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I took some anti- nausea med when I got home from the dr, told my husband who just woke up from sleeping off night shift. He checked in w/my dad. They decided he should put me to bed. He stayed up there w/ me.
Now its 12 hrs later from when it all started. I'm feeling a bit better, the nausea is mostly gone, my legs feel a bit stronger and I'm not disoriented, nor do I have such head pressure. I'm well enough to be on here. I do have previous medical experience, and I'm pretty sure if I had been observing a friend/family member go thru all this- I'd have insisted on the ER. I hope I didn't cause myself too much damage by insisting that I was 'ok'- even though Dad offered to drive over. I ignored my son's opinion b/c he said maybe it was related to my disc trouble and he's young... sheesh. Now that I'm feeling better and more oriented- I could kick myself. And no- my typing is not this good- I've done lots of corrections- it seems to be worse tonight than usual.
Hubby went to work and here I am. Appointment is tomorrow at 4pm. I'm thinking maybe call them first thing in the am?
Update: I am slowly improving in my physical symptoms. My memory is still foggy and making quite a few 'minor' mistakes in taking care of my family and family scheduling, etc.
I am going to see a specialist who will hopefully be able to help me. I have Ehlers-Danlos Syndrome, and this episode is a possible complication of my disease. My cervical vertebrae are very unstable and my EDS specialist says it may have compressed some important nerves or vessels- which would cause all of my symptoms. He is referring me to www.castworld.org
I'm so sorry for the late reply, but wanted to just say that I hope you are doing better now. Your situation sounds like it must have been quite a scare and I am glad that you came out of it okay. I wish you the best with your new treatment and doctor. Please keep us posted on how you are doing. You are in my thoughts! Take care!
I also have a chiari malformation, and herniated discs at C5,6 and L5,S1. In addition to arthritis.
current symptoms besides tia symptoms are pounding, pulsing, throbbing sounds in my head, feelings of pressure, and some bowel changes.. I can't move my head very much or it starts doing the throbbing etc..
I am amazed at the difference in drs- one did his neuro exam and was rather sarcastic when I asked him if my symptoms were related to neck pain/instability etc..., the ER was very laid back in sending me out w/ a script to find my own mri...
Patients truly need to be their own advocates. If something is wrong- THEY KNOW IT. And they should not be treated like idiots simply b/c they don't fit into a neat little box of "typical symptoms" for one disease. I've been walking around untreated for a TIA for close to 3 weeks, AND AT RISK FOR MORE, had to make my own referrals, find my own mri center, find a neurosurgeon who could help me. And I still have to do more work on it. this surgeon says he is the only one in a 5 state area who will even touch me b/c of my situation and having Ehlers Danlos syndrome. He is 4 hrs away, and out of my network insurance. And he can't do the operation until Feb. "You are at risk for more TIA's or worse, the chiari and the herniations are low priority at this point. The cervical instability needs handled asap." and yet, they can't put me on the surgery book before Feb. So- I walk around for 4 months, knowing I may stroke at any time. AND he said that Cleveland Clinic does NOT have anyone to help me with this. So, yes, I'm a bit upset. In the meantime, I'm trhying to rehab myself, but still have hand coordination, memory, feet shuffling troubles... my typing is atrocious and I spend more time correcting than typing..
If you have any ideas, I'd love to hear them.
I'm sorry to hear about your daughter's stroke!
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Haylen
A friend of mine went through the day not able to talk when she had a stroke. I couldn't believe how dumb she had to be until I had a stroke and acted the same way.
I am normally very cued in to changes in my body, but the day I had my stroke, I woke up paralyzed on one side of my body and couldn't speak properly to the cleaning lady. I had to point to things and at one point heard myself speaking gibberish. Maybe she was used to drunk people. I can't believe she never noticed anything. When my husband got home, I managed to tell him what had happened. He immediately said that I needed to go to the ER, but I kept dawdling in the house, until my husband pushed me to go. I knew all the warning signs of a stroke having looked them up in case my mother had a stroke. It made no difference.
So please, everyone, be familiar with the stroke symptoms and get your loved one to the ER immediately.
Sara
My suggestion is to try to find therapy that incorporates the brain and not just the limbs. I wish my daughter would have had this type of therapy shortly after her stroke. Big difference in the therapies. please contact if you want to discuss more astrod@bright.net . God Bless.I am very disabled from having a major stroke, plus got kidney failure from the CT scans at the time, 24/7 migraines, plus other medical problems which cost over $200,000 a year. If I lose my health insurance, NO company will cover me no matter how much I am willing to pay. And I'm someone who has had health insurance my entire adult life. Is that fair?
Also ObamaCare is going to cover far more people with medical care that don't have much money. But that apparently isn't a Christian value to the Republicans.
I'm sorry to be so angry, but my personal beliefs are that no one should have to suffer without medical care. And right now, we all pay for the ER visits for all those that are not insured and can't pay. That would end with ObamaCare.
I did have the C1,2 fusion surgery done awhile back. I am in pain constantly in my neck, still experience symptoms of intracranial hypertension, occasionally leak fluid from my nose, etc. Different tests have been done to try to figure out my symptoms. The latest dr is referring me to the chief of neurosurgery at Cleveland Clinic. I hope and pray he can help figure out what is wrong, and that there would be something to be done to help me. It is torture to live like this. AND- my daughter has similar problems. We have been told she has chiari, platybasia, EDS, and needs a decompression/fusion done by an EDS neurosurgeon in MD. This same dr says I need c3-7 cut in half and hinge screws put in b/c all are compressing the spinal cord. This latest dr disagrees. His office could not find the fax the MD dr sent to them on the notes.
You can see more of our journey at www.ashfamilymedicaljourney.com
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