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Didelphic uterus
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MG1970 posted:
I was 12 weeks pregnant and the doctor could not find a heartbeat in the sonogram so I had a DNC. He said the baby was not developing that it was only tissue. I was diagnosed with Didelphic uterus. this means I have 2 uterus, 2 cervix and 2 vaginas. Imagine that. He said it would be hard for me to carry a baby full term so he is sending me to a specialist. PLEASE if there is anyone out there that has gone through this help me. I am so upset. May God bless you!
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mexico77 responded:
Hi MG1970,

I to also have the same situation you have. I just found out about the 2 vaginas about 3 weeks ago. I had lost hope that I would ever get pregnant because of my situation but GOD makes miracles happen. I'm 18 weeks and yes the doctors have told me that it would be difficult for me to carry the baby full term. I'm just trying to think positive that everything will be fine for the baby and myself.

Take care
 
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gorilla9n4 responded:
I am currently 16 weeks pregnant and I have uterine didelphysis. I have 2 uterus, 2 cervix and a complete vaginal septum. I am in the high risk category and I have sonograms every 2 weeks either by my regular OB/GYN or by the specialist that I have been referred to. Basically they are monitoring the length of my cervix. In 2 more weeks they will begin to do swabs to make sure that I am not going into premature labor. I have had 2 miscarriages previously, 1 very early and the other almost in the 2nd trimester which envolved a D & C. I am 33 and was told I would never be pregnant. Low and behold here I am. So far so good. The chances of having to have staples because my cervix length will begin to weaken is greater, but I have been reassured that this is not always the case. We are VERY excited to say the least. I am worried every day, but am POSITIVE this will be okay. My doctor told me that a C-Section is a MUST because of the vaginal septum. I am lucky this time that I became pregnant in my right uterus because it is the bigger of the 2. So far only my right uterus is growing and that is a good sign according to my dr because she said that the other one knows that it is not pregnant. My dr tells me that if I make it to 24 weeks that there is a better chance for the baby at that stage. Be careful reading most of the post online trust me I have read them all and have called my dr bawling. It is very scarey and not too many people post the positive. I will unless of course the worst happens then not sure how I will be mentally. I just keep telling myself it is my turn to be a mother. And my dr and specialist tell me that they ARE going to make this happen. The only reason for the hopes of making it to 24 weeks is due to the premature labor. But I am not letting any negative thoughts ruin my happiness. My boyfriend and I are very excited. We have been together for 12 years and this was the best thing that could happen to either of us. We love each other so much and we deserve this. I hope that anyone with the same problem can shed some positive light on this subject.

Thank you all for taking the time to read this and comments are welcomed. Please let me know how everything turns out for you. I did not have a chance for any correctional procedures since this happened on a cruise we took and I honestly think this is a miracle. I hope to welcoming my beautiful daughter Brooklyn Raye in December 2008 if not sooner.
 
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gorilla9n4 responded:
Please excuse my typo. I meant DNC. I thought I proof read it better. sorry.
 
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MG1970 responded:
OMG!!!! I am happy for you and I am going to keep you in my prayers. YES With GOD all things are possible. I just went to the doctor yesterday and he said I might have an infection in my uterus that makes me miscarry. I am going to go get checked out so keep me in your prayers,.
 
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MG1970 responded:
Wow! You give me hope..... I know GOD will also bless me. I will keep you in my prayers and I will let you know what the specialist tells me about my carrying a baby. GOD BLESS
 
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joiners71500 responded:
I HAVE!!!! Please know there is hope! I did not even know this was possible to have until we started trying to have a baby. I was diagnosed with the same thing in the fall of 2003 and became pregnant in May 2004. In 2005 I had healthy baby girl. We consider her a true miracle. Do not give up...it CAN and will happen for you!
 
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pixiejlyn responded:
CONGRATS!!! I HAVE THE EXACT SAME PROBLEMS AS YOU 2 UTERUS AND 2 CERVIX BUT MY DOCTORS SEEM TO TELL ME NOTHING!!!! IT IS SOOOO FRUSTERATING, SO ANY INFO YOU COULD PROVIDE ME WOULD BE GREAT....I AM ALSO DUE IN DEC I HAVE HAD 2 ECTOPIC PREGNANCIES IN THE PAST AND I WAS TOLD I WOULD NEVER EVER GET PREGNANT...MY BABY IS IN MY LEFT UTERUS AND I HAVE CONSTANT CRAMPING AND WEIRD PAINS BUT I STAY POSITIVE LIKE YOU. WE WILL BE MOMMIES!!! OUR BABIE SHAVE MADE IT THROUGH THE HARDEST PARTS ALREADY DONT WOORY ABOUT NEGITIVE THOUGHTS MY ONLY ADVICE IS DELIVER IN A HOSPITAL WITH A NICU, IN CASE....BEST OF LUCK TO YOU AND PLEASE ANY INFO YOU COULD PASS ON WOULD BE GREAT
 
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sillyjillyflygirl responded:
I also have/had a very similar condition, and am 6 weeks pregant now. I currently have 2 cervixes, and have an upcoming appt w/ a fetal medicine specialist to see how thinsg w/ that are progressing. I also had 2 vaginas (complete longitudinal vaginal septum) , now removed, and what was thought to be 2 uterous, but was found to be a complete uterine septum. Last summer was a myriad of appointments to reproductive endocronologists and tests. It is VERY DIFFICULT, even with an MRI, to differentiate between UD (uterous didolphous) and a complete uterine septum. Many doctors do not even acknolwdge a complete uterine septum exists. I assure you, it does and is much more common than most realize. In the case of UD, usually a woman can conceive and carry w/o too much difficulty. It is a unique but "safe" condition for pregnancies. On the contrary, women with a complete uterine septum often are plauged by years of miscarriages or just an innability to conceive. The septum tends to be very fiberous and is usually not vascular enough to maintain a pregnancy, and unfortunatly on top of this, the embryo tends to implant on it. One of my consult appointments was with the head of reproductive endocrinology, at Univ of Mich, Dr John Randolph, and he recommended the surgery for me, even though I had some other reproductive Endocrinologists tell me that I FOR SURE had UD, and surgery would be a bloody mess. If I had listened to them, I know I would not be pregnant now. I had my uterine septum resected (removed) in Feb, and am thrilled to be pregant now. There is another board FULL of women with mulerian annnomalies like this that was a huge source of encouragement and insight for me until I found the right doctors. (Visit at yahoo Groups> Mulerian Anomalies. ) If you have this issue, GO THERE. Don't wait. They can tell about Drs that other women have had success with, and those who they have not. Both UD and complete uterine septums are rare, but not THAT rare. My Dr was Mostafa Abuzeid in Rochester Hills, MI, and he did a great job, but there are others. Learn from other women and find Drs who understand how to help. YAHOO GROUPS> MULERIAN ANOMALIES
 
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corripach316 responded:
Hello,

I have the same thing. I unfortunately did not find out that it is a major cause of premature birth until it was too late. I gave birth at 24 weeks and 5 days. That is the verge of survival for a preemie. My son is still in the hospital. It has been 5 months today. With no end in sight.

But, there is good news, with treatment, you could have a healthy pregnancy. Have the docs check your cervix for FTP protein, it is a way to see preterm labor coming. They can give you progesterone shots, and do a cerclage. The cerclage is stitches in your cervix to help hold it colsed. With a didelphic uterus, there is nto enough room for the baby to grow, so it will push down on your cervix. I aslo recommend having enough money to take time off of work for bedrest, that will help tremendously. A longer materinty leave too, just in case of a preemie. The NICU is hard, all the complications are scary. Research some stuff first. Make sure your doctor thinks you could carry to at least 34 or more weeks. Talk to the high risk specialists too..make sure they think you have good chances too. Get as much info as you can, there is never a garuntee that your baby will survive, or turn out healthy.

I am not trying to scare you, but go into it with the knowledge and resources that you need.
 
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nicmas1225 responded:
I am in a similar situation and very very concerned. How is your pregnancy going? Did you have any further complications?
 
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shawn258 responded:
just had the same problems about 2mon.ago I'm trying to find out what can I do
 
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izzysmom2007 responded:
Hello, I have the same problem! I have 2 uterus, 2 cervixs & 1 vagina (I originally had 2 vaginas with a septum in between, but starting having pain with my menstrual cycles so bad I went to the emergency room when I was 12 and they set me up with an OB who diagnosed me with didelphic uterus & then sent me to John's Hopkins where I had reconstructive surgery i order for me to be able to conceive when I was older). I had my first daughter at 36 weeks after following a perinatologist through the entire pregnancy. (My water broke at 36 weeks & she was in the left uterus) She is now 17 months & has been completely healthy. I am pregnant for the 2nd time in the right uterus & I am 34 weeks.. The perinatologist said the last time I was pregnant the r uterus is smaller and I probably wouldn't last as long, but I haven't had any problems yet! I have BHC, and the have me on brethine & weekly injections of progesterone & I did get the 2 steroid shots at 32 weeks. They say at 37 weeks they want to do an amniocentesis to make sure the lungs are mature & deliver by c-section if everything looks good.. The only problem the md says is that his left foot looks like a club foot (but it could be related to his position in the right uterus since it's so cramped in there).. Just wanted to share my experience & hope it helps anyone
 
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apr60 responded:
Take heart, I found out that I had a didelphic uterus 22 years ago and have since had 2 healthy babies. I delivered both of my children by c-section and had no problems with recovery. I also had a miscarriage between my children's births and have often wondered whether it had anything to do with conceiving on the "other side". I always forget to ask when I do get a chance to talk to my gynecologist as the wait is long and the meeting is always hasty.
 
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apr60 responded:
When my gynecologist determined that I had a double uterus he told me that it may be hard to for me to carry to full term as well -- imagine my relief and pride as me and my fetus sailed through each and every "crucial date" until his birth! I was very anxious right up to our 25th week (earliest stage for baby survival back in those days) and then I was able to relax and revel in the fact that we were going to make it! Well that fetus is now 19 and he has a sister as well. I was also told my dad's second cousins that their mom also had the same condition and she had 3 kids naturally back in the 40's and 50's, so there you go. I've often wondered whether my daughter's uterus formed normally but time will tell. I hope this helps you out -- try not to worry as that often causes more problems than anything -- nature has a lovely way of finding a way to do what it was meant to.


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