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Fibro Pain Tips
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Elisabeth1955 posted:
As many of you, I have been prescribed and tried Lyrica, which caused weight gain and no pain relief, Cymbalta, which caused weight gain, pain relief, yes, but extreme sleepiness and a total dissociation with reality, and since I have to drive a lot with my work, taking that medication was not feasible for me. I have always wanted to see auras, but spiritually, not drug induced! ;-)
Both meds made me very, very sleepy and lethargic which probably contributed to the weight gain. The best thing I have found is staying totally away from caffeine, sweets and spicy foods, taking long hot baths, and deep meditation. I started taking a class in meditation for spiritual purposes and was amazed at the pain relief (temporary relief).
I have a LOT of spinal arthritis from my neck to my lowest back and my dr. thinks that this may be causing a lot of the pain he formerly ascribed to fibromyalgia. I had a spinal fusion and am I am currently getting epidural injections, but have had no relief as yet. My heart and prayers go out to anyone living with fibro on a daily basis. It is a horrible, tiring, depressing condition.
A big issue with me is trying to get family, friends and clients (I am a self employed artist) to understand how it effects me, and trying to get them to be a little understanding.
Blessings to you all-
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dave351 responded:
Elisabeth1955.
Your pain may really not be fibro. I understand what you are talking about with the drugs you listed above, I have taken them too and have not gotten relief from the pain, just felt drowsey.I know have had an intherthecral pain pump inserted into my abdomen which released 2.65 mg of dilaudid directly into my spinal canal daily and that helps a lot. Most people are given morphine if they can tolerate it, dilaudid is the alternative. You should check with a good Pain Mgt Doctor to see if this could help you. They will only go to this as a last resort after trying all other meds including narcotics in smaller doses.
I have been suffering chronic back pain for 25 years. I don't have a problem that can be corrected by surgery. My problem has been made worse by an abdominal pain problem brought on after a colon resection that has limited by activities to almost nothing so the stomach muscles have gotten so weak that it has worsened the back condition.
I hope this helps.
 
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davedsel57 responded:
Hello, Elizabeth.

We all must keep doing our research, keep as active as possible and keep a positive attitude. Eventually we will find what works for us to manage our chronic pain and stick with that.

Personally, I am looking forward to the day that medical science perfects the spinal transplant. I'm sure many of us are. :D

I pray you find effective methods soon.
Click on my user name or avatar picture to read my story. Blessings, Dave
 
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annette030 responded:
I don't bother with explaining how FMS affects me to others. I just live my life the best I can. I think that is a phase that most of us go through, and some people find it very important to them. I just didn't, unless someone asks about it, I really do not talk about it. I use this website as my outlet when I need one.

I have tried lots of different meds, and for the last 10-15 years I have stuck with neurontin, opiates (long acting and breakthrough) and zolpidem for sleep. I exercise daily, 1-2 hours of belly dancing with a DVD. I don't consider FMS as a "horrible, tiring, depressing condition". There are many things worse than having FMS.

I have had spinal surgery on my neck in the distant past, 1992, and a recent breast reduction surgery that has gone well. Life is good. It is great that you have been able to continue your work as an artist. I am disabled but able to do some volunteer work at our local animal shelter. I can't wait to get back to it once my chest is healed. I manage my home, and shopping, etc.

Take care, Annette
 
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lesliesgramma responded:
I like that - wanting an aura froma spiritual experience! lolol

I've also found that eliminating coffee helps a lot - but I need about 1/2 a cup when I wake up - too groggy (Dr.'s advice).
Also, I have eliminated all artificial flavorings, colorings, additives, preservatives, etc. from my diet - and it works! Also salts! Especially sodium nitrites and sodium nitrates ( used a lot in pork - they put it in there also because it kills the worms in pork - like I want to eat dead worms in the first place???}.

I don't count calories as our bodies weren't designed to digest artificial stuff - just natural stuff! Low-calorie junk is always artificial! If you eat natural food, only, it will be digested properly, as our bodies were designed to do.

I give you credit for trying to get people to understand. I gave up as it seems like most people can only understand what they have been through, or educated about (some times on education). If I don't tell them anything, then they don't have trouble understanding.
 
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marilyn0522 responded:
Have you heard about Neurontin. The Dr. put me on this. (the lowest dose) and it's helped me tremendously, It's for neurological problems/pain..not usually prescribed for fybrom...but thus far most of the pain is gone..
 
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wvmomofanna replied to davedsel57's response:
couldnt figure out how to post a discussion but i am a 30 year old female with numerous issues of pain..the evidence is all there in my med records however the doctor i am seeing sees no reason to put me on pain killers..ive tried nuerontin and cymbalta and they make me feel extremly weird..days go by and i cant even get out of bed..its very depressing..i have osteoarthtis in my back, bone spurs on my back,degen disc,and sponylitis not to mention numerous stomach pains..i have colitis,ibs,diverticulosis, and possible crohns...i am in pain24..7.....why cant my doctor help me? i dont know what to do but this is ruining my life...West virginia is the highest ranked state for overdose deaths,
 
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annette030 replied to marilyn0522's response:
I have taken neurontin for over 10 years now. I played with the dose for awhile to find the best one for me, now I take 800 mg. once a day after dinner. It was used for FMS off label before Lyrica was approved specifically for FMS. I tried Lyrica and didn't get any better relief from it, so I went back to neurontin. I use it as a part of my pain management.

Take care, Annette
 
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annette030 replied to wvmomofanna's response:
Has your doctor said why he prefers not to use pain killers? You have a lot of colon problems that would be made worse by constipation, perhaps that is why he doesn't want to go down that road. All opiates tend to cause constipation, and most people end up with it if they take opiates daily.

Or perhaps he us just a jerk.

Take care, Annette


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