Parenting Cerebral Palsy Kids
A place for parents of children with Cerebral Palsy to meet and support each ... more
I have an almost 3 year old that has been dx with mild CP (weakened left side). She has done some PT, although we're kind of on break from that because she's become so uncooperative with it and we weren't getting any good sessions... we're thinking partly because she's going through the terrible two's and partly because she very strong willed!!
She has a brace she wears on her foot to keep flexed.
She does really well though. She walks and runs (though not very coordinated). She can jump, but not that well. She was a little bit of a late walker, but not too bad (14 months). She didn't roll over until about 9-10 months and did crawl at about 10 months. She can use her left hand, but it's not as strong or coordinated as her left. So with PT we are working on these things... strengthening and stretching.
One of my concerns for her right now is that she seems to have these episodes of spacing out and moving her hands in the air. She only does this if she wakes up in the night and can't back to sleep. It's like she's out of it and in a semi-conscience state. So I'm not sure if it could be a seizure type thing or just her spacing out. She will respond to me if I ask a question so... I don't know?? Anyway... we have an orthopedic appt this next week and I'll ask about it.
We've had some success with PT, thankfully. She got to a point of no progress in the summer, but then she got braces and it picked up again. My dd has a stronger right leg, and I'm noticing her left starting to turn more, particularly without the braces. I'm just praying we can get rid of her walker soon. She's so close to walking without it, and has actually outgrown it but we modified it some to try to avoid purchasing another one.
My LO does some of the same thing when she wakes up in the night, but it's not often. Just the "spacing out" part. It's like she's not awake. My DH used to sleep walk, so I'm figuring maybe it's along those lines. I was told if they respond to you, that it's not a seizure, but It's worth a doctor question! Let me know what the answer is. I hope your appointment goes well.
Do you have any insurance advice? We have no insurance. Don't qualify for medicaid due to income, but that's questionable. Her doc thinks she should qualify regardless. No SSI due to income either. IF you have any experience with that, I'd appreciate some input. We're in VA. TIA!
Look forward to chatting with you!
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