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Turn for the worst
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romel2020 posted:
Hello,
My situation has changed dramatically since my last post. PSA elevated to 26 as of January 2013 from 16 10 months earlier. Gleason score (3+3) as of last count (1 1/2) years ago. Dr. Recommends prostectomy surgery ASAP and informs me that my chance of being cured is around 30%, with maximum amount of nerve damage. (meaning, erection problems). This news is not encouraging and tends to inspire a (what the hell) attitude. Is there anyone out there with better, more encouraging information that I can bring to the table? Also, what does (pre-op) involve? Surgery scheduled for June 13th 2013.
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billh99 responded:
Here are some online calculators that give predictions on outcomes.

http://www.mskcc.org/cancer-care/adult/prostate/prediction-tools

I know that you have limited time, but the best thing that you can do is to get in good shape.

That means losing weight, if needed. But I would not try for much of a drop.

Exercise, specially ones that work on the muscles around the pelvic area: walking, core.

And start the kegel exercises now.

Not much involved in pre-op. If your doctor is not the surgeon you will meet with him. They will want to do blood test.

And get clearance from your PCP. Depending on the last time that you where seen and if you have any other problems that might just be a phone call or your might have to see the PCP (or specialist).

In my case I have had blockages in the heart that where bypassed and a leaky mitral valve. But no MI. It was a month shy of my 6 month cardiologist visit. So it was moved up and they just listened to my heart and OK'd it.
 
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dab60 responded:
Sorry for the bad news. Sounds like you have been on what they call active surveillance or watchful waiting for a year and a half? I had my surgery four years ago and have been doing good since then.

Look up Partin table on the internet and put your numbers in. PSA, Gleason, etc.. Your chance of organ-confined prostate cancer is quite a bit higher than 30% I would think.

It's possible a second opinion would be good although I just listened to my urologist and got the surgery like he recommended.

Good luck.
 
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dab60 responded:
Sorry about the bad news. Check out those predictor tables and charts. I think you chance of the disease being confined to the prostate are higher than 30%.

What was your PSA when you started watchful waiting a year and a half ago?

Good luck.
 
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dab60 responded:
Sorry about the double post. Opps, now it's a triple post.


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