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Ganglion Par Nerve RFA verses Ganglion Par Nerve Acid Burn??
bpcookie posted:
Whats the difference and why would one work, where as the other didn't?
Computers help us to do stupid things faster.
annette030 responded:
Have you discussed this with your doctor? RFA stands for radio-frequency ablation, as I recall. This is very different from burning a nerve with acid.

As to why one worked and one did not, I have no idea, please talk to the doctor(s) who did this and ask them.

Take care, Annette
bpcookie responded:
I haven't had the acid burn done yet. Will prob. have it done in a week or two. I actually see a NP, who decides what procedures will be done, then the REAL pain specialist does what is ordered. The system is ridiculous.

The NP thumbs through my medical records and I constantly have to correct the things that she says. The last time I was there, I ask her to either prescribe something new or add something on top of the Lyrica. She would not add anything but upped the dose of Lyrica. She neglected to see that she had done that once before and it failed. I was so tired of explaining crap to her, correcting her, asking her questions and only getting half answers, that I was so exhausted, so frustrated and wanted to cry, I just wanted to get the hell out of there before I broke down.

The only reason I go to that place, is because they are the only pain specialists who will deal with my vulva pain.

Thanks for replying hun.
Computers help us to do stupid things faster.
annette030 replied to bpcookie's response:
Who is actually doing the acid burn? Is the pain specialist doing it? I hope not the NP, yuck! Have you told him of your dissatisfaction with how the system works?

I tried Lyrica it did not work, so I went back to gabapentin. It was available in generic so it was much cheaper. Lyrica was only available in brand name back then, is it available in generic also now?

Take care, Annette
David Maine, MD replied to bpcookie's response:
Thanks for your post. The Ganglion Impar is the pelvic portion of the "sympathetic chain" - a component of the nervous system. It can be blocked to treat rectal pain. A chemical neurolysis is a destruction of the region with either alcohol or phenol Again this can sometime be an effective palliative measure for patients with anal/rectal cancers. If you are unsure of what is being done/why then I suggest a revisit with your pain specialist to understand the procedure, why it is being done, and expected goals. I hope that helps. Good luck!

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