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We've been gluten and dairy free for over a month now. We also avoid fast food and prepackaged crap. ;O)
My 7 year old daughter was diagnosed with JRA almost two years ago. Methotrexate didn't work, and now we're on to Enbrel. She screams from the pain when we inject her with it. It lasts about 10 sec but it feels like forever.
Anyway, the diet change was something I researched and pushed for after paying attention to flares and what she had been eating the day before. The drugs didn't seem to do much. Change in diet really seems to be helping, but its hard. Especially for a child. If it was just for me, it wouldn't be a problem, but our family is doing it together. Reading this made me feel a little bit better. Its hard when people act like you're crazy. And it DOES sound crazy. How can food effect someone like this? But I truly believe the change in diet is helping, on many levels. No more limping, focuses better, swelling is down, more energy.
After 3 weeks of going Gluten and Dairy free, we had a family member sneak her bread and cheese. She swelled up and had to put a heating pad on her knees, she rubbed at her wrists all that night. Not only that night but on and off for the next 3 days, along with dark circles under her eyes that had been gone for a few weeks. I believe it was the food. On the other hand, that same day she had walked around the mall for a few hours. So I'm told, it could have been the walking too. I disagree, but would like to know for sure.
Did you do any kind of "cheat" on purpose to see if it really is the food? And is that a crazy idea?
Or should I just go with my gut as a mother and keep doing what I know is right? Even if that makes me the bad guy?
Also, as for the medical community... Our rheumatologist never even mentioned food or diet change. So yes, we have a ways to go, but I'm with you!
I realize this was all over the place, sorry.
Your story is the same as mine. You are right on track!Through trial and error, I have learned the same lessons as you... the hard way. It is very difficult to know what was eaten yesterday that is causing pain and inflamation today.
I also discovered (by eating Thai food) that chilis contain capzasin, which is a natural anti-inflamatory medication. I make sure to eat at least one meal a day with chilis and have had amazing results.
I have also tried the rub-on creams, but with less success.
I told my RA specialist about this, but he only seemed to be amused. Then he prescribed Methotrexate, as well. Haven't seen him since. I don't understand why doctors are so resistive to natural medications and prefer to prescribe harmful chemicals with serious side affects.
Thanks for helping to spread the word!
How ironic!! I have been gluten free, dairy free, mostly sugar and caffeine free for over 20yrs. I had a naturpathic doctor help me after being diagnosed, due to fact I was having terrible reactions to the RA medications.
I am not going to say that I have not cheated, I have, at a very painful price, was RA free for 16yrs after a 5 yr strict regimen then it came back!! Now I just tell myself this is worth it, I am healthy running marathons etc.
I am glad to see others using diet, wish the medical community would listen.
As a nurse it can be very frustrating but I believe they are starting to listen as more and more people are finding healing following a more natural diet.
I stay away from all grains, which is hard. I'm adding back steel cut oats once a week but so far have more pain for a couple days after eating it. I'm also sensitive to soy. Love my RA doc but he does not recognize the role of diet and says I can eat anything.
I also had a serious vitamin D deficiency which may have played an important role.
The oats per se might not be the problem for RAGardener. It could be where they are processed. I have a sister with celiac disease and she has found she can eat oats if they were processed in a wheat free facility.
One of the most common things as we age is a vitamin D deficiency. We evolved running around naked in the sun and can produce 20,000 units in less than half an hour doing so. Were I to do this now I think I would not need a supplement but the neighbors would almost certainly object. Try getting a vitamin D deficiency test. If your level is less than 50 25(OH)D you become more susceptible to all sorts of things including auto immune problems.
When I developed psoriatic arthritis I had a severe deficiency even though I was taking 1500 units a day. Yes methotrexate was recommended but suppressing my immune system sounded like a really bad idea. Of course it was an ND who suggested an elimination diet.
Most of the things mentioned by others here are likely to have a salubrious effect. I had plaque psoriasis for years. High levels of omega 3 fatty acids did help that a great deal.
Also, to all those out there, what has helped me is deep tissue massage. I wish I started it long ago. I go weekly for 1 hour. My massage therapist is supurb and uses different modalities during each session. It is not fun, often painful, but IT HELPS. Anyone with RA or fibro: do yourself a favor and pursue deep tissue massage therapy. (A lof of it is the same work physical therapists do.)
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