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Stroke/TIA diagnosis changed to Epilepsy?
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Anniewhereugo posted:
Looking for advice on course of action to take to make sure I have been correctly diagnosed. It is a little long, so I apologize in advance.

Roughly 12 years ago at the age of 38 I suffered a TIA. It began with full body shaking, I fell and then the left size was impaired. This lasted for 10 - 20 minutes, then I was pretty much okay and finished shoeing the horses I was working on. I had vision rings for a couple of days so saw my Primary Care Doc who referred me to a nuero. MRI showed sever stenosis of the corotid artery which was confirmed by angiogram. Case sent to specialist at University San Francisco who confirmed and said nothing could be done, it was a deformity probably from birth and that a small blood clot had broke loose and got stuck for a while. take aspirin every day and have an angiogram every 5 years or so to see if any changes. Fast forward to two years ago when I asked my new PCP for Nuero referral as I am in new medical group. New Neuro thinks I had mirgrain, not TIA and sent me for EEG, which came back Non Convulsive Status Epilepticus on the left side and dead on the right. I blew it off and never went back to her. figured I would find another neuro in a few years and see about the angiogram.

Three weeks ago I had knee surgery and was told that I had a convulsive seizure in the recover room. I was put on Keppra and sent home. The Neuro (same one who ordered the EEG) now says that my TIA were really siezure, however in her report from the hospital it stated that I had left side weakness after the episode.. So, she has changed three other neurologists diagnosis to suit her own...my biggest worry is that if I do in fact have a stroke, people will just think it is a siezure and I won't get the appropriate help. I am thinking that the last episode was not a siezure by another TIA. Is there anything I can do to get her to listen to me? I am seeing her tomorrow as the Keppra made me go crazy insane and I stopped taking it a week after I was on it.
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itmatsb responded:
I'm no doctor, but I've never heard of shaking being a symptom of a stroke. I wouldn't think that the ER would assume that you were having epilepsy when you could be having a stroke. But your only other recourse is to get another opinion from another neurologist with your current EEG for them to look at. Good luck.
 
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Anniewhereugo replied to itmatsb's response:
I concede that the incident after surgery could have been a convulsive seizure, however; they may have been influanced by the EEG report in my file. I was asleep and still had the breathing tube in so was not awake to know what was going on. That said, I am in the process of trying to get a 2nd opionion. thanks for the input.


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