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My Pain Management Physician Does Not Understand Me Or My Pain
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seattlegirl01 posted:
I have had fibromyalgia and osteoarthritis for 14 years. I was diagnosed when I was 28 years old. After 2 years of disability (when I was 28), being bed ridden and being a lab rat for every med under the sun...the doctors finally put me on narcotics. Suddenly I had a life again. I was able to move, work, do simple household chores like wash a dish. I had a caring doc who finally found a way to manage my pain and I was better for years. About 7 years ago I moved to Nebraska and my journey through hell began again. I was given some Norco...I was allowed one a day ONLY because I have arthritis. After going through years of this and being treated like a drug seeker I demanded to be sent to Pain Management. The doctor (she was actually a nurse practitioner) there was the most compassionate woman I have ever met. This is the kind of care provider who is old school...when I leave her office she would hug me and when I leave her phone messages SHE calls me back at the end of the day. She shook her head and could not believe how I had been made to suffer and immediately put me on 8 10/325mg Norco a day along with Neurontinin and a host of other meds. She actually cared and I could finally relax that someone understood. A year ago she left to go to primary care and everything changed again. The new doctors that took over the clinic said that they do not use narcotics in treating fibromyalgia. The thing is I also have bone pain, tendonitis, bursitis. I feel like my new doctor does not listen with an open mind...he treats me like a textbook or a study. In the last year I have had a broken ankle, a fall that resulted in concussion, and most recently a hysterectomy. He has been very good treating my acute pain but I feel like as far as my chronic pain is concerned he wants to throw me under the bus. He could care less....it is all about what is indicated for my condition. He said I may have arthritis but "we...just don't know that". My former pain doctor is now my primary and she just shakes her head at the management of my case as she is now powerless to help me. The new doc and I had it out in his office yesterday as my healing from surgery is complete and he wanted to take away the pain meds (I am allowed 2 Percocet a day) in the winter...my worst time of year. I was crying and at the end he told me to "quit crying I'm giving you what you want". I forgot to mention that I cannot tolerate NSAIDS and that I keep getting Colitis. I have tried PT, trigger point injections, chriropractic, ect. Accupunture and massage are heavenly but not covered under insurance. I decided to get my records yesterday as I am looking for a new doctor. In them my doctor questions my accidents in the last year with big question marks.....as supposedly these have happened when he was going to change my meds. I have never been so humiliated in my life! He doesn't understand my anxiety as I do not want to be bedridden again...lose my life....my marriage....and these fears are real. My first husband left because he couldn't handle me being sick. And now to put the icing on the cake....I will never get pregnant again!


I joined this community because there are no support groups here and I really don't know what to do. I feel trapped because no one else here wants to treat me. They act like the doctors at this clinic are "All knowing Gods"! I feel sad, humiliated, alone. If I didn't have my faith in God I really don't know where I would be right now. It is so disappointing when you feel like you've found help and then the rug is pulled out from under you. I guess I just need to know there is someone else out there battling like me and that I am not alone. Someone please help me!
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blessedladyptl responded:
You need to find another Pain Management Doctor.


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