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    I am so cold!
    avatar
    prummel posted:
    Hello! I am a 54 year old Dutchman and I had a stroke ( stem of the brain) last august. Most symptoms have dissapeared but I can not feel warm or cold in the right side of my body. The division is very clear, one foot, one testicle, one side of the nose, one arm feels cold. My husband says that the hand and foot etc. feel natural...

    At the same time I have the impression that there is a huge fire somewhere on my right. The cold wind of winter is a summerwind to me...

    The motoric sense is allmost perfect, I can feel but I can not experience pain. Pain is sensed as lust, pinching is an orgasm-like sensation. A cup that is too hot is experienced as a sensual pleasure. My right foot has orgasms of it's own... It sounds like fun bit it is a annoyance really...

    I can live with most of the trouble that has been caused by the stroke but at night I feel so cold! Half of the nights it prevents me from sleeping and I have to take regular hot showers and baths to telieve the cold somewhat. Sleeping in the daytime goes better, but that is a problem, I can not work this way.
    An electric blanket had the opposite effect. It seemed to me that the warmer it was, the colder I felt.

    Has anyone experianced the same problems with his or her sense of temperature? Does anyone have suggestions?

    Faithfully yours,

    Robert

    The Netherlands
    Reply
     
    avatar
    Richard C Senelick, MD responded:
    The type of unusual sensations that you are having are not unusual after a brainstem stroke. These can be called dysesthesias or hyperpathic/neuropathic pain . Depending how much they bother a person, there are medications that we try. Sometimes they help, other times they do not. This would best be managed by a neurologist or pain specialist since most of the medications are the same ones that are used for nerve pain. Some of the medications that we try are amitriptyline, carbamazepine, Cymbatla or Keppra. It is worth a try. Here is a link to an article on National Stroke Association website that talks about your problem. Good Luck
    After your stroke you may be experiencing a new normal, but remember what George Eliot said- It is never too late to be what you might have been. You still can achieve new goals.


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