pain management support group

I did find info online, thank you.

Have a great Fourth of July with your hubby. Enjoy whatever time you spend together. We do the "have to do" stuff first, then follow with whatever we enjoy doing next.

Take care, Annette

Hey girls! I just wanted to let my 2 members that I am officially back on this site. I took a long break and asked the staff at WebMD to delete my account because of some awful difficulties with a harassing member. Nothing to elaborate on, but I want to say hi and let you know that I'm just on with a different screen name now. I just don't know how to go about managing my 'ol exchange here...hmm, no biggie.



I hope you both are well! Hope to hear from you soon and hear what's been going on!
Take care, B

I'm fine, everything is going okay. The only new thing is that I have been taking belly dancing classes on the Fit TV channel. So much fun!!! No one is allowed to watch of course, not even my husband.

I have been doing them daily for about 7-8 weeks now, still fun, and I am getting the hang of it. I recorded a bunch of classes and just watch the good parts that I dance along with, and fast forward through the commercials. I think I might buy the DVDs, we will see.

Hope all is going okay with you now. I have had the occasional problem with someone on line, it is a real headache, especially if you aren't well anyway. Glad you worked it out.

Take care, Annette

Hello Annette!
I'm so glad to hear that you are able to do the belly dancing -- what do you mean "nobody is allowed to watch"? Wouldn't the only candidate be your husband? I think he may enjoy that!

If you have been doing them for 8 weeks then I would be obliged to ask you if it's working???

So you too have had the occasional problem with "someone online", huh? What got to me the most, as you mentioned, was that I was/and not really am anymore, WELL. I worked it out in a way that I had my account deleted (inaccessible) to anyone from here on out. Yes, I'm posting under a similar name, but that is so others recognize me and I can keep those friendships going...I had waited until this certain creep was long gone from the boards before I posted ANYTHING. My goal is not to draw comments on the subject, yet to bring myself to the attention of those who may not remember me sans my former screen name.
I hope all is well in everyone elses' corner.
I hope to hear from you and others soon! It's great to hear other's story and "follow - yp=o.
I'm gonna go check on the boys now

PS it looks like "up" and a wink are equal to: a "follow - yp 0

Maybe once I am actually good at belly dancing, hubby can watch. I need a lot more practice first, lol.

I can say that after nearly two months, I am still doing it at least 30-45 minutes a day, and I am still having a good time, so it must be working on some level. If I do more than two lessons a day, I hurt A LOT more than usual, so I have to know when to quit.

I didn't start doing them for any reason other than it was always something I wanted to try and never did. I do not have less pain, maybe a bit more for now. But, all in all I do feel better.

I have never found any kind of exercise that was good for me, and fun. I enjoyed horseback riding, but didn't really do it at a level where I got a lot of exercise, more enjoyment, trail riding, etc. Since my neck surgery in 1992, my neurosurgeon suggested I stay off the horses, so I sold them.

When I had a problem with someone online, I just stopped reading or replying to his posts. He would leave me alone for a few days, then poke at me a bit. But he finally went away. My mom told me when I was little and complained about my brother teasing me to just ignore him, she was right, it works.

I also learned the hard way not to share my email address. I did that once and started getting suicide emails, detailing how this person was going to kill herself. I stopped replying, and no longer share my personal email address with folks on message boards.

Glad to see you.

Take care, Annette

I can see fully why you did not want to put your email address on the internet. I keep forgetting the type of people we might come to realize are "out there" for nothing but to harass and compromise the lives and reputations of the honest and helpful ones. I have a very good rapport with a couple of ladies from the support boards and I have been very blessed by knowing them. On the other hand a few others could have been a disaster for me, an all to trusting one.

Thank you both for helping when you can and especially to Bren-Bren for leading me to the diagnosis several physicians had missed during the last several years of tests and treatment. I love you for that Bren.

I love you Charl for listening. I think I've tried to help 5 others who didn't even post back, but their problems were so similar to ours. My bottom line helpful hint has become: "please go see a women's health expert to diagnose and treat your chronic pelvic pain". I had never hear of one, and I think most ladies don't think they exist, but why keep that a secret??? I just hate to hear of anyone in pain and I will be the 1st to jump in and direct someone to see the appropriate specialist if it means they will get answers and possibly some relief.
I'm so happy to hear things are working out better for you Charl. Let me know if you finally get back to MAYO? K??
Peace, B

Hello Annette and everyone,
I trust all are doing a little better at least than we all were a couple of weeks ago. I am afraid I am not. I have asked and was given a referral to the Mayo Clinic to the GYN department in Jacksonville, FL. I have no idea when they will contact me for an appt. I did follow and called the clinic last Tuesday.They did have the orders, but did not have the records. I explained the office was not going to send the records until they determined who I was going to see. That day the lady was suppose to follow up with the doc for records and I still await the appt time.

I feel like a caged animal now. I am having so much trouble sitting, I stay home. I am a community type and I find this type of lifestyle difficult to live with.

Must go and stand for a while. Take care and let me know how things are going.

Hi,

Sorry to hear you are having a set back. Keep after the Mayo Clinic, "the squeaky wheel gets the oil", as my mom used to say. She was always right, lol.

I am up to about an hour of dancing a day now. Still enjoying the heck out of it too!!! I even ordered a proper outfit to dance in, it should arrive soon.

Take care, Annette

Annette, My email address is chabob2@windstream.net. Please write if you choose.

Hey Charl, I haven't been on line in a while, so I'm now just checking this area of the exchanges. Sorry to hear you haven't heard about an appt. yet, but maybe things have advanced since you posted last week.

Keep plugging away at it. I truly hope the OB will help you!! But I wanted to encourage you not to leave the facility until you get all the answers you seek; even if the OB cannot provide them, then get a referral ASAP to another specialist. They have the means to do this for the out-of-towners, so don't take an "I don't know" for a diagnosis!

Can't way to hear of your diagnosis and course of recovery! I know it's hard being such a hermit due to the pain levels, and it is even worse when you are limited by a cyber-relationship due to sitting difficulties -- you know that I am right there with you on that one!
Take care, Bren

I was contacted today finally with an appointment for the 13th of September. The hospital's personnel have called often though and has cooperated as much as they could be expected. I was surprised to know my appointment is with a Physical Medicine and Rehabilitation physician. They will pass me on to the correct physician if they can't figure out what to do with me. They also want me to see a physiologist in the afternoon. I have seen the same psychologist a couple of years ago when I went to the pain clinic and everybody was looking for mid line spine problems.When I thought I was going to have surgery a couple of years or ago, the surgeon had me see another physiologist to check whether he felt I was able to under the surgery. Neither found any thing wrong and I will not seen this doc again. Why should I go to see him again when there was nothing wrong both other times recently. To me it is a waste of my time and the insurance money. At least that is the way I feel now. Any thoughts?

I would go see the Physical Medicine and Rehabilitation doctor first. Explain to him what you think about seeing the other person.

I am a little confused as first you called him a "physiologist", and then you called him a "psychologist". These are two very different things.

Anyway, it is always up to you who you go see, I would want to know what goals your doctor has for you with this other person, if you agree then why not? If you saw a psychologist a couple of years ago, it would make some sense that things have changed in two years and he may be helpful now.

I am a big believer in psychologists, I think they can help us with many things, including teaching us how to cope with chronic pain with cognitive behavioral therapy, something I swear by.

Let me know what you decide.

Take care, Annette