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Welcome to the PLMT Community
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kmaze001 posted:
Hello to everyone who finds this new community! I suffer from PLMT, and I am looking to connect with others who have been diagnosed with this strange and rare disorder.

My diagnosis came after tens of thousands of dollars of testing--MRI's from (literally) head to toe, plus blood work, and EEG, an ultrasound of my foot, and a nerve conduction study. The neurologist who finally diagnosed me did so in ten seconds without even looking at the stack of test reports. All he did was watch my foot. He was not particularly hopeful or helpful. He suggested Botox injections as a way to control (but not cure) my symptoms. That was three months ago, and I've not yet made the decision to go forward with that.

Although I do have some pain, it is not disabling. But the constant movement can be maddening. I would love to hear from both fellow sufferers and from those in the medical community who may be able to shed some light and offer hope. Almost all the literature I have found online is scientific and not for patients. Perhaps together we can find answers and bring more awareness to this condition.
0 Replies |Watch This Discussion | Report This| Share this:Welcome to the PLMT CommunityHello to everyone who finds this new community! I suffer from PLMT, and I am looking to connect with others who have been diagnosed with this strange and rare disorder.<br /><br />My diagnosis came after tens of thousands of dollars of testing--MRI's from (literally) head to toe, plus blood work, and EEG, an ultrasound of my foot, and a nerve conduction study. The neurologist who finally diagnosed me did so in ten seconds without even looking at the stack of test reports. All he did was watch my foot. He was not particularly hopeful or helpful. He suggested Botox injections as a way to control (but not cure) my symptoms. That was three months ago, and I've not yet made the decision to go forward with that. <br /><br />Although I do have some pain, it is not disabling. But the constant movement can be maddening. I would love to hear from both fellow sufferers and from those in the medical community who may be able to shed some light and offer hope. Almost all the literature I have found online is scientific and not for patients. Perhaps together we can find answers and bring more awareness to this condition.
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