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Sorry for the rant thanks all in advance.
She was originally dx years before with SID (Sensory Integration Disorder) and was tx with OT for 2 years but her behavior conditioned and actually started getting worse as she aged. She is extremely intelligent but suffered greatly with socializing and every day task (appeared so smart that she lacked common sense - easy stuff for most people).
She is now on medication and is much happier. Social training is next on our list.
Good luck to you. I can give you a list of test that she has been through if you would like that info.
You can also go to an Autism Center -- ideally at a Children's Hospital or major medical center.
All schools have an obligation to conduct a review to see if your child is experiencing learning and social problems.
Children do not reach the age of nine without bring first observed since Kdg. by school staff who would have alerted the parent of problems.
Thanks so much for your response. Just wanted to let you know that this discussion is 9 months old so the original poster may not be following this discussion.
I encourage you to check out our Autism Community to lend support and advice.
Also, please know the WebMD Communities are accessible to all in the world wide web. If you would not like to share your personal information, email, please use the Report This feature and we will remove this post for you.
Thanks,
Elizabeth
The nurologist sent us on our way. Since there was no diagnosis, we assumed his behavior was discipline. Each of our 4 children are different and require different disciplines, so we assumed, if the doctor was correct, we just needed to find a way to discipline him. Nothing seemed very effective. A year and a half later, our son began to have outwardly manifested seizures. At first they only seemed to be daydreaming episodes. Gradually they became high fevers and seizures. The local ER said they were febrile seizures (from a high fever) brought on by a virus. Then they came every 10 days to once a week if not sooner. We insisted that there was something else going on. His preschool teacher said, "There is something that I just can't put my finger on". Back to the same nuerologist we went, only this time the Dr requested an EEG. After the test, there was no longer a need for an explanation...our son was having seizures. At this time, they appeared to be daydreaming so everyone thought he was just not paying attention or that he had ADHD. Well seizures are prevalent in my family so it seemed that probably was the answer.
The Dr prescribed depakote 3x's daily and it did help to a point. Until that prescription, our son had great difficulty learning anything in a sequence, ex. songs, numbers, letters, even methodical tasks like tying his shoes. With the depakote, he seemed to be able to manage these tasks, so we went with that diagnosis. Although he continued to struggle socially and with various other factors, we dealt with the seizures and moved on.
At about age 11, the school suggested a TSS for him. Someone hired to support him in his daily school work. By this time he was off of the depakote. It helped with the focussing, yet he was still having great difficulty. Then one day one of his behavior specialists suggested Autism. Well at that point in time all we ever knew about Autism, was from the movie "Rainman" starring Tom Cruise and Dustin Hoffman. We said no. That wasn't our son, and it really wasn't, but there were enough similarities to persue making sure, so he was tested at age 10-11 and diagnosed with PDD-NOS, which is on the Autism Spectrum. Once the issue was identified, we were able to get him the help he needed. There will always be things that he struggles with, but through love and support from friends and family and a determination to help him fit in, he has progressed immensely! He is now 21 and very capable of learning, if the 'teacher' teaches in a way he can understand. Once he felt understood, the behaviors were not a problem. You can imagine, as with any handicap or disability the frustration one lives with when they don't feel like they are ever understood. It's like they are locked in a body or a mind that struggles with day to day tasks, as well as with acceptance in the community in which they live. Frequently those who are diagnosed on the Autism Spectrum will have a seizure disorder as well. Yeah, it takes a lot of patience and determination and love, but at his age of 21, I can say as his Mom, It is well worth the ride!
Some of our son's worst memories, and ours, are because he was not understood. We are Christians, but as for reading Proverbs, perhaps we should first consider Matthew 7:12.
We all have traits of Autism, it's just that we learn adaptations in society at different levels. Think about it, what's yours?
Discipline, alone, is not always the answer.
Just as an update....
I finally got someone to listen to me about what was going on and how akward he was still and he is now almost twelve years old. With the help of my wonderful Pedi Dr. I fainally got the referall to a pediatric phsycologist and a peds neuro. He does have a disasocative disorder. Kind off like asbergers but with more of withdrawel symptoms. What clinched the diagnosis is that he tries so hard to do right and just couldn't. He has a stuttering problem also, which is a symptom.
A PARENT KNOWS WHEN SOMETHNG IS WRONG WITH THEIR KIDS!!!!!!! To all those out there who think that your kid is just a kid that gets into a lot of trouble doesn't mean he or she might not need help in any way. That may be put if you try everything under the sun and still no response you have to try other methods.
I am the mother of three and my other kids never had this problem. I have stopped the ADD meds becouse he didn'tt have ADD. After almost four years of searching we finally found the answer. And it ewasn't just run of the mill problems. Multiple DR. conults, including going over 3000 miles from home to see one Dr. did it. Just keep giong strong and never give up.
KIDS ARE THE FUTURE LOVE THEM AND PROTECT THEM BUT DON'T HIDE THEM FROM THE WORLD OR MAKE EXCUSES. They need to learn the way of this world and its not all roses and honey.
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