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21+ Year PC survivor, in need of input.
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autoharper posted:

Sorry this is a reposting I put on a couple days ago, but I needed to revise it.
I was Dxed with PC 1990, with RP in June of 90
My Gleason score in 1990 was listed as 2+3=5 with extensive perineural invasion. Also listed as stage C, T3

I was tracked by a oncologist for 10 years with PSA still undetectable.
On the 12th year my PSA test was 0.1, PSA gradually elevated to at the 15th year check it was 0.6.
I checked back with my surgeon, who sent me back to my oncologist. At this time I was told I should have salvage radiation treatment.
42 salvage radiation treatments on trillogy machine at OSF St. Francis Medical Center 10-19-05 to 12-13-05..
PSA dropped to 0.1 after treatment, but now is up to a 2.9 as checked 11-8-11.

I went to see my oncologist Wed 11-15-11. and he wanted me to continue to wait and watch. I have also been advised that maybe I should be on a hormone therapy.
I have decided to look for a second opinion from another oncologist some place else.
I am looking for information on what course of treatment I should be looking for.
As of last year, no metastasis could be found. I am a 78 year old, and except for the PC, I feel that I am in very good health. .
Thanks for any suggestions anyone medical, or personal experience has to offer.
Jack
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Fairwind responded:
The hormone therapy can be very effective in controlling your cancer...But will it allow you to live any longer? That question has never been answered very well...HT comes with a heavy load of side-effects that can have unpredictable consequences for a 78 year old...Did you read my reply to your original post? This board can be tricky to navigate...
 
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autoharper replied to Fairwind's response:
Thanks Fairwind
I did read your first reply and I replied to it, but maybe it was removed before you was my reply.
Thanks again for your input, and I will weigh it with any other input I get.
I know I am not really rushed to reach a decision on this, but I do want to make a proper decision, (if possible), on this.
Jack


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