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Hypothyroidism Headache + Pressure
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amecca85 posted:
I am a 26 year old male who has been suffering with headache/head type pressure for a year and a half. I am unsure as to what I can do. I have seen everyone I could see and I just need someone?s advice on what to do now. I have been on a bunch of different medications including several over the counter/prescribed pain relievers and none of them have any effect on my headache/head pressure.

Symptoms: Constant pressure in temples, occipitals and jaw joint which resembles sinus pressure. Difficultly concentrating. Head is in a fog. Irritable, extremely moody, lack of sex drive, difficultly remembering things, depression, anxiety, argumentative. Pressure increases during high stress/anxiety situations. Rarely have a stabbing, shooting paint on the right side of head lasting several seconds. One nostril is always stopped up unless active.

Who I've Seen: 1. Chiropractor: Said I had a cranial misalignment on right occipital. 2. Primary Care Doctor (New Hampshire): Said that I was suffering from headaches which where brought on from high blood pressure. Later found out that I do not have high blood pressure. 3. Primary Care Doctor (Louisiana): Did blood work and found that I had hypothyroidism which I am now treating and referred me to Neurologist. 4. Dentist: Had all four back wisdom teeth removed when I was told my headaches/head pressure could be caused by pressure from these teeth against the nerves. However, once healed headaches/head pressure stayed the same. 5. Message Therapist: Claimed right occipital was very tight. Also found a hard bump on right side of located below the hairline. 6. Ear Nose & Throat: Said I had a minor sinus infection but could not complete tests because uninsured. Treated with steroids and Mucinex. 7. Neurologist: Had a mind set that I was having a tension type headaches. Treated me with powerful muscle relaxers and anti-depressants that had little to no effect. Requested that I have a MRA done which came back with normal. Stop seeing him. 8. Optimoligist: Said eyes were fine according to MRI and initial tests. Pointed out I had a prominent sinuses.

Moved to New Hampshire from Louisiana in February 2008. Was working for a mold removal company and used a dry ice blaster. Then began working for a coal powered power plant for three days when the headache began. Left job at that point. In March 2008 headaches persisted for two weeks when finally decided to visit a doctor who referred me to the hospital to have tests done. Admitted to the hospital where they ran a series of tests including: MRI, EKG, Catscan, Lumbar Tap-Blood Patch, Blood work:All came back normal except the MRI which showed a small brain bleed. Was released from the hospital and told to follow up with Primary Care Doctor. Started seeing Primary Care Doctor who thought I had high blood pressure headaches and put me on blood pressure medication. Moved from the area and stopped seeing her. Moved back to Louisiana and began seeing another primary care doctor who ruled out high blood pressure and removed me from the medications. He then took more blood work and found out I have hypothyroidism which I now treat with Levothyroxine however has made no different in my head pressure/head aches. Primary care doctor referred me to a Neurologist who thought I was suffering from tension type headaches and prescribed me strong muscle relaxers and anti-depressants which had little to no effect. Requested that I have a MRA done which came back normal. After months of treatment I stopped taking all medication and discontinued seeing Neurologist. Currently looking for a new neurologist.

Recently I started the South Beach diet and noticed that during phase 1 of the diet where you eliminated bread and fruit, I started to feel better. However after the two weeks of phase one I started phase two where I started eating fruits and breads again and the head pressure came back.

Celiac's Disease does run in my family as well.
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Bev94114 responded:
Have you tried eliminating gluten from your diet? I`m surprised none of your doctors have suggested that - it`s an easy way to see how you feel once you`ve removed a very common thing that people are allergic to. Just dont eat anything with gluten for a few weeks and how your head feels.

People with Celiac`s do very well taking LDN - low dose NALTREXONE (dont expect your doctor to tell you that either!) - Google it and you`ll get all the info you need.

Good luck!
 
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Lera21358 responded:
Boy, have I worn this shirt!

When you go to your doctor have them test your Vitamin D level most do not know this but most thyroid disorders like hypothyroidism people will have a low vitamin D count. Took my doctor and I 4 years to figure this gem out.

I was getting headaches too really bad ones. The key to know if it's your thyroid is if when you wake up in the morning are the headaches there when you wake up. If they are, it is probably your thyroid the cause. If your thyroid levels are showing up fine and you still have these headaches it still can be the thyroid causing them. Are you taking your meds first thing in the morning and waiting to eat a few hours before or after?

I still get them occasionally but nothing like before and I believe they are also do to my Vitamin D deficiency. I must say I love my Primary Care doctor, for she is on top of it all. More so then any endocrinologist I have seen. She read all about thyroid and then read more and found that Vitamin D deficiency tidbit. She tested and sure enough I'm very low.

Fatigue, anxiety, brain fog, headache, nauseated, vomiting, muscle aches and over all feeling like crap are all signs of a lack of Vitamin D.

I have no idea why I have this deficiency because I go outside in our boat every sat and sun for hours then during the week I do all the yard work for 2 acres of land. I'm in the sun! My guess is our thyroid is the reason our body isn't making that "D" for us.

What my doctor gave me that worked like a gem for my migraines was RELPAX and its non-narcotic. It works within 10 min for me. Nothing else took that headache away. Mine too were in my eyes, or felt like a serious sinus infection then moved to my entire head. I felt like a sledge hammer hit my head.

Let me know how it goes but insist your doctor test your Vitamin D level, it takes about a week to get results back. Treatment depends on how low your labs are. Mine very low so I'm going to start on Monday one pill a week for two months. MEGA DOSAGE. I hear it works like a charm.
 
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Lera21358 responded:
I forgot to add this too. I also was on Levothyroxine and still many headaches, doctor decided to try Levoxyl instead. and that cut my headaches down by 3/4ths. Levothyroixine is the generic form. You might want to ask to change to a different brand also.

How did we figure out vitamin D to test?

I was so tired of still feeling sick, tired, hair, nails, you name it but my thyroid labs said I'm on the right dosage. I started to drink one ENSURE drink a day. After the 4th day I was a new person. I happened to have a doctors appointment that day I was feeling good. She saw me the second she walked in and said "You look wonderful" I told her what I was doing...that is when she thought to test the "D".

BINGO and I hope I saved you years of frustration and saving your doctor time.
 
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vegan03 responded:
funny i have been feeling quite sick the last couple of weeks, constant headache, fatigue, brain fog, bit of nausea here and there, etc. i had looked through the website trying to figure out if it was a deficiency causing it and vitamin d did come up in my search. i never would have thought to make the connection to my thyroid, i will have to pick up some vit d supplements and see if it helps. i don't have a doctor (shortage in our area) and would rather not sit in the clinic all day if i don't have to so i'll try that first and if it doesn't work i will hit the clinic and ask them to check my levels. thanks for the info!
 
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thedeal replied to Lera21358's response:
I think i might have thyroid problems. My body feels like it is burning up all the time. It feels like heat is radiating from my head and neck. My hands are very cold. And there is pressure in my head, like a swoosh. I allso cant be around heat sources as my head and neck feel real hot. Any ideas?
 
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thedeal replied to Lera21358's response:
I think i might have thyroid problems. My body feels like it is burning up all the time. It feels like heat is radiating from my head and neck. My hands are very cold. And there is pressure in my head, like a swoosh. I allso cant be around heat sources as my head and neck feel real hot. Any ideas?
 
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leopardycat responded:
amecca85 Could you please update and let us know if you ever pinpointed the cause of your misery? I too think it sounds like something is wrong with your thyroid. I was recently diagnosed with hypothyroidism and I had your exact symptoms. If you do have something wrong with your thyroid please read this:
http://www.naturalendocrinesolutions.com/articles/why-you-cant-rely-solely-on-thyroid-blood-tests/
www.austinwellnessclinic.com/services/thyroid-imbalance
 
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tomcat8994 responded:
Please tell me youve made improvement? I am currently 18 and have had this pressure in the back of my head, temples, jaw, and upper next for over a 1 year now. It has ruined my life. I have the EXACT same problem. I have been to many doctors and none of them have solved the problem and I have been diagnosed with many different things. I was diagnosed with Lyme disease treated for about half a year no change. I have been to probably 10 different doctors and all of them were clueless and just gave me different types of pain medication. Ive went to one Neurologist and he told me that I have something called New Daily Persistent Headache. This fits the description of my symptoms but sais that there isnt a cure. I went to another doctor and he told me that I have thyroid problems, specifially hypothyroid.
 
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lacima replied to tomcat8994's response:
You guys are still suffering from Hypothyroidism probably. You will be amazed at how bad the treatment is. Please look into Natural Dessicated Thyroid and read all about it at Stop The Thyroid Madnedss. I'm sure tha'ts the answer to the first posters problems. Synthetic thyroid hormone replacement like Synthroid only contains T4, that's why. Look into it please, it will change your life. You need to find a doctor with an open mind that knows what he's doing. But it is up to you to educate him, or find another one who is willing to help you, not make you sicker. http://www.stopthethyroidmadness.com/mistakes-patients-make/
 
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pierresmom replied to lacima's response:
This is my first time on this site. I have been treated for hypothyroidism for years. I have headaches, especially in the mornings when I wake up. Sometimes I get a shooting pain thru my eye and sometimes just feels like a tight band around my head. My thyroid results are normal AND I take Vit D3 5000 mg daily, Thank you lacima for posting this web site, I am going on the site now.
 
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wish111 responded:
This all sounds a lot like what my 20 year old son is experiencing. Only difference is that he's had 2 seizures in the past month. We go to endo next week. Neuro said he doesn't think its epileptic.tsh was high last trip to er for seizure and blood sugar has been up and down a lot
 
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thera13 replied to wish111's response:
Hey guys it looks like no one has posted in a few months but I'm hoping you all are still checking this. I am a 26 year old female and I have had these same symptoms for nearly 2 years now. Before I was 100% healthy and happy, now I am miserable. I have constant 24/7 head pressure, pains, aches, shocks, tingles, muscle spasms, numbness. I have reoccurring ear aches and sore throats. I also have some reoccurring skin rashes and hives. But the biggest problem is my head pressure. I also have sinus/facial/temple pressure and pain. I feel like my head is in a vase. Brain fog and lessened memory too. I feel a constant tightness around my brain and fullness in my ears. The base of my head hurts as well as top and sides of my head.

I have had 2 MRIs, a MRA, 4 cat scans of sinuses, spine, neck and sinuses again. I have had Balloon Siuplasty ruling out any sort of sinus issue. Been on rounds of antibiotics. Muscle relaxers, multiple pain meds, diuretics, rounds of steroids, antihistamines, beta blockers, sleeping meds, and multiple other headache medications. I have had a Lumbar Puncture which spinal fluid pressure was normal. Been to optometrist time and time again. Seen 3 neurologist, 1 Neurosurgeon, 4 ENTs, 4 Dentist. Had my wisdom teeth removed, all my amalgam filings replaced and all dental work is perfect. I have had every blood test and allergy test recommended. Everything appears normal. My MRI incidentally showed a small 10mm benign cyst on my pituitary gland. The neurosurgeon and neurologist said it was not causing any pressure or harm. It didn't grow in the year between my MRIs. I have had rounds of hearing test a long with multiple sessions of steroid shots in my ears. Ruled out any underlying ear problems. In the last couple months had blood work re done and my thyroid levels were high, doctors had me on synthetic hormones and retested me recently. They say I have thyroiditis and that my levels keep fluctuation between hypo and hyper. Everything else looked as it should.. I have spent nearly $30k and I am a student. I have missed 1year and a half of college to work and figure this out.

No medication, test, detox, sleeping schedule, physical therapy, acupuncture, or any other remedy has even slightly helped me feel better. My insides feel shaky and my head spins. I am determined to find out what had happened to me but in feel like I am the only one who is, the doctors are very dismissive. If anyone has figured out what is causing their symptoms please let me know I will try anything to narrow down my search. I am very sorry others are suffering like I am I feel your pain and frustration. Taking it day by day ad staying positive has got me this far. There is an answer, it only takes one person to take an interest, have and idea and figure it out. Please post if anyone has any thoughts l. I will post if I find anything new. Thanks again everyone hope you all are doing as good as you can be.
 
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thera13 responded:
Hey guys it looks like no one has posted in a few months but I'm hoping you all are still checking this. I am a 26 year old female and I have had these same symptoms for nearly 2 years now. Before I was 100% healthy and happy, now I am miserable. I have constant 24/7 head pressure, pains, aches, shocks, tingles, muscle spasms, numbness. I have reoccurring ear aches and sore throats. I also have some reoccurring skin rashes and hives. But the biggest problem is my head pressure. I also have sinus/facial/temple pressure and pain. I feel like my head is in a vase. Brain fog and lessened memory too. I feel a constant tightness around my brain and fullness in my ears. The base of my head hurts as well as top and sides of my head.

I have had 2 MRIs, a MRA, 4 cat scans of sinuses, spine, neck and sinuses again. I have had Balloon Siuplasty ruling out any sort of sinus issue. Been on rounds of antibiotics. Muscle relaxers, multiple pain meds, diuretics, rounds of steroids, antihistamines, beta blockers, sleeping meds, and multiple other headache medications. I have had a Lumbar Puncture which spinal fluid pressure was normal. Been to optometrist time and time again. Seen 3 neurologist, 1 Neurosurgeon, 4 ENTs, 4 Dentist. Had my wisdom teeth removed, all my amalgam filings replaced and all dental work is perfect. I have had every blood test and allergy test recommended. Everything appears normal. My MRI incidentally showed a small 10mm benign cyst on my pituitary gland. The neurosurgeon and neurologist said it was not causing any pressure or harm. It didn't grow in the year between my MRIs. I have had rounds of hearing test a long with multiple sessions of steroid shots in my ears. Ruled out any underlying ear problems. In the last couple months had blood work re done and my thyroid levels were high, doctors had me on synthetic hormones and retested me recently. They say I have thyroiditis and that my levels keep fluctuation between hypo and hyper. Everything else looked as it should.. I have spent nearly $30k and I am a student. I have missed 1year and a half of college to work and figure this out.

No medication, test, detox, sleeping schedule, physical therapy, acupuncture, or any other remedy has even slightly helped me feel better. My insides feel shaky and my head spins. I am determined to find out what had happened to me but in feel like I am the only one who is, the doctors are very dismissive. If anyone has figured out what is causing their symptoms please let me know I will try anything to narrow down my search. I am very sorry others are suffering like I am I feel your pain and frustration. Taking it day by day ad staying positive has got me this far. There is an answer, it only takes one person to take an interest, have and idea and figure it out. Please post if anyone has any thoughts l. I will post if I find anything new. Thanks again everyone hope you all are doing as good as you can be.
 
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ybird33 replied to thera13's response:
Hi thera13, I don't know if anyone else is still posting - I read the other posts including yours and couldn't believe that I had found people describing the same symptoms! I'm 33 and I've always had neck/shoulder problems leading to tension headaches - a result of all those days working at a desk - but in the last 6 to 9 months things have become unbearable. That awful tightness over the face, jaw pain, occipital pain, headaches, and pain somewhere in my sinuses - it's just exhausting. Back in April I had a relapse of Graves' disease (hyperthyroid), and am on carbimazole - now very slightly hypo, but things are slowly balancing out. ENT have looked at my sinuses - no problems there beyond minor allergies that I've always had. My physio can't see why I'm not responding to treatment but thinks that the thyroid problems must be 'muddying the water', and my thyroid nurse thinks it has nothing to do with my thyroid condition - although I tend to think it must have a bearing since this is the one thing that has changed for me. The thyroid is so important to so many of our systems. That said I still don't know what's going on or how to feel better. I'm going to try the vitamin d - doesn't cost much and won't hurt me so might as well give it a go. Will let you all know if there is any improvement. Hope at least some of you are feeling better these days - I think this can feel very isolating and I constantly feel that people think I'm hypochondriac - but there must be some explanation for feeling this dreadful - we just need to figure it out.


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