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Legg Calve Perthes
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toyoursuccess posted:
My son Tim was about 3 and half years old when he was dignosed with Legg Calve Perthes. I was in total shock since he was born healthy, breast fed and was never in any health problem other than asthma. He was very active. But one night about 4am in Sept 2011 he came to my room in excrutiating pain. My heart was so broken to see him in this condition. I carried him in my arms for hours though it was so painful in my back. But because this is the only way that gave him a little comfort I bear my pain. I can't move to simply align my spine because a little move will make him scream. We spent several doctor's visits and finally found a specialist. So after seeing his doctor all I heard was he has this condition called Legg Calve Perthes and it was because there is not enough blood flow going to the hip bone causing the bone to die. The doctor explained also that there is no cure at this point and she only told me what to expect. That in four months he has to come back and she's going to put cast on him. I was in total shock hearing that there is no cure. I felt like I was in the primitive age and not in the 21st century. I was also told that he is not allowed to be on sport, no jumping, running, playing, etc. What toddler cannot do those? Hearing all these from the doctor I asked her, "There's gotta be something out there, anything, there must be something responsible for blood flow. What food is good for that, if no medicine how about vitamins? There has to be something..." I got nothing, in fact the doctor told me that she cannot endorse vitamins. But because I want to take care of my son I trained him for a week to make sure he follows what the doctor said. Well, I called everyone I know hoping someone could help. Everyone made their own researches and thankfully my sister in the Philippines got involved in a company that endorses good nutrition. She first looked up the diseas in the Wikipedia and when she saw that there was really nothing out there she asked me if I am willing to try what she has. I told her bring it on since there is nothing out there, right? The very best decision I ever made. She sent me the highest grade multivitamin according to Comparative Guide to Supplements (book by Lyle MacWilliam) pharmaceutical and cellular level nutrition. Made sense, I thought, cell, which is the smallest unit of the body had to be repaired. I was not wrong. Since I gave it to him there was only 2 simple attacks within that week and none thereafter. When I came back to the doctor for his four month check up the doctor was surprised to see him.She said that it was not a normal course for the many patients she has been dealing with for years, she had never seen this. She told me to be back in 9 months. But just a month ago I asked the doctor to see him again before I lose my insurance due to employment separation. When x-ray came back you won't even notice that he had the condition. I praise God for His help and thank God for advance science in nutrition. I was glad that what I had to resort with is a good nutrition that repairs and help and not medicine that normally gives risks and side effects. I attempted to tell doctors my experiences and hoping they can give patients some relief since there is nothing out there for that. But in my disappointment I was told that they cannot endorse vitamins. Really sad. Glad to see this forum and hopefully I can give value to others this way.
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jopiep responded:
My very active 3 year old lil man was just diagnosed yesterday with Perthes. What they thought was toxic synovitis wasn't. My gut told me it was something else because it had gone on much longer than 7-10 days. In just a little over three weeks the ball of his hip has degenerated enough that I could tell when the dr told me what to look for on the xray.

It is very genetic in my family. My blood brother had it when he was 3 and my uncle had it when he was younger too. I realize that some say there is no genetic connection but it's hard to dispute when they all come from the female blood line in my family. Both are fine today. My brother was in a brace for nearly 4 years.

We see the specialist in a week. No questions at this point as I'm prepared to do whatever it takes for my lil guy. Nice to "be around" others going through the same thing as well as those who have battled through.
 
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perthrents responded:
hi toyoursuccess,
we share the same sentiments. we have exactly the same experience but unfortunately after my 5y/o son was diagnosed with LCPD on right hip last oct. 12, 2012 he is on abduction brace last friday and on physiotherapy right now.
i'm a filipino living here in the philippines, and i'm curious about what help your son about nutrition? i'm sorry, i never heard of it before. i want to know more about and i hope it will do good on my son too.
i'm really glad that your son is doing good right now.
 
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toyoursuccess replied to perthrents's response:
hi perthrents,
glad to meet u here. actually i am also a Filipina. I lived in Tanauan, Batangas. I would like to connect with you, You can reach me on facebook/malabananm or malabananm@gmail.com My sister can tell you more about it. Her name is Tina Vasquez. Her cell # is 0932 536 6960 and house phone is (043) I think that is the area code. 778-7401
 
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toyoursuccess replied to toyoursuccess's response:
I forgot to answer your question. The name of it is Usanimals made by USANA. I just sent some to her several weeks ago because it is not available in the Philippines yet up until I think February or March. So many people are wanting to buy it so when one of our relatives went home I sent some home.


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