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Hard to control dyskinesia
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LadyHana posted:
Diagnosed with PD 6/05. Fairly well controlled with increased dyskinesia over time. For the last week the dyskinesia is uncontrolled. Use to take sinimet first thing in am and then stalevo the rest of the day. Severe dyskinesia when the stalevo was first taken for 10-20 minutes then okay. Dr. Changed to only sinimet every two hours ( tried 1/2 a pill and a whole pill) restlessness has increased and the need to walk; however, so tired it is hard to walk. Last night I walked 3 hours 45 minutes out of 5 hours, exhausting !!!!! Today he increased requip to 2 mg per day, spread out across day. Has anyone else experienced this increased dyskinesia and what has worked.? Just want to go back to old regimen with stalevo. Not sure what to do. Beginning DBS testing next week and need to get control.
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DUKE MEDICINE
Mark A Stacy, MD responded:
Dear LadyHana
I am sorry to read of your difficult time. It sounds like you have dyskinesia when your levodopa levels are high, and restlessness when they are low. I think it is reasonable for you to contact your doctor with a request to go back to the previous regimen. That way things may calm down a bit, and you may be able to reduce your levodopa as you increase the Requip. Often people are able to reduce levodopa, after Requip dosages exceed 10 mg per day.

This approach will allow you some rest while being evaluated fro DBS.

One last thing: you may be tired from low blood pressure. Please check it sitting and one minute after standing. If it drops, let your doctor know.


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