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Didelphic Uterus
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MonicaHathcock posted:
Hello everyone, I have read all of your stories and I like to say there is hope for me.I just had Laprascopic surgery done a few days ago. My Obgyn was going in for endometriosis and he discovered i had a Didelphic Uterus. I have 2 cervix, 2 uterus, 2 vagina's and never knew it. I am 24 years old and married. My husband and I have been trying to conceive for a while now. I went to the ER a couple of months ago thinking i had appendicitis, Dr. did a cat-scan said I had endometriosis, so i scheduled a trans-vaginal ultrasound, and she thought my ovaries laid on top of my uterus, After many doctors telling me what they thought was wrong with me i finally get the real results during surgery my OBGYN diagnosed with me something He had never seen before a didelphic uterus. So now as I'm healing from the laprascopic surgery he is going to research and refer me to a specialist. I have no idea what I'm getting into. I would love to keep my spirits high and think positive and hope for healthy babies but not knowing makes it scarier. I don't know what questions to ask my doctor either. Ive read that some people only have one kidney. My Dr. Said he also seen a skin flap separating my uterus also. I'm wondering if he is referring to a vaginal septum? Ive read that some people gets this removed to increase chances of pregnancy. If thats true what kind of surgery will be preformed. I'm so upset about this and don't know where to go from here. Except do what the Dr.'s tell me. Any advice, comments, or stories you have for me please share. I need all the help i can get. God Bless
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1stGrace responded:
Hi Monica,
I was diagnosed with didelphic uterus when I was 22. I had surgery to have my vaginal septum removed. I won't say the recovery was the most fun time I've had but it wasn't that bad. I had surgery and went home the same day.That was several years ago. I am now 8 weeks pregnant and it is my first pregnancy. I will be seeing a maternal fetal health specialist in two weeks. Back to when first diagnosed though I read a lot about the condition and took some time to absorb the new information. My husband has been great about it. We know that having a baby is going to be more of a challenge for us but we are hoping for the best and so excited to be pregnant. We had an ultrasound and saw a baby and a heartbeat. I wish I had a story of having a baby for you and hopefully I will in about 30 weeks. I will be happy to listen if you want to talk.
 
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MonicaHathcock replied to 1stGrace's response:
aww. that is amazing congrats. I know there is hope for me. God made us this way for a reason. I was wondering How long did it take before you became pregnant after your septum was removed? My husband and I have been trying for a couple of years now and each month is so disappointing. But now I know why im not getting pregnant. I am suppose to be meeting with a specialist to get what they call a skin flap removed soon. Im guessing that is the vaginal septum. Also, to find out what ovaries are releasing the eggs each month as well. Do you have to get shots with your pregnancy? How often do you have to go to the Dr. Since your a high risk pregnancy? I would love to keep in touch. Thanks for the reply
 
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1stGrace replied to MonicaHathcock's response:
I have an appointment with a maternal fetal health specialist later this week so I may have more answers for you after that. We have had some difficulty with getting pregnant but I think the good news is that this pregnancy surprised us. We were not trying at the time so I was on no fertility treatment and I got pregnant. I will say this is unusual and we have been married for 12 years with no previous pregnancy. I understand how frustrating those negative pregnancy tests can be.My best piece of advice is find a GOOD ob/gyn or maternal fetal health specialist who will work with you. i did not have a good one and I believe that is a big reason we waited this long for a pregnancy. We are thrilled with our little miracle.
I will be happy to keep in touch. I am on babycenter.com as FirstGrace. You can message there and invite friends, etc. Feel free to message me there anytime. It will offer a little more privacy for info than posting. Good luck and God bless you!
 
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portlandmama replied to 1stGrace's response:
I also have a didelphic uterus-- a doctor discovered it when I was in my late 20s, and I never thought I'd be able to carry a pregnancy. For more than a decade I visited lots of doctors and did a lot of research, and I even considered surgery. But a specialist told me that the surgery was very invasive and it would be best to just try to get pregnant. After a couple of years of trying, last year I gave birth to a beautiful, healthy baby boy! The pregnancy was difficult, as I worried a lot, and we had to see a high-risk specialist regularly. I had contractions at 21 weeks, and my cervix started shortening, so I was put on several medications, and also on bed-rest. I'm not sure how much of this actually had to do with my didelphic uterus. Anyway, I ended up carrying my baby to 38 weeks, and then he was delivered by c-section. I have never been happier! I am keeping my fingers crossed for you both-- I know what you're going through and I hope everything goes well for you.
 
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1stGrace replied to portlandmama's response:
Thanks for the post portlandmama. I am entering my 2nd trimester. I am thrilled and nervous. I am being closely monitored because of didelphic uterus. It is always encouraging to hear a successful pregnancy story. Thank you for taking the time to share.
 
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emilympt responded:
Hi Monica,
Not sure how your TTC has gone since this post, but I just saw this today as I was looking more up about my condition. I found out I had a didelphic uterus about 8 weeks into my first pregnancy. The ultrasound techs were blown away during the transvaginal US at my small town hospital, but my OB-Gyn at the time was calm and reassuring since she had seen others with this same condition. She watched me closely for that first pregnancy, as there were no particular "specialists" in that town, but I am pleased to announce that that 1st little miracle is 5 years old, going on 6. The worries for breech and pre-term had me worried enough that I basically begged for a c-section...I just wanted to know more of what to expect since it was a scary situation! I have since had another sweet miracle, almost 2 years old now. And, as you would expect, he was a c-section as well. Other than concerns about breech and pre-term, there have been no other abnormal worries for me. Well, maybe one...I was told when pregnant with my first that it was a good thing that the egg had implanted on the side/wall of my uterus that was not the septum/side of the other uterus. If the egg implants on the shared uterine wall, it has less blood supply and is likely to result in miscarriage. I have no idea if this is a common reason for didelphic uterus miscarriages, but I always have a cautious approach to my first few weeks for that reason...and I always ask specifically where it is located during those first US's. My "septum", as they call it, is complete and therefore I also have two vaginas. This made sex curiously difficult and painful before I found out what was going on down there! I have carried both babies in my right uterus as the right is the most comfortable "entryway" for both me and my hubby. (I tell him I'm TWICE the woman he thought I was! ;D) We know what the annoying septum is now and work our way around it during sex. We are going to try for #3 soon, but I plan to have the septum removed after that baby...maybe while I am in there for the c-section... It will definitely make sex more comfortable (I know, I know...why haven't I done it yet?!...Doc says it will be a short, easy procedure!...I guess I'm just intimidated by anything sharp being in that area!!) Maybe some women get the septum removed for this reason. But yes, as you stated in a later post about getting your ovaries checked...my OB-Gyn told me that often (even in women with normal anatomy) one ovary will take the lead, rather than it ALWAYS being a take-turns kind of cycle like it's often described in books. I guess removing the septum would increase chances that whatever egg from whatever ovary in whatever uterus has a fighting chance! I think I just got lucky with my right uterus. The first pregnancy only took one month of trying. The second, took about 8 months. However, I feel some of that is due to the BCP I got off of...Yaz. It was bad news!
Basically, I wanted to reply with positive thoughts for you and let you know that there are some women out there with your same problem who have been successful having more than one! I hope nothing but the best for you!! If you have any more questions I might be able to answer, don't hesitate. Now, frustrations with tampon use and my inability to use IUD's....that's a didelphic conversation for another time. Until then...God Bless!!
 
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33yearsyoung replied to emilympt's response:
Ive heard of that condition. u said that u have one uterus but its split into two sections. making having children even more difficult than normal.


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