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    Post cerebellar stroke fatigue with chest pains
    avatar
    An_255828 posted:
    Stroke description:

    6 months ago I was hospitalized with a bilateral cerebellar stroke (multiple acute infarcts in a bilateral scatter array pattern); embolism.

    Symptoms presented included: slurred speech, inability to control movement in both arms, dizziness, confusion, temporarily morphed Tinnitus ( changed from a constant high pitched moderately loud tone to an extremely loud, low pitched metallic sound), subsequent massive migraine pain in lower part of skull/brain.

    Cholesterol levels ideal, non-smoker, no diabetes, physically active (lifted weights), all bloodwork at good levels, pescetarian diet Discovered PFO while in hospital (did TEE).

    I seemed to recover functionality quickly and was discharged after a couple of days.  A month later episodic fatigue paired with chest pains, shortness of breath, dizziness, swollen joints (and pain that would awaken me while sleeping) in the hand, and increased volume of Tinnitus started.

    I've not been able to find anything about this on the Internet, and specialists I've seen so far are not knowledgable about it.

    At 6 months post stroke I can be active (reading, talking, physical activity,  getting dressed, working/playing on the computer, etc ) for an hour or two and then the fatigue and pain can start. If I am pain/fatigue free (or ignore low level pain) for a whole day of being active, I will be in a high level of pain and fatigue for the next 2-3 days.

    Low level pain is moderately constant despite activity level.

    Sleep is needed, but can be difficult because of the pain and the high volume of the Tinnitus. The longer I go not being able to rest, the more nauseated and physically ill I feel, too.

    I've seen specialists who all say their field of expertise does not indicate a reason for the pain paired with the fatigue: Cardiologist: PFO, pre-hypertension; ENT: managed chronic sinusitis;  Pulmonologist: managed chronic bronchitis; Neurologist: not helpful beyond original diagnosis; as outpatient only saw the PA who did not seem to know very much; Primary Care: blood work falls into the good to ideal range; inconclusive test results for Lupus (though there is a speckled pattern); Rheumatologist: scheduled to be seen is a couple of weeks.

    Is there anything that can be done about this?

    Is it a chronic condition at this point and do I just need to adjust to this new reduced level of abilities.

    What are the implications of this?

    Thank you for any help you can offer.
    Reply
     
    avatar
    An_255828 responded:
    PS

    I was 54 yrs old when the stroke occurred.

    Thanks!


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