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Born @ 29 wks
buchanan0619 posted:
I had been to the hospital 2 times telling them that my mucous plug was coming out too soon and I was leaking fluid, and both times they sent me home and said that I was fine. 2 days after the last time I went to the hospital I woke up and my water had broken. They took me to a hospital an hour away from where I live and I was in the hospital for 5 days while my baby was still in my body with no water. On the 5th day, I started having contractions early in the morning about 7am, and I told them but they did not believe me. All day long they said I wasn't in labor, even when I was screaming nonstop from the pain. Finally she checked me again and I was dialated to 3, then 10 minutes later I was to 7, then 10 minutes later - my baby was born. He was born 2 lbs 13 oz. They gave him surfactant for his lungs and about an hour later I got to see him and he is beautiful. The next day they told me that he and I both got an infection from him being in my body with no water for 5 days. He got cepsis and was on antibiotics for 14 days. When he was I think 3 days old, they did an ultrasound on his head and found a grade 4 intraventricular hemorrage on the right side, and a grade 3 on the left. Yet none of the doctors or nurses can't tell me what is going to happen to my baby. They say that they won't know what efffects it will cause until later on and that response is just not working for me. I am angry and all I can do is cry and worry for my child to the point that I feel I am going to fall apart. I want my son and I want him to be well and I want to take him home. On some days I get to hold my baby for 15 minutes and it's the best 15 minutes ever. I don't understand anything that they are telling me and I am mad because they did not listen to me about anything. They did not listen when I was leaking fluid, or when I told them he cant stay in that long with no water, or when I was in labor. I want to know what my son has in store for him in the future, or at least be aware of possibilities. No one will give me any answers.
cheeezie25 responded:
Hi Lisa, I am so sorry to hear about your son's situation :sad: I will definitely be praying for your son and your family. The doctors and nurses should be keeping you well informed of him medical condition and not leaving you out in the dark. At the same time, I don't think it is always possible to know the outcome of IVH until your child is older. However, they should at least be providing you with information about IVH and the potential outcomes. I found some websites for you, but I am not sure how helpful they are: I know this is a difficult time as it is, but I think you should look for a good lawyer and consult with him/her about your son's birth. From what you are saying, it sounds like you may have cause to believe that there may have been some malpractice or negligence in his and your care while at the hospital. They will be able to better advise you on this topic however. I know this is not really the most uplifting advice you could receive, but I just thought I would put it out there since it may be helpful to you in the future. Once again, I will be praying for you and your family. Stay strong... the best thing you can do is be by your son's side and give him all the love you can. And all of us ladies will be here whenever you need advice, support or just need to vent :lightsmile:
bcmom1 responded:
Lisa, Congratulations on the birth of your son. I am so sorry to hear about his scary, early entrance into this world. It is already very scary and frustrating, I can only imagine how it must be with the extra complications. I think you should try to talk to the care coordinator and see if they can help you with getting more information when needed. Also, the NICU my daughter was in had family support meetings for all of the families with preemies, which was helpful. Maybe the hospital your son is at has that too. I "met" another preemie mom through CaringBridge (really cool website to help keep loved ones informed). Her daughter was born I think at 26 weeks gestation and had an IVH. Her website is Amanda (the mom) is very nice and I think she would welcome questions from another mom going through what she is also going through. I will be praying for you and your family during this difficult time.
Chaniya011609 responded:
First of all I want to say that I am sorry you are going through this and that I will keep you and you little one in my prayers. The doctors definitely should not have let you carry your baby that long after your water broke. I would definitely ask as many questions as you can. if they are not being helpful, then talk to the hospital case worker or maybe a different doctor. they should be able to tell you something. the case worker at the hospital where i was at was very friendly and she gave me a lot of info about what to expect when you have a premature baby. My son was also born at 29 weeks. I am very surprised at the actions or lack of action your doctors took when you were going back and forth to the hospital. I had some bleeding and pain the week before I had my baby. They kept me over night, gave me steroid shots to develop his lungs in case he came early. they then put me on some medicine to stop my contractions. they stopped after about 3 days in the hospital. then they sent me home. I started to have the pain again and went back to the hospital. this time they said they had to keep me until i had the baby. They told me ahead of time that if my water broke I would have to deliver the baby to prevent infection. so it is soo crazy that they let you go that long. my water broke the next week and my baby was born at 3lbs 6oz! by the grace of God and the fast work of the doctors, my son didn't really have any medical problems. he just had to learn to eat on his own and gain weight before he was released. he was in the NICU for 6 weeks. He is now 8 months and doing great. Hopefully my story can give you a little hope...
cheeezie25 responded:
Hey Lisa, I just want to let you know that I'm saying a prayer for your little man. Let us know how he is doing... we are thinking about you!

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