beyond vertigo-possible brain tumor
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donskers posted:
My sister just found out that her Vertigo may not be that at all. She is being sent for an MRI and was asked to see a neurologist. The ear/nose/throat doctor has ordered these steps. He mentioned that it could be as severe as a brain tumor! Has anyone ever heard of this or suffered from this? Needless to say, we are both extremely concerned. Looking for any input! Many thanks!
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RedBear2005 responded:
Vertigo can be produced by several types of problem, and not all of them relate directly to the inner ear. A small benign (slow growing) tumor compressing a nerve ganglion in one side of the head near the ear, can also cause vertigo. Depending on the position within brain, Arterio-Venous Malformations (AVM) and certain rare aggressive tumors near the ear canal can do the same.

If the referral comes directly from the ENT to the neurologist, then your sister might be able to get an appointment somewhat sooner than if she applies as a new patient. Neurologists often have backlogs of several weeks, and your sister cannot afford to wait that long for a conclusive diagnosis.

Feel free to come back with other questions. However, be aware that I will be gone for two weeks starting next Saturday. A lady with the handle "Life's" also supports this Board. She is a layman like me, but very good in her research skills, and very well emotionally grounded as a human being.

Go in Peace and Power
 
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donskers responded:
Thank you so much for your input. At least we have an "information" avenue started. I'll mention to her about the moving of the neurologist appointment.

God Bless
 
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robow responded:
Vertigo can be caused by many things. I had the rocking vertigo and after seeing all of the specialists in neurology plus an ENT at a university based medical facility I was diagnosed with central nervous system vertigo. Everything else was ruled out. I went through many medical procedures. I had micro vascular decompression surgery of the 8th cranial nerve. This involved removing a portion of my skull by boring into it and removing that portion. Teflon sponges were placed in my head separating blood vessels from the nerve. I have a titanium plate that is screwed to my head holding everything in place. My vertigo has greatly improved since the surgery but has not completely disappeared. I had five neurosurgeons attending the procedure. I wish you well.
 
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RedBear2005 responded:
I've talked with quite a number of MVD patients over the past 14 years, as well as neurosurgeons who do the procedure. I highly value my past conversations with Peter Janetta, the doctor primarily responsible for popularizing a range of different applications of the procedure in dealing with neurological pain. If anybody needs to talk about where this procedure is done and with what success, we can set up a discussion off-line from WebMD. Normally the rules of this place discourage specific doctor referrals by name, and I respect that rule.

Regards
 
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amberdav responded:
Hi, So sorry to hear that your sister is struggling with Vertigo...it isn't fun.

I have also struggled with vertigo on and off for almost a year. Besides my first ER visit I am on my 3rd specialist. I have recently been sent to another specialist (also a neurologist) here in the San Diego area. I just had my MRI on monday (also looking for a tumor) I feel confident that is not the problem, but it is still a little overwhelming to think it might be a possiblity. I find out my results on this coming Monday...hoping for the best of course!

I responded to your message because I feel your pain and your sisters pain. However, I wanted to suggest...or make sure the doctors are also testing for other things. I just had some blood work done testing for Lyme's disease and thyroid conditions. I know these things are sometimes overlooked, from what I have read and experienced.

I know your post was in June so maybe you already have some answers but if not I hope this helps. I never thought of Vertigo before I experienced for myself (other than the Jimmy Stewart movie, my neurologist has the movie poster up in his office

I found your post because I was also looking for answers and reassurance...

Best of luck to you and your sister!
 
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hansomtoo replied to RedBear2005's response:
I had an MVD dpne by Dr Janetta 24 years ago and it restored my quality of life. My main symptom was motion sickness so bad that by the time I got dressed in the morning, I felt like throwing up to the point that all I could do was
ie perfectly still with eyes closed until the dramamine took effect. Then I would have to start moving so I didn't fall asleep. I would have about 3 hoirs till the cycle repeated. This was at the culmonation of 14years of increasing illness. A tough way of life for the mother of 5 including a very activw 3 year old. We live in Arizona and had to travel to Pittsburg because Dr Janetta was the only Dr doing this surgery. Since the surgery I have ben free of the problem and having suffered severe motion sickness I can now read or do handwork in the car (on a straight rpad )
 
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hansomtoo replied to amberdav's response:
please check reply to previous post. It might help
 
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bzareckta replied to RedBear2005's response:
Are you still around here RedBear?
 
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redbear2005 replied to bzareckta's response:
I no longer regularly visit here at WebMD. I moderate a website serving 5000 chronic face pain patients, plus writing in several online forums concerned with psychiatry and its discontents.

However, if you wish to reach me, bzareckta, you may correspond through lawhern@hotmail.com