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Raising fit Kids

11 Year Old Girls Fractures & Breaks w/ Little to No Pain
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poopiepants1 posted:
My daughter just got diagnosted with a back fracture and needs to be in a backbrace for 4-6 months with physical therapy 2-3 times a week. They also found an extra vertabra and Spina Bifida in a couple of her vertabrae.

I don't understand how she can keep braking and fraturing bones - at 5 & seven broke both arms and elbows. She rarely if ever complains of pain, which makes it very difficult to know if she needs medical treatment.

I am wondering if she needs to be tested for pain sensitivity. It is confusing thought becuase she feels pricks, pinches, and little things, but not big things like breaks and fractures.

I am also wonderfing is she needs to have a bone density test to see if her bones are not as dense as they should be.

I need help figuring out her next step. I want to make sure what ever it is that we figure it out now, instead of later after more breacks/fractures, or worse.

Thank you,
Jessica
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phoenix31674 responded:
Depending on her activity level, it does sound like her bones are more brittle than normal. If she broke her bones from just tripping, that would be a red flag, but if say she fell from a jungle gym it might not be as much of one. Does she get a lot of calcium in her diet (and vitamin D for absorption) through dairy products and leafy greens or supplements? If not, this might be something to look into.

Since you are concerned, I would ask your doctor if she has any sort of brittle bone disease - something I would think would have been looked at given her other back issues. You might also need to ask for a referral to specialist for further evaluation such as an orthopedist and/or endocrinologist.

Remember that many doctors are rushed to get through all their patients and if you don't bring something up, they might not be thinking of it. My SIL is getting ready to press her pedi about her middle son's coughing. He has very swollen tonsils, but because he only has problems with ear infections in the winter the doc is unwilling to consider surgery to remove them even though he literally coughs and wheezes about once a minute. It's a wonder the school nurse has not sent him home for disrupting the class with his near constant coughing. She's also at the point where she's going to ask for a second opinion.

You need to be your child's advocate.
 
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poopiepants1 replied to phoenix31674's response:
Sorry, I forgot to mention that she is allergic to Milk. She is allergic to soy too, but less than milk so she drinks soy milk. We have been told mutiple times that she has low white and red blood cells. She has so many problems I feel like the doctors treat me like I make things up. Then they find all kinds of wierd stuff going on with my daughte, and give me the apology look. She also has asthma and allergies to everything including grass and trees. She gets allergy shots all the time. She is also diagnoised with ADHD, OCD, ODD, Sleeping disorder, eating disorder, and PFADP syndrome. In August she even had surgery for a thyroglossal duct cyst removed from her neck.

I would definitely ask for a second opinion regarding the middle son's cough. My daughter had to have her toncils removed along with her adnoids, because besides the wheezing during that day, when she would sleep at night - she would wake up mutiple times throughout the night choking to death becauase her tonsils and adnoids swelled even more and relaxed while she slept.

Thanks!
 
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phoenix31674 replied to poopiepants1's response:
Given her allergies (and soy milk probably doesn't have as much absorbable calcium as cow milk) and other issues, it might also be worth working with a nutritionist if you haven't to ensure she's getting the proper nutrients. Her case is going to be very complex because of the multiple issues requiring different treatments.

If you have access to a teaching hospital or someplace like one of the big children's hospitals they may be able to connect some dots since they see cases that normal pedis don't. Who knows, some of her issues may be related to others. Given the complexity, I really hate to say get another doctor involved, but since you are concerned about her skeletal development and you don't seem to be getting answers to that. It is so easy for kids with allergies to end up deficient in a given vitamin or mineral and that can just cause more problems later on.

Best of luck to you.

SIL hasn't said about taking the middle boy to the doctor, so I don't know when he's going. I know docs hate to remove tonsils nowadays (because in the past it was almost a childhood check off), but there are still times when it really needs to be done.
 
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poopiepants1 replied to phoenix31674's response:
THANKS MUCH!!!!!


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