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    Radioulnar Synostosis
    avatar
    Lyrique10 posted:
    How have people adapted to this?
    Are there exercises that can be done to help with this?
    My 2 year old daughter has it in her left arm.
    Thanks!
    Barbara
     
    avatar
    Elizabeth_WebMD_Staff responded:
    Hello Barbara and Welcome -

    I am sorry to hear you and your daughter are struggling with this condition. I found a few discussions and resources that may be helpful -

    Can't supinate left wrist
    Ulna and radius fused together - Many responses with good real life experience.
    Radial-Ulnar Synostosis - Medscape article
    Treatment - Medscape

    As Dr. Benaroch mentioned a university medical center may have a hand/upper extremity specialist that can follow and advise you on possible treatment and outcomes.

    Please let us know if this is helpful and keep us posted,
    Elizabeth
     
    avatar
    Lyrique10 replied to Elizabeth_WebMD_Staff's response:
    Thank you so much for the links. I am trying to make an appointment for Boston Children's Hospital to get more answers specific to my daughter.
    It is a huge relief to see that there is an online community for this.
    Thank you for your attention!
    Barbara
     
    avatar
    Elizabeth_WebMD_Staff replied to Lyrique10's response:
    Hi Barbara -

    Good to know you are going to go to the Children's Hospital.

    Be sure to let us know what you find out,
    Elizabeth
     
    avatar
    steffensen replied to Elizabeth_WebMD_Staff's response:
    My 4 yr old son was diagnosed with bilateral radial ulnar Synostosis, we just went to Omaha for a second opinion because the first doctor recommended surgery to supinate the non dominate hand at 45 degrees. We have decided after going to Omaha orthopedics that we are going to wait and let him decide when he gets older as to what he wants to do. They never mentioned pain associated with this and we just came home this evening from Omaha:( Anyone have any insite in this?


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