Skip to content
9 years and NO clue what is wrong with me... HORRIFIC INSOMNEA
avatar
desperate4sleep posted:
Over 9 yrs ago, my life totally changed at age 43. I feel like I'm slowly dying from sleep deprivation & other symptoms. I've been to more docs than I knew exhisted. I've also been tested for more diseases than I knew exhisted. Out of desperation, family members brought me to the Cleveland Clinic (from PA). Practically, every test imaginable was run; yet, nothing was discovered. They looked at me as if I had 3 heads... as if they didn't believe what I was/am going through. I've been to other specialized centers, too. Now, here I am yrs later, and I'm only a ghost of the man I used to be -- looking like I've aged far more. Background information: For as long as I can remember, I've suffered with anxiety (including social anxiety) as well as depression. Psychiatric treatment as a adolescent/teenager was unsuccessful. Now, the insomnea is exacerbating my anxiety/depression to the point that I can hardly function. This all started with excessively dry eyes -- considered fairly serious & needing constant care/drops/meds. Then, I developed the driest mouth imaginable. I was tested for RA. Initially, the test was positive; however, a specialist retested & said it was neg. Within 2 months, both of these conditions/symptoms abruptly stopped. That's when the horrific insomnea started. I do have sleep apnea, and I sleep with a CPAP. However, wearing several CPAPs for years has NOT helped my insomnea. The docs indicate that the sleep apnea is most likely caused by a thickening of my throat area/neck (I'm about 20 lb over-weight). The docs also indicate that they can operate, but I've been through so much already and too anxious to undergo the knife. My social anxiety has become "extreme," and it keeps me isolated -- even from extended family and friends who my wife may invite over. I isolate myself in my room. I can't "bring" myself to talk on the phone... at all. I miss entirely too much work, since I'm SO tired and can hardly concentrate on anything. Esp affected is my short-term memory. I forgot to mention that I have a heart condition requiring heart meds. (Diagnosed long before 9 yrs ago, though) I can't stand driving -- totally stresses me out -- and I can only take back roads to work making the drive much longer. I exhist... but just barely. I have an MA in computer science, so you'd think I'd have found something -- anything online -- to resolve/treat this "condition." Yet, no one has answers for me. As you can imagine, I take anti-anxiety meds, an SSRI, & my heart med. I also need mega-doses of Vit D. As u can imagine, I've been on a vast aray of psychiatic meds. Yet, I don't have a diagnosis. I'm so utterly exhausted that my wife has to do practically everything for me as well as take me places (besides work). She's a saint, and I feel lucky that she stands by me. My memory and cognition are SO BAD that I can't even remember all my symptoms that I need to "report" in order that u may have the answer or even be able to lead me in the right direction. I have a wife, children, and a spiritual side; so I refuse to give up on what little "life" I have left. As a side note: Not too long ago, I was successfully treated for skin cancer -- most likely my immune system continuing to deminish. Reaching out like this is so difficult that I'm having a panic attack right now, and I must close. This is so ATYPICAL of me ... far from my normal behavior.

Take the Poll

Have you ever known a middle aged man who suffers from yrs and yrs (9) of insomnea with no answers -- no diagnosis -- and it's slowly killing him?
  • yes
  • I know
  • I have
  • I can help you
vote
View Poll Results
Reply


Helpful Tips

Narcolepsy and nutrition
Hi all, I am a narcoleptic and also I have sleep apnea. I recently joined a program called optifast to lose weight, it is a program that is ... More
Was this Helpful?
13 of 23 found this helpful

Related News

There was an error with this newsfeed

Related Drug Reviews

  • Drug Name User Reviews

Report Problems With Your Medications to the FDA

FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.

For more information, visit the Duke Health Sleep Disorders Center