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hair loss/drugs
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roelund posted:
I've been on Remicade, Orencia, Humira and taking methotrexate(9),( over an 8 year period) folic acid, multuvitamins, calcium Vit D and have just started losing hair in the last year. Will have patches of hair loss--alopecia along with just general hair loss. So discouraging. Went to dermatologist and she injected areas of quarter sized hair loss with prednisone and they cleared up but still had general hair loss. Humira is not slowing down or stopping the joint deterioration so will be switching to Simponi. Will ask my rheumo about decreasing metho. At 73 is very discouraging and can only imagine how this disease is for people so much younger than I. Anyone else have any hints!
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Byroney_WebMD_Staff responded:
Dear roelund,

I am sorry to hear about the hair loss you've been suffering. I hope you and your doctors can team up to find a mix of medications that help you with your RA, but without causing hair loss.

Hopefully some other of the RAers here will jump in and share their support over hair loss. Here's a recent thread on the side effects of medications and mentions Hair Loss, too.

Best wishes for more hair in your future,

Byroney
 
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infinity22 replied to Byroney_WebMD_Staff's response:
Hi roeland... I too am having hair loss and thanks to the web md community have finally learned that it's a side effect rather than age. ha... I am looking forward to discussing this with my ra doc and getting my hair back. Maybe it will grow in my original color... don't despair and ask your doc about folic acid if you aren't already on it. I believe there have been some discussions about it on the site as well.

Good Luck!
infinity22
 
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daisy32134 responded:
dear roelund,
im 16 and i was diagnosed September, 2010. I am recently taking methotrexate,prednisone and multivitamins like, folic acid and womens daily vitamins. i have had a lot of hair loss also. i get in the shower and i pull hand fulls of hair out, some days i can stand it. taking folic acid has helped me alot. living with this disease is horrible. some mornings i couldnt even walk let alone get out of bed. i have had my brother and step-father get me out of bed and even my mother who was pregnant at the time would have to help me eat. i have struggled and know how you feel. anyone living with this horrible disease needs to understand they are not alone and there are many people with it. it may be hard but you have to try to get through it. i will be on this medication for the rest of my life and im only 16, my hair loss had affected me tremendously. i used to have long thick brown hair and now i have thin hair but i realize that i have to be strong ans so can you.
 
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Headwrapguru replied to daisy32134's response:
Hi Daisy, I'm so sorry you are going through this, especially at such a young age. I lost my hair at age 16, but it was due to female hereditary thinning and I wasn't in any pain (except emotional!). I know how it feels to be so young and have your hair shedding. I was wondering if you or anyone else who has experienced hair loss resulting from RA medications has looked into using Rogaine? I also heard about a product called HairGro, from India that apparently an arthritis specialist recommended. I've never heard of it before, and I'm always suspicious about anything that promises to re-grow hair, but maybe your doctor has heard of it? From doing my own research, I've found that the only product on the market these days that might arrest any further shedding could be Rogaine (also called Minoxidyl). I'm not sure if your doctor would okay it, but it might be worth it to ask. Good luck, Daisy!
 
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mjaured replied to Byroney_WebMD_Staff's response:
My hairdresser has taught my doctor some new tricks. First and still I take Niacin Intensive Therapy Recharging Complex for hair and nails found at Ulta Stores. Pricey - 45 for 3 month supply but works. Also use Loreal Sulfate Free Shampoo and Conditioner for your hair. If you can find a wet brush that combs the tangles out of your hair in the shower I highly recommend that too. Comb tangles out in shower and then comb one 'n only Argan oil derived from Moroccan Argan trees. If hair shoulder link use a dimes worth and wipe onto ends and front hair if needed. Come though. This is not a heavy conditioner. My hair is breaking less and must healthier with this protocol Best of luck!
 
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An_243001 replied to mjaured's response:
I was diagnosed with RA at the age of 32 back in 2009. I have taken methotrexate, prednisone and a sulfa medication. I did not care for those because of some of the side effects. I am on plaquenil right now but, I do have the ocassional flare ups and it is so hard to get some of your family members to understand what you are going through when, you are in pain. I am also losing a lot of hair. My husband notices it and I just joke and say, well there are always wigs!
 
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santabarbara4u replied to An_243001's response:
Hi mjaured!
Yeah, the side effects related to some of our meds suck! I was diagnosed in 2007 and dr prescribed methotrexate. I lost alot of hair and didn't like the side effects, so was not very compliant with meds in the first years. However, RA began affecting my hands quickly and dramatically. I didn't really understand that methotrexate suppresses inflammation, swelling, pain and most importantly slows joint damage. I wish my RA specialist had told me clearly about the permanent damage that can occur. Now, I DO take the methotrexate and have Remicade IV infusions in an attempt to slow further damage. I space my once weekly methotrexate dose several hours apart and take with food to reduce stomach issues. I also take 2 mg folic acid which helps a bit with hair loss. Wishing you good health!
 
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Pattimead responded:
Hi I have not even seen the rhumy yet as I was just diagnosed last week. I am having tons of hair loss . You are not alone. Can you tell me what to expect from the Rhumatologist . TY
 
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LilAngel_73 responded:
Hello everyone,
3 months ago i diagnosed with RA. I have issues like everyone else with hair loss. However, I found taking 2mg of folic acid, prenatal vitamins, and beta carotene(twice daily) alomg with using Sauve Keratin Infusion shampoo and conitioner has help my hair to become stronger and start to fill in the bald spots.
hope this helps alittle.
 
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JaneReedy replied to LilAngel_73's response:
Men who uses this kind of hair-loss drug should be under close monitoring by their doctors due to this kind of side effect wherein it it shows potential risk of a person suffering depression to commit suicide.
<a href="http://www.herbsonline.net.au/">herbal medicines</a>|<a href="http://www.herbsonline.net.au/">herbal healing</a>
 
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JaneReedy replied to JaneReedy's response:
Men who uses this kind of hair-loss drug should be under close monitoring by their doctors due to this kind of side effect wherein it it shows potential risk of a person suffering depression to commit suicide.
herbal medicines |herbal healing
 
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kettybill replied to Byroney_WebMD_Staff's response:
That is very really Sad about your Hair loss, this is so irritated when you are losing your hair. you may take an advice to hair specialist, and you will be try Hair extensions like me the Best Hair Extensions London Salon.


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