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clots returning?
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activity posted:
I wound up with multiple blood clots in both my lungs last July, after a fall and immobilization of my leg for 3 weeks. I nearly died before I agreed to go to the hospital. I was inpatient for 5 days. I was put on Heparin at first, then coumadin plus Louvunox shots. I had been on Coumadin since July with my dr saying I would need it for 6 months to a year, if not for the rest of my life. I have made it to 7 months and just Friday he said my INR's had been okay for a week, and maybe we could stop it. I had been getting my INR checked 1-3 times a week since July. I have endometriosis and can no longer take birth control pills. But my ob/gyn has some ideas, one of which is surgery. I am scared of more clots by being off the Coumadin, even though I hated being on it. Anyone have any ideas?

Erin
5 Replies |Watch This Discussion | Report This| Share this:clots returning?I wound up with multiple blood clots in both my lungs last July, after a fall and immobilization of my leg for 3 weeks. I nearly died before I agreed to go to the hospital. I was inpatient for 5 days. I was put on Heparin at first, then coumadin plus Louvunox shots. I had been on Coumadin since July with my dr saying I would need it for 6 months to a year, if not for the rest of my life. I have made it to 7 months and just Friday he said my INR's had been okay for a week, and maybe we could stop it. I had been getting my INR checked 1-3 times a week since July. I have endometriosis and can no longer take birth control pills. But my ob/gyn has some ideas, one of which is surgery. I am scared of more clots by being off the Coumadin, even though I hated being on it. Anyone have any ideas?<br /> <br />Erin
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superior01 responded:
have you been checked for clotting disorder such as factor v lieden?
Report This| Share this:clots returning?have you been checked for clotting disorder such as factor v lieden?
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activity replied to superior01's response:
Yes and I am positive for the lupus anticoagulant, the (AACC)'s the AA are off which could have been caused by the bcp's and I have a genetic mutation that I take Folic Acid to treat. Most of my problems could be caused by either the bcp's or the Coumadin. When I go in this Friday, I'm going to ask him if he can run the tests again to see if they have changed at all.

=Erin
Report This| Share this:clots returning?Yes and I am positive for the lupus anticoagulant, the (AACC)'s the AA are off which could have been caused by the bcp's and I have a genetic mutation that I take Folic Acid to treat. Most of my problems could be caused by either the bcp's or the Coumadin. When I go in this Friday, I'm going to ask him if he can run the tests again to see if they have changed at all.<br /> <br />=Erin
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activity replied to activity's response:
I had my appt Friday and he said he would put me on 1mg propholactic, which means I still have to get my INR checked weekly. If I decide to do anything with my gyn, I will have to switch to Louvonox shots. I did ask him to run the blood tests again. So he ran the Lupus Anticoagulant test.

I put a call in to see when I would have to stop the Coumadin and start with the shots and how long I would be on them. I am waiting for his call back. I am going to ask him how the blood test came out too.

Erin
Report This| Share this:clots returning?I had my appt Friday and he said he would put me on 1mg propholactic, which means I still have to get my INR checked weekly. If I decide to do anything with my gyn, I will have to switch to Louvonox shots. I did ask him to run the blood tests again. So he ran the Lupus Anticoagulant test. <br /> <br />I put a call in to see when I would have to stop the Coumadin and start with the shots and how long I would be on them. I am waiting for his call back. I am going to ask him how the blood test came out too.<br /> <br />Erin
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lkybev replied to activity's response:
I am not familiar with the Lupus or the V lieden factor as clotting disorders, but when my doctor ordered coumadin therapy for me it included avoiding vitamin K / Folic Acid / and too much leafy green vegetables. The Coumadin booklet said that contributes to coagulation. Could your genetic condition be treated another way?
Report This| Share this:clots returning?I am not familiar with the Lupus or the V lieden factor as clotting disorders, but when my doctor ordered coumadin therapy for me it included avoiding vitamin K / Folic Acid / and too much leafy green vegetables. The Coumadin booklet said that contributes to coagulation. Could your genetic condition be treated another way?
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Garyoke replied to lkybev's response:
As I understand it, Factor V Leiden is a genetic occurrence. People who have this are more likely to experience blood thickening and, as a result, are more likely to clot. My mother, my sister, and I all have it.
Report This| Share this:clots returning?As I understand it, Factor V Leiden is a genetic occurrence. People who have this are more likely to experience blood thickening and, as a result, are more likely to clot. My mother, my sister, and I all have it.
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