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    CVA at age 23
    avatar
    NJLeto posted:
    Hi I wanted to see if there is anyone out there that could give me some advice about some things since my stroke.
    It will be 1yr next week that I have survived my Stroke, it was due to Atrial Septum Deftect which was unknown until diagnosed with the CVA.
    I have continued head pain's since my stroke and have been diagnosed with Occipital Neuraliga, but every type of med, nerve block doesn't seem to work for me or only give me relief for a short time.
    I wanted to know if anyone has any information or advice for somethings they have tried or done, before I take any next steps like my Neurologist & pain Specialist would like me to have certian procedures to permently block nerves....
    Thanks N.Leto
    Reply
     
    avatar
    itmatsb responded:
    I have occipital nerve migraines 24/7 also since I had my stroke. With the various treatments, I have gone from intense severe migraines daily, to now mild ones most days--if I don't physically exert too much.

    When you have gotten your nerve block injections, do they give the nerve block and trigger point injections across your forehead, temples of the head, sides of jaw, back of head, neck and shoulders? I get about 15 of these every 4 weeks and it has helped me a lot. Most neurologists I've found do not know how to give them in all those places.

    Plus I got physical therapy that corrects the tightness in my neck but I doubt that PT alone would give you enough help.

    Also I get 25 Botox injections every 10 weeks, which most people only need them about every 3 months. Plus I wear a Butrans patch which has kept me out of the ER and lessened the times I need to take pain medication. Also I put on an anti-inflammation gel (by prescription) almost daily which usually calms down the migraines. I wasn't able to tolerate any of the daily preventative migraine medications until I found an herbal one that helped me. I occasionally do need pain pills, but only a few times a month.

    I know that all that sounds overwhelming. You very well might need only one of my suggestions. So don't get upset with everything I've listed -- LOL. Hope that might help you before you have such major surgery.

    Let me know about your nerve block injections.

    Sara


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