Skip to content
Will I ever be pain free and does my doctor believe me when I say I hurt every day?
avatar
Wishfulth1nk1ng posted:
After months of reading discussions on here I have decided to spill my heart into this post. I am 30 year old mom, wife and full time employee. I have had chronic pain the past 8 years of my life. To me this was normal but I am getting to the point where I feel defeated by the constant pain. I have been seeing my GP almost weekly since May and he has prescribed 50mg Tramadol, ibuprofen and flexeril for the pain and ambien so that I can sleep through the pain at night. Tramadol is not working and he will not prescribe me anything stronger because I have two kids. Every time I take the Tramadol I hope that it will magically take the pain away but it hasn't. I was diagnosed with fibromyalgia and doctor says that the pain is not going to kill me and that I will never wake up and be pain free. I don't know what else to do. I am naturally a very positive and uplifting person but to say this pain isn't bringing my spirit down would be a lie. Can anyone relate? Anyone? I don't know anyone else that suffers from fibromyalgia and at times I even question myself. Any response to this would be great. Am I the only one???
Reply
 
avatar
davedsel responded:
Hello.

I am sorry you are going through all this and I do understand. It is hard to accept a condition that may not improve. Are you seeing a pain management specialist? That would be a good specialist to see, especially one that is a physiatrist. These doctors go deeper and offer a wide variety of methods and treatments.

There are medications specifically used for the fibro - Lyrica and Neurontin for example. You can discuss these with your doctor.

There is also a WebMD Fibromyalgia Community here: http://exchanges.webmd.com/fibromyalgia-exchange
You may find good support in that community as well.

Keep doing your research. There are lots of websites that have information about spinal problems, fibro and chronic pain.
Keep a positive attitude. Much easier said than done, but it helps to focus on the blessings in your life and what you are still able to do.
Keep moving as much as possible. While difficult at times, it will only be worse if you stay too sedentary.

I pray you can find answers and relief soon.
Click on my username or avatar picture to read my story.

Blessings,

-Dave
 
avatar
meaningfulc1952 responded:
Hi Wishfulth1in1ing:
I am really sorry that you are going thru all of this. When I was in my 20's and that was 40 years ago now. I had TMJ and went through a lot of pain with that. Finally was convinced by
many different oral surgeons that I needed to have jaw surgery,. That changed my life forever. I have never been pain free and have a pain mgt. dr. that prescribes a strong medicine for me.

There are stronger meds that will help with your pain but you will have to decide if you want to go down that path and probably will have to have a different dr. in order to have something stronger, I am just guessing that.

I truly understand how pain can change your life forever. I hope that you will find a way to have a better pain medicine if
that is what you need. When you are in a lot of pain, taking the proper pain medicine should not keep you from doing a lot of
the things that you normally do unless it is there is more going on that you are not aware of.

I wish I could be more positive, but my experience with pain changed my life so much that I had to quit working finally.

Good Luck
Meaningfulc1952
 
avatar
cweinbl responded:
Sad and frustrating. I'm sorry for what you have to deal with.

I've had chronic pain since I was 17. I'm now 60. During that time, I've had four failed spine surgeries including multilevel fusion, I've been to two pain management programs and I've tried just about everything.

Fibro is not a well-understood condition. Therefore, it can be exceedingly difficult to treat. I would recommend two things. First, visit your family doctor and explain that Tramadol isn't helping enough. There is no reason why a parent cannot use a more powerful opioid. Just one medication added 9 amazing years to my university career. Over time, the "drugged" feeling associated with powerful opioids dissipates and you only feel less pain. If your GP won't provide a more powerful pain medication, then find another doctor.

You should also know that chronic pain patients benefit more from using a long-acting pain medication (Kadian, Oxycontin, Fentanyl Transdermal, etc.). You can then use a short-acting medication (Hydrocodone, Oxycodone, Tramadol, etc.) for breakthrough pain. But Fibro does not always respond to typical pain drugs. It could take months of work alternating between medications to determine which are best for your body chemistry.

Step two is to request a referral to a comprehensive pain management program - one that offers many different pain treatment options. Some people benefit from biofeedback, TENS, acupuncture, hypnosis, etc. I can reduce my pain by about 20% at any time with only biofeedback. Some anti-convulsants may help with Fibro, such as Lyrica or Neurontin.

Most of us here accept that we'll never again be pain free. We're too damaged, our disease has gone to far, our trauma is severe, etc. Thus, our goal is to manage our chronic pain to the greatest extent possible.

Finally, we all require a dose of healthy perspective. I worked as a vocational rehabilitation counselor for 7 years. I was with paraplegics, quadriplegics and people with terminal illnesses every day. While we might be in constant pain, most of us can sit, stand walk, feed ourselves, clothe ourselves and care for our bodily needs. But there are millions of people also in chronic pain who can do none of these things. Try to imagine the same type and level of pain, but you're paralyzed. On our worst day, millions of people are far worse off than we are.

Best of luck to you.
cweinbl
csw2@bex.net
 
avatar
Wishfulth1nk1ng replied to davedsel's response:
Thank you Dave. Since my post I have had a serious talk with my GP and asked him to send me for all new lab work and to one of the best rheumatologist in my area. It took an office melt down for him to see that the chronic pain needs to be addressed with much more of a plan than tramadol and ibuprofen . He has added hydrocodine for the sever pain I was having and gabapentin. My GP is also a pain specialist but he is very hesitant to prescribe any kind of narcotic. I will continue to search for a plan that will keep me working and actively involved with my kids. A positive attitude is probably the one thing that gets me past the hard days.

I will check out the Fibro community! Thank you again! Really helps to know I am not alone.

-Sara
 
avatar
ctbeth replied to Wishfulth1nk1ng's response:
I'm so pleased to read that you're going to get some help.

You may have found a new place on the fibro community, but will you stop back here and let us know how things are going for you, especially after you see the rheumatologist?

Best wishes to you, and I so hope that you'll get the help that you need

Ctb
 
avatar
annette030 responded:
I also have FMS, and recall the feelings that came along with it and not knowing anyone else with it. I was first diagnosed in 1995, I think.

The truth is it will not kill you, and you will probably never be pain free again either.

I recently stopped taking Ambien, I reduced it very, very slowly. I don't sleep well, but don't really expect to either. My next challenge is to slowly decrease the pain meds I take.

Meanwhile, read all you can on reputable medical sites about fibromyalgia. Learning about something helps a lot.

Take care, Annette


Featuring Experts

David N. Maine, MD is the director of the Center for Interventional Pain Medicine at Mercy Medical Center in Baltimore. Maine graduated with a degree ...More

Helpful Tips

tramodol
have taken tramadol several times...i have seen no benefits to this med...extremely weak pain med More
Was this Helpful?
1 of 4 found this helpful

Related News

There was an error with this newsfeed

Report Problems With Your Medications to the FDA

FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.