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RA fatigue tips
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RAWarrior posted:
RA fatigue is not being tired after work. It's more like feeling that you've just run a marathon before the race even starts.

Here's tips from fellow RA patients for RA fatigue. The folks on my Facebook page contributed to the many tips in this article. Click here.

Good luck,

Kelly

PS: we want our smilies back. ;D
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THEBESTAPPRAISER responded:
TIRED IS EXACTLY THE RIGHT WORD, ALL THE TIME TIRED, LIKE I COULD SLEEP FOREVER...
 
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Snazzyactor replied to THEBESTAPPRAISER's response:
Tired, run over by a truck, flattened by a steam roller, a tidal wave of fatigue is my favorite description. Despite all these descriptions, many days that is ALL I want to do. It's the only relief I get! Sleeping........sounds so good right now....................
zzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzz
 
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Kat41282 replied to Snazzyactor's response:
don't think I have slept in a year! I am up and down all night every night due to all of the RA pain. To make it worse I have to be up at 6am for my job. Tired is not a strong enough word for the way I feel.
 
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tmidd617 responded:
RA fatigue is so bad sometimes...It's Unbelievable, how it makes you feel...Run over by a truck is a good description...It feels like you just had the flu and trying to get back going...I was like that last nite...I told my husband, my arms and legs felt like they weighed 100 lbs each!...Just absoluetly exhausted!!...You know what is so upsetting about it is... I was always the gogetter the one that kept on going like the energizer bunny...I was full of energy and worked hard each and everyday, back before my diagnosis...now I hardly have the energy to get to work and back....just so exhausted!!!,
 
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DIYSTER replied to tmidd617's response:
tmidd617, been feeling the same way past few days. even Red Bull didn't help which is REALLY bad. I, too, was go-go-go before this happened. I was a consultant and project manager and on the road. Typical day could go from 5 am to 11 pm or later. Haven't worked since 2006 because of this crap. But like everything else, this too shall pass and I expect to regain energy in a couple of days. Have a good weekend, hope you're feeling chipper soon!
 
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Jadagage replied to tmidd617's response:
Yes, RA fatigue is hard to describe to others. My oldest child thinks I should be able to do anything he asks when I get off work. He will soon be 24 years old and does not understand why I can't jump when he calls. I have sleep apnea in addition to RA, in addition to fibromyalia, and am tired of being tired! I work 4 ten hour days a week. I wake up at 5:30 a.m., leave for work by 6:30 a.m., arrive to work by 7:00 a.m., and work until 5:30 p.m. I have been taking Remicade infusions every 4 weeks (5 vials each time), just completed between 55 to 60 treatments and have horrible side effects from the medication. I feel for everyone that lives with these deceases.
 
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aw410 replied to tmidd617's response:
I agree with you, I am, or was a Realtor and always on the go, now I can hardly go anywhere...The fatigue is horrible, I could just lay in be 24/7, but I try and move around. Thank goodness I adopted a dog from the shelter and he keeps me moving some. I hate that I can't work anymore, and people just don't understand, they can't see it, and think I'm being lazy...
 
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ThirdGypsy replied to aw410's response:
Ex massage therapist here....I started noticing that when I did certain techniques, I would get instant pain, so I figured "Ok, arthritis, overuse (30 years worth!), I get that" But then it spread to both entire hands, wrists, feet and back....yikes! I already have Fibromyalgia, but this is different. Doc says "Hmmmm...." Dontcha hate that?? Called me back, tests confirmed RA. Thankfully, in a way, I already had set a quit date. Between the pain and the fatigue, I just wasn't doing a good job (I felt). Now, I have old clients calling and would I please come to their house and just give 1 massage? It's tempting to see if I can pull that off and still have a little money coming in, but I am wondering if this is my pride talking, my "I can push thru anything" superwoman?? Time will tell I guess.
 
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michk5 replied to aw410's response:
Yes the fatigue is aweful - trying to be upbeat. I was a real estate agent as well, just left that career, not really due to RA, but as I sit here at my other job I can't imagine how I ran like that. Keeping active is HUGE!! I actually hiked a 75km hike along Vancouver BC, Canada's west coast trail this past summer. It dam near killed me, but I did it!! A day of bawling my eyes out needless to say. Try and stay positive everyone. I've had it not so good the last little bit - going to totally change my eating habits and start yoga. I wish everyone luck. Remember it's not going to kill you, keep the faith!!
 
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lmm13tmm replied to ThirdGypsy's response:
I have worked for over 25 years and raised three boys. The last one is a Junior in HS. I have always pushed through everything. I think I am getting to the point that I can't push any more. I am so exausted by Wed each week my house and son suffer until Sat afternoon when I finally have enough energy to take care of things.
 
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ELISEDK replied to tmidd617's response:
Thank you so much! I thought I was the only one who felt so exhausted all the time. Most doctors blow it off when I tell them this or say lose weight, coworkers, friends and family think I am just lazy. They say exercise more. My only problem is I can't stay awake long enough to do ordinary dailly living things let alone exercise too. And, when I do make myself exercise I feel so drained withing a few minutes I have to stop and lay down.

The worst part is the less I do the less I can do. I used to be the strongest person in my family but now I struggle to just life a load of laundry.

Thanks for letting me know I am not alone in this!
 
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jenn30belle replied to Kat41282's response:
I feel your pain. Not many people find RA worse at night. I Do. I feel bad during the day but night time is horrible.

good luck and let us know if you find anything that makes night any better.
 
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jenn30belle replied to lmm13tmm's response:
I know how you feel and the guilt of leaving everything you cant do unfinished is depressing. My kids 12 and 6 have suffered along side me.
 
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ciratb replied to aw410's response:
This is late popping in, but I just had to reply. I know exactly what you mean! NO ONE on the outside of this crappy disease can understand just how rotten it is to never feel rested enough. I hear things like "everyone has down days, just make yourself get going" I DO I have to MAKE myself get up to just move and that's not actually getting dressed and going out to a job.(Which, I had to leave when it got just to hard to make it to the car let alone thru a day of working.(I was a Pharma Rep) towards the end of my career I had to make deals with myself to make it half a day.


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