My 9 year old daughter 6 years ago got really sick after a sprang ankle. Three days after she did sprang it she could not walk. After an x-ray part of her right ankle bone was gone (just not there anymore). With us in and out of hospital every month for three years finally she got diagnosed with CRMO. I live in Omaha, NE and looking for a support group and another child around mine's age. So she could have someone to talk to how shares her diagnoses. This is not easy for our family.
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