
PS Are you referring to Cytochrome p450? These interactions of chemical interference are very well researched and most MDs are aware.

If your PC does not want to adequately address your metabolic issue, an internist should be able to assist, even as a consult to the MD who will ultimately help you with meds and treatment.

Sometime we have to have a level of patience, to get treatment, that can seem unending~ but it's not.

Please take the next step soon as possible.
Please, I ask again, keep us updated.

Beth
 
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77grace replied to ctbeth's response:
Hi CtBeth,
I was going through all these differnt post's and noticed this one and it is so true for me!!AS far as my headaches go,your right Opiates do not help!!!Evn stong one's ,like I have for my neck and back!(Except years ago when they were at a 10on the scale!)Then I would have to go to the ER and they would give me Demerol with Phergan or sometimes Stadol.also visteral helped because I would get dehydrated from vomiting for days on end !!!
Wow,I just relized how long ago that was it was before Imitrex!!
I'm a bit dated,HUH??
Thanks,77grace
 
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ctbeth replied to 77grace's response:
Do you use Imitrex? I don't have any headache issues, but have read plenty about migraine syndrome

Annette has also posted about it.

I'm on my IPhone so typing isn't easy. I don't mention it much, but I wear have my computer font huge. iPhone keyboard is tiny.

From my accident I lost hearing in one ear and have very limited sight in one eye. I do okay with it, but I have to get better accustomed to texting on a phone. I do fine with an IPad.

I'll email you soon. XO

BethH
 
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annette030 replied to ctbeth's response:
Aws87,

I do have migraines and take meds for them, but not opioids.

There was a migraine headache board here at WebMD some years ago, I would check it out and see what it up there. Maybe someone can help you out with that part of your problem.

I have a Kindle Fire, and typing on that key board is vastly different, than on this old desk top I am using.

Take care, Annette


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