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Parenting of Special Needs Children

For parents of all special needs children to find support,tips and information ... more

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Are you a parent or caregiver to a special needs child? This exchange welcomes stories, advice or information to and from people who take care of the most special children in the world. Please come and share what you have to say about these precious children in your life.

Last Reply:

PheLan McderMID Syndrome

An_245517 posted:

My 3 yr old was just diagnosed w this rare genetics syndrome . Any one have any info for me. None of my sons drs have heard abt this syndrome . Thanks

3 Replies |Watch This Discussion | Report This| Share this:PheLan McderMID SyndromeMy 3 yr old was just diagnosed w this rare genetics syndrome . Any one have any info for me. None of my sons drs have heard abt this syndrome . Thanks

ajestrada37 responded:

My 2 year old was just diagnosed with Phelan-Mcdermid syndrome today. Its been an emotional roller coaster. I have been doing my own research on the disorder, and haven't came up with much. I'd love to share stories with you if your still on here.

Report This| Share this:PheLan McderMID SyndromeMy 2 year old was just diagnosed with Phelan-Mcdermid syndrome today. Its been an emotional roller coaster. I have been doing my own research on the disorder, and haven't came up with much. I'd love to share stories with you if your still on here.

LovingMyLifeLindsey replied to ajestrada37's response:

Hello my 2 year Has PMS.I found out when I was about 35 weeks pregant with my daughter..I would love to talk to someone that's dealing this syndrome as well..

Report This| Share this:PheLan McderMID SyndromeHello my 2 year Has PMS.I found out when I was about 35 weeks pregant with my daughter..I would love to talk to someone that's dealing this syndrome as well..

KRHAz replied to LovingMyLifeLindsey's response:

My 15 mo old was just diagnosed with PMS. Would love to get some feedback. Thanks!

Report This| Share this:PheLan McderMID SyndromeMy 15 mo old was just diagnosed with PMS. Would love to get some feedback. Thanks!

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