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    BrenBren30813 posted:
    I would like to hear from those who suffer from RSD/CRPS. It sounds like a horrible pain condition so go ahead and vent here.

    If you decide to write about your condition, please include where you have it (on your body), how long you have had it, how long it took to be diagnosed and what kind of doc diagnosed you, and if you want to share your symptoms, I'd like to know those as well. I'm trying to determine if I am in the "younger" stages of the condition, and cannot determine this from what I have found on the internet so far.

    Thanks for your time,B
    paininSD responded:
    Hi BrenBren
    I have complex regional pain sydrome. Where is your pain located?
    I was diagnosed in 2003. I sat in a chair that had a needle in it and it went into my back. I sent an electric shock up my back. As the month went on my calves would start to cramp, then my legs would hurt. At night the pain was worse when I would lie down. It felt like I had no skin on my legs or a really bad sunburn so the sheets would really hurt, it also feels tight and stings (like when kids would twist your arm to give you a "snake bite"). I didn't want anyone to touch me because it hurt so much. I was referred to a pain clinic and a Dr. there specializes in chronic pain and was familiar with CRPS. I went through a lot of test and blood tests to rule out certain causes (i.e. lime disease, vitamin D deficiency, lupus, RA, etc.). It took a couple of months for my Dr. to put a name to it. I was also prescribed a lot of different medications to get to a place where I no longer wanted my legs cut off. I found that tights/spandex helps, hot baths, using blankets on my legs all the time. As time went on it also effected my arms but not as much, though one arm would cramp.
    Let me know what you are going through, maybe I can help.
    Thanks for asking,
    bren_bren replied to paininSD's response:
    Hello paininSD,

    Thanks for writing and sharing your story. Unfortunately we don't get enough members to write here in this forum, but there are quite a few who belong here???

    I created it months ago, then had to change my screen name due to some unruly, inconsiderate participant; that's an entirely different subject.

    Anyway, at the time I posted this discussion, my pain doc was out of ideas, as for a diagnosis. He mentioned RSD/CRPS and told me to do some research on it to see if any of the symptoms rang true in my case. Ultimately I found out that I was fortunate not to be labeled as one of those sufferers. I really feel for you, and Gail - a trusted friend from the chronic pain message board (WebMD) moderated -- I saw that she replied to her there. She is really going through some stuff now, so maybe you could drop a few words of encouragement, or just identify with her. I feel I am in the dark because I don't have the horrible pain you gals do. I wish you the best. Please write back anytime; I know the board is not very active, but it is kinda neat that it's almost Private! Take care, B
    stajoy responded:
    was diagnosed with RSD 5 years ago after getting assulted by a patient of mine. he injured my right upper body causing me sever pain that is from my tip of my fingers to my spine. I was put on lots of meds but the best thing that has helped alot was my stem implant and nerve meds. But now have bin diagnosed with a vitamin d dificency. and have increased pain in my upper body and lower. Nothing helps cant sleep du to pain but very tired, depressed and weak. my body feels verry old and as if im getting crushed and on fire. I cant find a job that i can do with the pain and weakness. Social security does not recanise RSD as a disability. Even though I can not use my dominit arm and server pain. Im tired of depending on my family for help.
    paininSD replied to stajoy's response:
    Hi stajoy
    sorry i havent been checking the blog lately but real glad to hear from you. Do you have a pain Dr.? Exactly what happened to cause the RSD? Mine was a needle in the spine. What meds are you currently on? Are you on an antidepressant? Depression also increases the pain. Mine feels like i have no skin and sand paper is rubbing it.

    Hope to hear back from you.

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