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Diagnosis of Myxopapillary ependymoma and pregnancy...
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An_219369 posted:
I have asked my neurosurgeon, radiologist, physician, and OBGYN - No-one can give me a straight answer if it is safe for me to get pregnant with Myxopapillary ependymoma in my spine.I have several tumors in my spinal fluid. They all say your body shifts so much during the pregnancy that it could be fine or get worse. Regarding the labor, I am told it is possible I can't get an epidural but could get oral meds.... Would I even be able to handle natural labor?

I just want straight answers!!! I don't want to get pregnant and have it be too late and have to survive the most miserable pregnancy and scary labor ever.

I want to know if anyone has ever carried a baby with this diagnosis and how their pregnancy was handled.
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phoenix31674 responded:
survived natural labor with really bad back labor. Supposedly I was getting something in my IV, but it really wasn't helping. I had a great midwife who was able to offer back massage which helped. i won't lie, it hurt, badly, and i was asking about an epidural, but i didn't push the issue that bad. i would suggest taking a childbirth class if you do become pregnant. There are a lot of great ways to alleviate the pain some. I didn't really get to use those because the birthing suites were all occupied the night I went into labor and we were in a teeny, tiny room that didn't have much free space in it.

The biggest downside of no epidural is that if a c-section is needed in an emergency, you end up under general anesthesia, which means you will not be with the baby right away, but that's not too bad. With my first, i had a c-section and was in the main OR since another woman was in the labor OR so it was a couple of hours before i was able to hold my DD when i got down to the maternity ward. I was still able to breastfeed her, though it took a while for my milk to come in.

i hope this helps some. But plenty of women go through childbirth without pain meds.
 
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BConverse responded:
Did you have surgery while pregnant or after? Any recommmendations? My wife is 17 weeks pregnant and we just found out she has a myxopapillary ependymoma from L1 to L5. Lots of pain now but we're still searching answers on best treatment plan.
 
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michelle4252 replied to BConverse's response:
I was diagnosed at 24weeks and had an intramedular ependymoma resected within days while pregnant


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