Skip to content
Need advice - Please help!!
avatar
MPogg posted:
Hello,

My name is Melissa and I am trying to find some information for a friend.

Does anyone on here have experience with an infant with a Hiatal Hernia? Or has your infant undergone surgery for this?

Here is a little background so you can understand what I need:

She has a 4 month old daughter. When the baby was 2 1/2 months old she took her to the doctor. The doctor told the mother that the baby was not gaining enough weight and needed some testing. The baby had a Upper Endoscopy done which supposedly showed that she had a Hiatal Hernia.

The doctor told the mother that the baby needed surgery. The mother did not want to have it done and told the doctor so. He told her that it was Medically Nessecary and if she didn't consent he would report her to the state for negligence. Now she is a single mother of 4 and is on state aid. She isn't able to go to any doctor she wants plus she lives in a very rural area with few doctors to choose from.

She consented to the surgery. This was mid February. Now it is mid-April the baby is being fed through a feeding tube and has been since the surgery. They have the baby on the highest allowable dosage of Nexium allowed for her. The baby recently has a second Upper Endoscopy which showed that the surgery didn't work. How can this be possible?

The baby refuses to drink whether by breast-feeding or bottle. The doctor told her if was because the baby's throat still hurts from surgery plus the acid reflux. How can the baby's throat hurt from this surgery that was 2 months ago?

I would appreciate any experiences or advice that you can give. Thank you in advance for reading this long post and helping!!
Reply
 
avatar
jel0267 responded:
Here are a few links to some websites with information that will be useful to your friend. You are going to have to look closely at them to find information on reflux, endoscopies, enteral feeding. Is the baby seeing a pediatric gastroenterologist? Usually Medicaid has a help line, its worth looking into. What state is she in? I might be able to find a number for her to call.

http://www.naspghan.org/user-assets/Documents/pdf/Public%20Education%20Brochures/FUND-E_4-10.pdf


http://www.naspghan.org/wmspage.cfm?parm1=444

http://www.naspghan.org/aspModules/PublicLocateDoctor/PublicLocateDoctor.asp

http://www.naspghan.org/wmspage.cfm?parm1=317


Spotlight: Member Stories

I am a mother of 4 beautiful chidren. Destiny is 11, Kevin 9, Danayah 7, and Devin is 5 months old. My family means everything to me. I love them s...More

Helpful Tips

Finding exchange boards...
Okay, if you manage to find the board your looking for, look on the top right-hand portion of the page. You will see "Join this Exchange". ... More
Was this Helpful?
17 of 27 found this helpful

Related News

There was an error with this newsfeed

Report Problems With Your Medications to the FDA

FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.