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I have been there
painwomen posted:
I have had this disease for six year's.I have found going to a local pain clinic for classes in pain managment.I only learned one thing in those classes ,but it was the most important thing in my life now.I am no longer able to work.My mind doesn't work the same way any more.All of this started in my left foot over the years it has spread to every part of my body.I can feel every painful heart beat and every time my lungs fill with air I feel it.I am not the type to ask for help so I didn't. I learn that a form of meditation and using my dog as a therapy dog I have a little of my life back.I don't use alot of pain pills i use the power of meditation and the shear will to survive.I refuse to sit quitley while my body gets taken over.I find a heathy dose of anger at the disease works well We will not in my life time get the respect from the doctors or the public we deserve. Expect the you don't look sick comment alot.Just consintrate on yourself and forget the others,it will be the only way to survive.You will need all your energy to control your pain.I have good days and bad but I am still better of than alot of other people.That is something I never forget.Keeps me humble and prevents self pitty.Oh and social securty does take rsd or crps as a disability. Hope this helps and I am always here to listen....

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