I have been to 6 different doctors trying to get someone to take me seriously. I have had cactus needles, connected to the pads, complete with glochids coming out of my skin, lungs, sinuses, mouth, throat, urinary, digestive, and reproductive openings for seven months.
I have seen two dermatologists...
#1 "I'm not going to sit here and pull it out." "Looks like MRSA." "It's folliculitis." "It's allergies." "Yeah, looks like something is coming out!"
#2 "Does your husband have it on his body, too?" "Well, there is this new thing where people feel like needles are coming out. One woman even saw colors in it." My response..."Do you think I'm psychotic?"
I have seen my PC twice, "Hmmm. Never heard of that."
Went to a urologist because I lost continence...She found a nodule, removed it and called me cured as it was benign. Didn't get any info on what it was composed of.
I went to urgent care...got a breathing treatment, cough medicine and an inhaler, and, "Never heard of that happening before."
My rheumatologist is burning mad! Alas, she can do nothing. It's not in her field.
I tried to get an appointment with several pulmonologists, but there's up to a year wait for new patients. I'll be dead by then.
Honestly, my fingers are so crowded with them it's painful to even get something out of my purse or even use a washcloth. They are beginning to push out of my fingernails, and I have resorted to cutting them out of my fingertips with cuticle scissors. My mouth gets full between brushings, they attach to my teeth, I blow them out of my nose, cough them up in bloody mucous covered pieces, urinate and vacate them, and they come out in blood clots when I menstruate. It feels as if it will never end.
None of this concerns anyone. They treat me as if I'm insane, don't take a biopsy, don't even touch me, tell me they never heard of it, it's not in the literature, then send me on my way.
My energy level is waning and, at times, my breathing is labored. Today, as I coughed up more needles, I felt twinges of pain in my lungs that really concerned me. On top of this oddity, I have FMS and hypothyroid. The fibro, memory loss, and ADHD are the result of loss of oxygen after I stopped breathing immediately following surgery and the surgeon waiting over five minutes to see if I would start breathing again.
I'm a big mess, but I am not insane. I question it from time to time, and the continued rejection by doctors also makes me question it, but it is coming out of me, so how can it be imaginary?
My husband is frustrated and getting impatient to find an answer. It takes a lot of convincing to keep him from calling doctors to offer a piece of his mind. I won't go to the ER because I don't feel it's an emergency. I'm not in immediate danger of dying, after all.
I continue to teach first grade. I'm luck it's first grade because they don't really comment on their teacher's looks. : ) My coworkers are wondering if this will ever go away, and a few have suggested I visit the Mayo Clinic, but that would have to be on my teacher's salary, which is a no go. A nurse who was taking my history when I had the bladder surgery suggested it might be growing in me. That thought is eerie, but I have to wonder...how else does it continue to come out of me at a relentless pace?
Can you help? I am sooooo lost. I worry this stuff will go into my heart, or my brain. What then? Please tell me I'm not crazy.
Going Cactus Crazy