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    The Road Back Foundation
    avatar
    jorge51; posted:
    I was just reading your post and wanted to share with you my journey with RA. My name is Pat
    First let me give you some background on how RA has affected me. I have only been diagnosed for two years but, I am fairly certain that I have had the disease for eight years. It incapacitated me for the first two and then went into remission for the next four. In the beginning of the last two year period I found myself becoming increasingly tired to the point of napping three times a day and being exhausted in between naps. I woke up with a headache and went to bed with one as well for over a year. It affected my memory, the use of my hands, knees, shoulders, and neck. I was unable to exercise, carry things, fold much laundry, cut up food, button my shirt; even shampooing my hair was becoming difficult.

    Almost a year ago, I had my first abscessed tooth. I was on huge amounts of antibiotics for almost a month. I felt better with the abscess tooth than I had felt in months. I thought I was just having a period of good days in the disease but, when the antibiotics were stopped I had the worst flare I have ever had in the history of my disease. Six months later I developed a second abscessed tooth with infection in the jaw. Again I was put on massive amounts of antibiotics with the same affect on the RA. This time I put the two together. I had antibiotics left over from the first toothache, the Dr. switched medications two weeks into the therapy and I had just refilled the script, so I continued to take antibiotics and started to do research on the net. I found "The Road Back Foundation". I got the book that Dr. Brown wrote from the library and read it. I was determined to try this therapy.

    I went to my Dr. and asked him if he would prescribe the Minocycline, the drug Dr. Brown prescribed to his over 10,000 patients, and let me try it. He agreed. I am now almost back to energy levels prior to the disease. I no longer take three naps a day nor am I looking forward to the next one I can take. My headaches are rare and never as intense as before. I can cook, clean, fold, vacuume, tie and button shirts and shoes, almost at normal levels. I still have to rest more than I used to before the RA and I still have some pain in my hands if I over use them. I still take all my medications but, the point is the quality of life I am enjoying is so much better.

    I hope you will take this therapy seriously and try it, you have nothing to lose and everything to gain. The drug has few side effects; it is used long term in young patients to treat acne. If you have any questions or just want to talk feel free.


    Pat



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    pst1111 responded:
    I HAD A SIMILAR EXPERIENCE -- IN OCT 2012 I HAD MASSIVE ANTIBIOTICS FOR A RUPTURED COLON THAT WAS INFECTED. I STOPPED TAKING DICLOFENAC FOR PAIN WHICH I HAD TAKEN FOR 1 YEAR AND MY JOINTS FELT BETTER THAN HAD FOR A LONG TIME -- NO SWELLING, ETC.

    AFRAID TO TAKE ANY MEDS BECAUSE I HAD BEEN TAKING METHOTREXATE FOR SEVERAL YEARS AND THE DAY I WENT TO 7 PILLS/WEEK I HAD A PULMONARY EMBOLISM IN 2010 AND FELT IT WAS FROM THE METHOTREXATE.

    I DON'T KNOW WHAT ANTIBIOTICS THEY USED IN THE HOSPITAL BUT I HAD READ ABOUT MINOCYCLINE 10 YEARS AGO.

    WANT TO TRY IT NOW. PHYLLIS
     
    avatar
    Chrispur responded:
    Pat, my experience was very similar to yours. I was on Methotrexate which wasn't working and I just never wanted to walk past a couch or chair without sitting down and falling asleep. I was diagnosed in October, and in May had dental abcess which was treated with Amoxicillan and I began to feel better except for my mouth having some sore spots and it was suggested that I stop the methotrexate (shots) while on antibiotics. I had not felt so good in a long time either and asked the RA to prescribe Minocin (after doing considerable research and reading). He said no, he didn't believe in it. As it turned out, my primary care Dr. said she would prescribe it if he would follow my RA. That's the current arrangement, although I'm in the process of trying to get a referral so that an RA in my State can provide my care and followup. I take minocycline M, W, & Friday, 100 mgs...and Ibuprofen, vitamins, fish oil, etc. I feel almost completely normal...no more depression, tiredness, headaches, etc...!


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    I recommend all my patients on methotrexate take at least 1 mg of Folic Acid daily to help decrease the risk of side effects. In those ... More
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