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manga1983 posted:
I don't rarely come out as a typical person that likes to talk about my problems. So here it goes. In October 10th I was rushed to the hospital for some back pain. X-rays, CT scans were done. Turns out I had two herniated disc in my mid back and Degenerated Disc Disease. Now I am young and I do mean young. I am only a 30 year old young adult. This happen in 2013. I was shocked in how much pain I was in. Never in my life was I ever motionless and stuck in a hospital bed. When I was released I called the back surgeons number and his office would not accept my insurance. From there, I have been on Cortisone shots and Norco since October 16th 2013. Been to physical therapy and about to go again. I even have a Empi Tens Unit. None of this stuff works. I did however found a back surgeon to look at my records but told me surgery would leave me paralyzed. Later in life I will most likely need surgery. What's more shocking to me is that surgeon found more compressed disc when he took X-rays in his office. Now I have been in and out of the hospital several times and they just keep kicking me out. I requested a pain specialist by my primary care and never heard back. I am to young for this and I am tired of being jerked around like some ragdoll. I have always been a fighter but this is so irritating to me that I can't get a single answer from pain management. I am under SSID and I don't make that much. This is my story and where it ends I don't know....
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davedsel2 responded:
Hello and welcome. I am so sorry you are going through this and fully understand.

As you can read in my story, I was born with a spinal defect called hyperkyphosis. This is where the thoracic section (middle) of my spine curves outward too much. I also have severe osteoarthritis in my entire spine and body These conditions have caused very serious problems that are detailed in my story. I started having symptoms in my late teens and they have gotten worse over the years. I had to stop working at age 51 and now at age 57 I need at least one hip replaced if not both.

I share that only to let you know you are not alone and chronic pain does not care how old you are. Surgery should always be your last option as there are other less invasive methods that could help manage your pain. You say that you are "under SSID". Do you mean Social Security Disability Insurance or Supplementary Security Income? What type of health insurance do you have?

The steps for getting back pain diagnosed and treated are first to see a spinal orthopedic surgeon and/or a spinal neurosurgeon. After that, you should see a pain management specialist. The best pain management specialist are called physiatrists. They go deeper and offer a wide variety of treatments.

You can do research by going to sites such as spineuniverse.com or spine-health.com. The more you understand, the better treatment you can get. Continue to pursue finding a doctor that can properly diagnose you, then one that can help you manage your pain. It is your body and your health so you need to be assertive, even aggressive at times to make sure you are getting the care you need and deserve.

I pray you can find answers and relief soon.
Please click on my username or avatar picture to read my story.

Blessings,

-Dave
 
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77grace responded:
Hi manga1983 ,
I am sorry to hear that you are suffering so much !I also have chronic pain due to neck and back problems !I also was told no surgery because I hace tumors on my spine and I would be paralyzed !So I have a feeling I understand !You need to find a pain specialist and then go from there!
I hope things look up for you soon !
77grace
 
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cweinbl responded:
Sorry about your pain. My first disc herniation (L5-S1) was just days after my 17th birthday! Because of degenerative disc disease secondary to central canal stenosis, I had to live with increasingly more painful and frequent episodes of severe leg and back pain. There are definitely no age limits for spinal trauma and spine-related disorders.


At age 31, microsurgery arrived. I had pieces of the extruded L5-S1 disc removed. Less than four months later, L4-5 herniated. At age 32, I had more surgery. I never recovered. I spent the next few years trying every pain relief treatment available, to no avail. When I was 38, I had a laminectomy, this time in Cleveland, about 90 miles away. I used a world-famous surgeon who created the fellowship in spine surgery at Case Western University. For about 18 months, I was somewhat better. Then, the pain came crashing back. So, I went back for a 4th spine surgery, another laminectomy - this time including multilevel bilateral fusion. I never recovered.


I had to retire from a wonderful university career at age 51. That was ten years ago and I continue to get worse. Thankfully, everything else in my life is virtually perfect. But I am reduced to being nearly horizontal virtually all of the time.


Spine surgery today is about 60% effective. It still makes sense to try every possible option first, including the intrathecal infusion pump and the spinal cord stimulator. A comprehensive pain management center will offer literally dozens of interventions; most of them are non-invasive. I can reduce my pain by up to 20% with biofeedback alone.


If all of those dozens of interventions fail, here is the most comprehensive recent research on all types of interventions for spinal trauma and disease that I've seen: http://www.painphysicianjournal.com/2009/july/2009;12;699-802.pdf .


Most of us all do the same thing. We wait until we cannot tolerate the pain a moment longer and then we schedule surgery. But be wise about it. If a surgeon tells you that you have an 80% chance of a complete recovery, flee. It simply isn't true. And once you have one disc removed, others are at greater risk of herniating.


Good luck.
cweinbl
csw2@bex.net


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